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10-24-2010, 06:22 AM | #1 | |||
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Elder
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Hoping for a second wind (do they still call it that?) Fixed breakfast, took a shower, dried my hair, brushed my teeth, and now I'm thinking what a big job church is looking like. Stupid disease.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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10-24-2010, 06:59 AM | #2 | |||
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Elder
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I used so many spoons lately that I too am running on empty. Washed my face, brushed my teeth, hubby made breakfast while I dressed. He fed the cats and scooped the boxes, and ...im ready to go back to bed. I WILL make it to church this week. I just wont be doing much else today. im beat and the sun isnt up yet!
you are in good company sister.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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10-24-2010, 07:20 AM | #3 | |||
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Elder
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Not that this hasn't been said several gabillion times, but I am soooooo glad I have this place (thanks, Doc John) where people GET IT!!
I just can't see myself all pathetic, whining to people at church that the whole enchilada (Bible study followed by Worship Service) is too much for me if I've done anything the day before, and sometimes even if I haven't. A "normal" person thinks, Well just go home and rest after. Which, of course, isn't the point. The point is being too fatigued to think straight and participate in whatever it is. Once I went to a church board meeting and said, "Can I just vote 'no' to everything and go home?"
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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10-24-2010, 11:46 AM | #4 | |||
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In Remembrance
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I have been known to do all my prep the night before an event, I must attend. I will brush my teeth again and run a brush through my hair, if needed,, then throw on my clothes and go, before I have time to think about it.
On these occasions, I sleep on my back, on the couch, as to not mess up my make-up and hair. I have learned, the hard way, that this is sometimes, the only way I'll have the energy to go!! And you're right, Blessings, this is the wonderful place that Doc John created for us to help each other get through the bad times, I've noticed some peeps not coming here often, anymore, because we're maybe not entertaining enough and we complain too much.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: |
10-24-2010, 12:01 PM | #5 | |||
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Elder
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Or maybe they're "here" and just don't have spoons enough left to post. I've opened the reply window, sat and stared at it, said "nah", and remained a lurker. Just because I didn't have the energy or enough wits to pull together.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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10-25-2010, 08:06 AM | #6 | |||
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Elder
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another day, and still not enough spoons to do all that I need to do today.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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10-25-2010, 10:41 AM | #7 | |||
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Senior Member
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Quote:
BTW, I ran out of spoons Saturday and still went to church. I kept falling asleep - not good. I pushed myself all day yesterday after a too busy Saturday and now today I feel like such total poo poo that I want to cry. Honestly, I think that between Sat and Sun I used my spoons for the next couple of days.
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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10-25-2010, 03:45 PM | #8 | |||
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Grand Magnate
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Quote:
I'm here most days. I even think of things to post. By the time I've run thru my mind what I want to say & how I want to say it, I've run out of energy to post it. LOL...So I go to "games" & play the song games with B2Y. Quote:
Wow...I'd be taking out "spoon loans" from now till next Christmas if I could do something worthwhile today..
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"Thanks for this!" says: | Blessings2You (10-25-2010), dmplaura (10-28-2010), hollym (10-26-2010), SallyC (10-25-2010), TRESA (10-27-2010) |
10-28-2010, 07:42 AM | #9 | |||
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Magnate
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SallyC: I too do what can be done the night before. I'm always taking the cautionary route should I wake up not feeling 100% in the morning. It's actually nice (MS or not!) to wake up and just click the coffee maker 'on' button without fiddling with a filter and spilling coffee all over the kitchen in my half-conscious morning state . Also nice to have my lunch for the following day in the fridge all ready to go like an airplane stewardess, and just toss it in my green bag to take to work. Finally, checking the forecast the night before so I know if I need my umbrella, winter coat, hat etc...and having those out right in front of my eyes so I don't forget anything the next day.
Carries forth my spoons, I can tell you that. It's almost like spoon-building . Feel better B2Y and I hope you can find many more spoons in days to come.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (10-28-2010) |
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