NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   I am having the "Liberation Procedure" (https://www.neurotalk.org/multiple-sclerosis/136421-am-liberation-procedure.html)

jeep4wd 11-01-2010 02:26 AM

Good news something that all of us are not used to hearing.I am watching you and someone in my family going to Albany for this!I will be updating everyone on her progress.Hope that this really works for you I really do....Jim

clarkstar 11-01-2010 02:42 PM

best of luck on this! i have no idea what it's all about but now i will look!

Lady 11-01-2010 07:24 PM

Thank you for your well wishes.

No Cyn, I am not better yet. this bug is kicking my buttski. I just want to lay down and let the flu bug stop bugging me. I think the UTI is getting a bit better, but still uncomfortable. (sigh)

I am still fighting, trying not to relapse. Why did I have to get sick and need steroids when I can't have them before the procedure?

What kind of luck is hanging over my head? I am resting so much now. Before it hit I couldn't sleep, now that's all my body wants to do. I guess you have to be careful what you wish for, ya think? :)

Thanks Jim, I pray your family member see great improvements. Some get it right away, some it takes times, up to six months.

This is not a trial. It is the Liberation Procedure, with data collection to show the naysayers that this really helps so many people. It is in the early stages (two years). Many of us can't wait ten years for the NMSS and some clinical trials to agree.

We know it works. Besides, who needs to have blocked jugulars? That's not normal even in a non-MS body. If it's broken, it needs to be fixed. :grouphug:

Thanks Kajun, Wiz, Pud's friend, Nurse Nancy, Linda, Sally, Judy, Laura, Lynn, Dej, Kitty, Twink, Eddie, and all of you who read my thread and said thanks. You don't know how important your thoughts and well wishes mean to me.
Thank you all.

dmplaura 11-02-2010 10:02 PM

You're awesome Lady!!! :) I eagerly await your updates :)! Hugs xoxo

EddieF 11-03-2010 07:02 PM

2 cents - the fact your LEFT was smaller/restricted more then right really means something because pharmacist (not doctor go figure) told me Left is bigger then Right cause it's the side your heart's on.

UTI - Macrobid i've been using as needed. It's a antiSeptic, not biotic. Helps. 100 or 200mg.

Lady 11-04-2010 07:44 PM

Thanks Laura, oxoxox backatcha.

Hi Eddie, I had an ear infection, sinus, fever, chills and joint aches. My virus went bacterial and I got an UTI too (bacterial). So my anti-b's are really broad spectrum anti-bacterial medication to knock out all bacterial infections It is Tetracycline 500 mg, 4 times a day.

Powerful for me. It knocks the crapola out of me too. Side effect is weakness, well I want to sleep as soon as I take it. Makes me very thirsty too.

Finally my ear popped, not clogged anymore so I guess it is working. I can't tell about the UTI until I go back for a check-up. It feels better but I may need another week of meds, I don't know.

I haven't have a UTI in over 20 years. Microbid or Gantanol used to work for the cystitis and pain. I am allergic to both now. Thanks for your ideas (2 cents). :)

SallyC 11-07-2010 12:29 PM

I hope you're feeling a little better today..:hug::hug:

jacksonsmommy 11-10-2010 11:08 PM

Quote:

Originally Posted by Lady (Post 709767)
Hi my friends,
FYI:

I just wanted to let you all know that my left jugular in blocked and I am going to Albany on Dec. 8th to get the Catheter Venogram to get unblocked. Otherwise known as the CCSVI procedure for MS.

All my veins will be tested while I am on the table, like the Azygous vein in the chest. During the procedure, my Dr. will balloon them open or stent if needed.

I had my CCSVI procedure on May 31, 2010 and it has absolutely changed my life. I have had dramatic symptom improvement. Hoping you get the same results! Good luck.


All times are GMT -5. The time now is 09:55 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.