F2U,:hug::hug:

You've gotten a lot of advice and hugs on this thread...know that we all hope you are back to being "normal" (whatever that is) real soon.

Thanks for posting this...lots of great advice on it!! I've been dealing with this the past week also, and it's good to read what others said about the change of seasons maybe causing this.

And Craig, you are so great to share your philosophy of life...I treasure it.

Love the tshirt logos!!

And love that you challenged that mom, Kitty...people are quick to judge, which saddens me so.

So, F2U, let us know how you're doing, and take care:hug:

And it's SO much more effective when you nicely challenge them. Sort of takes all the air out of their sails! :cool:

since i still have not started treatment, this is the only way i walk lol(when i am not using my walker). i look like a staggering drunk. i hope once i start some ms meds this will no longer be the case. at least for the most part :)

Thank you all!
 

Thanks to EACH and EVERY one of you for your comments and hugs! I am not glad others are struggling with this as well, but glad that the post has been helpful to others.

I think, as Lady mentioned, I may be coming down with something, the colder weather is giving me a cold and sore throat. So I hope that things will get better soon.

Craig, I looked at your blog for the first time...nice!!! You have a lot of wisdom to share, so glad you are a part of NT.

:hug::hug: to all of you!
-Friend

Hi Friend2U, I hope you are feeling better this week!:)

-emily

I hope the meds work for you. I started rebif in June and I don't really notice a difference. I'm hoping that after a year, no new lesions and maybe a pair of heels. They don't have to be sky scrapers, but any height would do. Good luck with the meds. They now have an oral. I hate injections but rebif has thin needle, 3x a week and an autoinjector. Make sure you do your research and decide whichever is best for you. Goodluck.

Hello All...
 

Just an update....but not much to tell...still not walking well and seem worse rather than better. :( Having lots of burning in my legs now. I haven't called my neuro though...I don't know. I 'think' there wouldn't be much to do. I don't want to take steroids if it is a relapse. I only want to do that if I'm in a lot of pain or completely can't get around. And I can manage to walk what I need in the house with my rollater.

Anyway, just thought I would touch base. Love you guys! :hug:
~Friend

Update since Neuro visit...
 

Went to my check-up today. I am still having the extreme weakness in my legs. He feels at this point it is deterioration caused by progression of the disease itself. It has been getting steadily worse for quite a few months now. He has ordered some physical therapy for my legs. I can have that done about 3 miles from my house, so that is feasible. I am hoping the PT will be good for me.

Just thought I would give you an update.:hug:
Thanks for listening! You folks are some of the few I have to talk to...so thanks!

:hug: I am so excited for you - about the PT ordered by doc and that it's close to home - that helps!

I thought (last year) when I was sent to PT that my doc just "wasn't getting it!" when I talked about not being able to walk or the fatigue etc. Especially when PT was ordered for me.

I couldn't even get the bicycle wheel to go around one time - labored endlessly trying to figure out how to make my legs work right. They had to physically move my legs to make the wheel turn.

So pathetic and embarrassing - especially for me - an ex gymnastic competitor. I was so humiliated.

But I persevered and they were so thorough in helping me to understand which muscles were weak-exercises to strengthen them etc

At the end of 12 weeks I was riding that bicycle 5 miles! And, it felt so good. My leg pains decreased and it just felt good to be fairly functional again.

But, its been the DOG who has gotten me back on my feet and I find the flare ups are not as severe-still slow me down and get stumbly again but not as bad as last year.

PT is a blast and I loved the girls who worked with me and then you get the massage chair and the big Awwwww.

Hope your experience is as wonderful.

It can really help - Go For It!!:winky:

Tresa,
 

Thank you SO MUCH for the encouragement. You give me hope. I trust my neuro completely, and feel he has a good grasp on what I need. So far he hasn't disappointed. I am even MORE hopeful after what you say, that I will be able to see real help! I am so glad it was successful for you!

I'm not sure what activities and excercises they will have. It's a small place so maybe won't have as much available as some places. I should hear something next week. They will be calling me to set up the schedule.

I will keep you updated if you like! Thanks:hug: