| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
11-07-2010, 09:59 PM
|
#1 | ||
|
|||
|
Junior Member
|
There was an MS conference today in Manhattan, I really wanted to go though there was NO WAY I was driving to Manhattan & with my wheelchair in for repair I COULD NOT take public transportation. Mom USE TO work in Manhattan & drove there 5 days a week for OVER 5 YEARS, granted she was a lot younger then but she agreed to drive me to Manhattan.
The parking lot I had been told about on the phone when I registered was CLOSED ON SUNDAY; why did they say we could park there? I stopped a police car passing us & asked him. We were near a hospital & most of the street was RESERVED for doctors but the police officer said because my mother had handicapped license plates she COULD park there. OK we had CLOSE PARKING. I attended a function by the MSF some time ago & it was in a restaurant. There was a buffet, the buffet was in a "sunken" middle part of the room down several steps, many people could not personally go to the buffet because of this. Today we had to walk through one long hallway after another, up a pretty steep hill; the walk was horrendous; one woman was in tears when she finally reached the conference room. Well this WAS NOT my point just VENTING, the point is that the conference was largely about the benefits of PT. I have started & stopped PT many times mainly because MOST PT's DO NOT understand MS or they here "progressive" set you on a routine then each time you come in say "go do it" & ignore you. I have not been to PT in a while. The other problem I have is I require multiple therapies; PT, OT, speech & swallowing, cognition... The people that spoke today were from a Rehab Center & offered all these services & more under one roof. This was one of the first Rehab programs I was really impressed with. The PROBLEM is that it is in MANHATTAN & I am in LONG ISLAND. Able ride WILL NOT transport to Manhattan from Long Island. But in speaking with someone from the team today MEDICAID MIGHT pay TRANSPORTATION & 100% of my treatment would be covered by INSURANCE. I spoke to the Speech therapist during lunch break & she told me I could also take Able ride to an LIRR Station & go to Penn Station they are less than 1 block from Penn Station. I was still in the "thinking" stages when we left the conference which was from 9 am to 3:30 pm. The ride home was OVER 1 hour & with mom as my chauffeur I COULD NOT escape. I swear she remembers 90% of what was said verbatium. I was a captive audience (not by choice) as for this entire long trip she told me all the ways I could improve my life & things she EXPECTS ME TO DO. I told her I would look into this program (my neurologist would have to be on board & I would have to figure transportation). Well mom already has it in place that someone is replacing the floor in my room now she tells me BEFORE the carpet is ripped up I either have to have a "plan" in place with this Rehab Center OR be set up for PT locally. Huh? It gets better, in my condo we are considered the 1st floor even though you need to take the elevator UPSTAIRS to go to the mailroom, consierge's desk, etc. She said starting tomorrow she DOES NOT want my PCA to get the mail I HAVE TO GET IT. Now she is HIGHLY MOTIVATED to get me moving. The thing is I AM NOT highly motivated. During "questions" with one of the speakers mom told the speaker my lack of motivation was from DEPRESSION & the doctor told her that 90% of MS Patients with depression can DECREASE their depression by exercising. I lost count of how many times she has quoted this to me since we left the conference. I THINK my neurologist will be on board & if transportation can be arranged that is another hurdle & this is the 1st program I have ever been impressed with in my 25 + years with MS but I am still a bit well I don't know... UNMOTIVATED... APPREHENSIVE... I DON'T KNOW... 
__________________
"OUR LIVES BEGIN TO END, THE DAY WE BECOME SILENT ABOUT THINGS THAT MATTER" |
||
|
 Reply With Quote
|
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| A Definition Question- re meaning of "Full Body RSD" and "Internal RSD" ?? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
| So which "existing" diabetes drug turns the PGC-1 Alpha "Master Switch" back on? | Parkinson's Disease | |||
| Actor Patrick Swayze, star of "Dirty Dancing" and "Ghost," | The Stumble Inn | |||
| For Your Information: ALS - "The Monster" | ALS News & Research | |||
| "Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" | Parkinson's Disease | |||
I created a "monster"
Threaded Mode