Home Menu

Site Navigation



NeuroTalk Support Groups > > >

CCSVI Update!!

Reply
 
Thread Tools Display Modes
Old 11-25-2010, 01:42 PM #1
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Thumbs up CCSVI Update!!
My Friend Sue's Liberation procedure update.
A Success, so far..

Quote:
A note to say hi and let you know I am back home. It was a rough trip but successful. had blockage in left jugular veins and azynous about 75 percent,50 pecent on left side, said right side looked good but did get angioplaysted on the left side and azynous veins. today I do not have to use cane to walk as left side is getting stronger about was ready to graduate to a walker then w/c as left leg was getting so bad but now it is getting stronger. Incontenance is so much better, double vision is gone, dizzyness is still there but hope that will get better as times go on. cognitive seems better, attitude is so much better even though I am still a b--ch.lol Fatigue seems to be improving overall am totally amazed and so thankful for the results I have seen and hope to see more improvements as time goes on. I know the neuros will probably say this a placebo effect but it is not as how can inconstinance be a placebo as that is so much more improved,

Trip was rough but got through it. Son was fantastic, treatment was billed to medicare . Don't know how much they will pay but will find out.

Now it is time to heal and let my body get use to blood flowing through the body again. Wish everyone could have this done and see some improvements. Met couple from Canada that was going for treatment and couple from Virginia so many are coming from all over to get this done. Hope it will be for all who has MS. Will not be taking Tysabri again, will keep taking LDN for it now and nothing else.

After I get more rested will let you know of improvements. Did not get video of before and after as I was sick that morning and not up to taping will do a video at Christmas as update as son has video camera that he can tape instead of cell phone. Hope you are doing well.


__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
0357 (11-27-2010), Aarcyn (11-26-2010), Dejibo (11-25-2010), dmplaura (11-25-2010), Grammie 2 3 (11-26-2010), jacksonsmommy (11-27-2010), jeep4wd (11-26-2010), Koala77 (11-27-2010), Lady (11-28-2010), NurseNancy (11-26-2010), PolarExpress (11-27-2010), Twinkletoes (11-28-2010)
Old 11-26-2010, 11:17 AM #2
Aarcyn's Avatar
Aarcyn Aarcyn is offline
Senior Member
  
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Default
love it, Sally. What part of the country?
Aarcyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (11-26-2010), Lady (11-28-2010)
Old 11-26-2010, 11:51 AM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
Quote:
Originally Posted by Aarcyn View Post
love it, Sally. What part of the country?
New York, I believe she said Albany. Her DSon took her and is paying what Medicare doesn't pay.

I'm anxious to see if the improvements hold and keep coming. I think that eventually all angio patients will need a stent?

Praying and keeping fingers crossed for Sue and also for Lady's upcoming procedure.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Aarcyn (11-26-2010), Dejibo (11-27-2010), Grammie 2 3 (11-26-2010), Lady (11-28-2010), Twinkletoes (11-28-2010)
Old 11-26-2010, 01:35 PM #4
Grammie 2 3 Grammie 2 3 is offline
Member
  
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default
Thank you for the post, Sally! I had an MRV Wed, will find out the results on 12/3. I may need to ask for more info from your friend as to the procedure and how she found the Dr in Albany.

I hope Sue does better n better

Linda
Grammie 2 3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-28-2010), SallyC (11-26-2010)
Old 11-26-2010, 02:52 PM #5
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
  
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default
Sally,

i feel dumb asking this Q but i'm confused.
we're talking about clearing out blockages in the jugular veins?
if we are, how does that connect with MS and sx's?

i am not seeing the big picture here but glad sue is doing so much better.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (11-28-2010), Lady (11-28-2010), SallyC (11-26-2010)
Old 11-26-2010, 03:20 PM #6
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
Here is a website that should explain it all, Judy..


http://csvi-ms.net/en
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (11-27-2010), dmplaura (11-26-2010), Grammie 2 3 (11-28-2010), Lady (11-28-2010), NurseNancy (11-28-2010)
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
This is about the best discussion of CCSVI Lady Multiple Sclerosis 0 11-01-2010 07:42 PM
CCSVI-I can't help but think that there actually my be something to this! Riverwild Multiple Sclerosis 75 06-30-2010 07:23 PM
CCSVI Video SallyC Multiple Sclerosis 5 06-29-2010 09:04 AM
CCSVI question Aarcyn Multiple Sclerosis 7 03-09-2010 06:43 PM
Ccsvi Jules A Multiple Sclerosis 3 09-13-2009 12:08 AM


All times are GMT -5. The time now is 04:22 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home