That is a long time doing the Betaseron shots. I'll be sending good thoughts and prayers Jim's way. :)

Too many drugs can be worst than taken a lesser amount of drugs. JMO
Best of luck to you Jim.


I stopped Avonex and then Copaxone after many years. I have no new lesions since I stopped the injections. Then I went on LDN.

Barb, the bill will be pulled Tuesday the 30th but I am not sure what time. Lou Lang will be introducing some patients in his speech. I have also been told the Civil Union and Death Penalty bill will be pulled that day as well. Going to be an interesting day! Watch live at ilga.gov (click audio/video under House).

Montel Williams will also be here. He's coming in Monday night and meeting with Lou and some on the fence reps Tuesday morning. If he sticks around he can sit with us in the speaker seats if he'd like. I hooked us up in the invite only seats. Helps I live next door to the former speaker of the house! :D

I can empathize with Jim on this issue. If I get to the point of SPMS I'll stop the meds too because at that point they don't really have much evidence of working since they're mostly for relapses. I haven't had a relapse in more than five years so I might actually be there too, but I have my head in the sand and I'm still working, and say my prayers all the time that I can continure.

Jim is awesome and I hope this will improve his qol. I know if I need to retire either voluntarily or not, I'll likely stop with the Nuvigil since that is the med that keeps me working.

God bless him and you too for all you do for the rest of us with your wonderful examples. :grouphug: :grouphug:

Jim, I hope it all goes well with stopping the Betaseron. 10 years is a long time.

I'm pulling for you folks over there in Illinois!
We are still fighting the legislature here in Maine. They changed the nature of our MM laws by requiring patients to register with the state. I refuse to do it. I am hoping we can get that changed because I do not trust the state to ensure that my information remains private. I also do not like the police having access to the registry. I will be an outlaw after Jan 1st, because I will only be using my doctor's letter, and NOT getting any freakin' ID card from the state!


Many of the places that have been chosen for dispensaries and growing facilities have enacted moratoriums on opening the centers. There are NO dispensaries in place yet, and we voted for this a year ago.

The state is now going to charge a sales tax, the towns where the dispensaries open want to charge licensing fees and security fees and who knows what else they will try to put on them before we get even one open.

There's a fee for caregivers to carry and dispense or grow, it is set at $300.00 if they do the growing and $100.00 if they are just procuring it from a dispensary. It makes me sick to see what is happening to what was supposed to help patients gain easier access to MJ rather than looking for it on the street.

Keep your eyes on your state legislature if it does pass!

Thanks Wiz!!! I hope you continue to do well!

RW, girl we may have to amend ours to satisfy everyone. The dems let us down and so did the republicans on this. We got mudd in the face but was able to postpone until January. My neighbor is the former republican speaker of the house and got us the speaker seats and Montel showed up too. Debbie was there with us as well. My neighbor is mad and plans to find out why the dems failed us and why the republicans were ao cruel with their dope head analogy. Let's hope he can do something! We are meeting with Lou Lang sometime this week to figure things out and how to get this passed when lame ducks will most likely be absent. :(