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11-26-2010, 12:23 PM | #1 | |||
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In Remembrance
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(((((Jim)))))
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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11-26-2010, 12:27 PM | #2 | |||
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Wisest Elder Ever
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Stopping Beta was one of the best decisions I ever made. I hope Jim starts to feel better. Sometimes giving our bodies a rest from the assault of all these medications that are supposed to be helpful is the best thing we can do. I wish him the best.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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11-26-2010, 12:41 PM | #3 | |||
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Wise Elder
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Thanks you guys.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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11-26-2010, 02:56 PM | #4 | |||
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Grand Magnate
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hi sandy, and jim,
thanks for the update. i hope jim holds his own off the shots. you both have a great x-mas season.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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11-26-2010, 04:19 PM | #5 | |||
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Grand Magnate
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I will be watching Springfield next week when I can. Is it scheduled for the 30th? Hope it goes well!
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11-28-2010, 01:31 AM | #6 | |||
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Senior Member
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That is a long time doing the Betaseron shots. I'll be sending good thoughts and prayers Jim's way.
Too many drugs can be worst than taken a lesser amount of drugs. JMO Best of luck to you Jim. I stopped Avonex and then Copaxone after many years. I have no new lesions since I stopped the injections. Then I went on LDN.
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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11-28-2010, 05:00 PM | #7 | |||
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Wise Elder
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Quote:
Montel Williams will also be here. He's coming in Monday night and meeting with Lou and some on the fence reps Tuesday morning. If he sticks around he can sit with us in the speaker seats if he'd like. I hooked us up in the invite only seats. Helps I live next door to the former speaker of the house!
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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11-29-2010, 12:42 AM | #8 | |||
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Elder
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I can empathize with Jim on this issue. If I get to the point of SPMS I'll stop the meds too because at that point they don't really have much evidence of working since they're mostly for relapses. I haven't had a relapse in more than five years so I might actually be there too, but I have my head in the sand and I'm still working, and say my prayers all the time that I can continure.
Jim is awesome and I hope this will improve his qol. I know if I need to retire either voluntarily or not, I'll likely stop with the Nuvigil since that is the med that keeps me working. God bless him and you too for all you do for the rest of us with your wonderful examples.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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12-02-2010, 06:09 PM | #9 | |||
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Magnate
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Jim, I hope it all goes well with stopping the Betaseron. 10 years is a long time.
I'm pulling for you folks over there in Illinois! We are still fighting the legislature here in Maine. They changed the nature of our MM laws by requiring patients to register with the state. I refuse to do it. I am hoping we can get that changed because I do not trust the state to ensure that my information remains private. I also do not like the police having access to the registry. I will be an outlaw after Jan 1st, because I will only be using my doctor's letter, and NOT getting any freakin' ID card from the state! Many of the places that have been chosen for dispensaries and growing facilities have enacted moratoriums on opening the centers. There are NO dispensaries in place yet, and we voted for this a year ago. The state is now going to charge a sales tax, the towns where the dispensaries open want to charge licensing fees and security fees and who knows what else they will try to put on them before we get even one open. There's a fee for caregivers to carry and dispense or grow, it is set at $300.00 if they do the growing and $100.00 if they are just procuring it from a dispensary. It makes me sick to see what is happening to what was supposed to help patients gain easier access to MJ rather than looking for it on the street. Keep your eyes on your state legislature if it does pass!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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