advertisement
Reply
 
Thread Tools Display Modes
Old 11-26-2010, 12:23 PM #1
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

(((((Jim)))))
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-28-2010), SandyC (11-26-2010)
Old 11-26-2010, 12:27 PM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Stopping Beta was one of the best decisions I ever made. I hope Jim starts to feel better. Sometimes giving our bodies a rest from the assault of all these medications that are supposed to be helpful is the best thing we can do. I wish him the best.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-28-2010), SandyC (11-26-2010)
Old 11-26-2010, 12:41 PM #3
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Thanks you guys.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (11-26-2010), Lady (11-28-2010)
Old 11-26-2010, 02:56 PM #4
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

hi sandy, and jim,

thanks for the update.
i hope jim holds his own off the shots.

you both have a great x-mas season.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-28-2010), SandyC (11-28-2010)
Old 11-26-2010, 04:19 PM #5
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default

I will be watching Springfield next week when I can. Is it scheduled for the 30th? Hope it goes well!
barb02 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-28-2010), SandyC (11-28-2010)
Old 11-28-2010, 01:31 AM #6
Lady's Avatar
Lady Lady is offline
Senior Member
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default

That is a long time doing the Betaseron shots. I'll be sending good thoughts and prayers Jim's way.

Too many drugs can be worst than taken a lesser amount of drugs. JMO
Best of luck to you Jim.


I stopped Avonex and then Copaxone after many years. I have no new lesions since I stopped the injections. Then I went on LDN.
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (12-03-2010), hollym (11-28-2010), SallyC (11-28-2010), SandyC (11-28-2010)
Old 11-28-2010, 05:00 PM #7
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Quote:
Originally Posted by barb02 View Post
I will be watching Springfield next week when I can. Is it scheduled for the 30th? Hope it goes well!
Barb, the bill will be pulled Tuesday the 30th but I am not sure what time. Lou Lang will be introducing some patients in his speech. I have also been told the Civil Union and Death Penalty bill will be pulled that day as well. Going to be an interesting day! Watch live at ilga.gov (click audio/video under House).

Montel Williams will also be here. He's coming in Monday night and meeting with Lou and some on the fence reps Tuesday morning. If he sticks around he can sit with us in the speaker seats if he'd like. I hooked us up in the invite only seats. Helps I live next door to the former speaker of the house!
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (11-29-2010), hollym (11-28-2010), SallyC (11-29-2010)
Old 11-29-2010, 12:42 AM #8
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

I can empathize with Jim on this issue. If I get to the point of SPMS I'll stop the meds too because at that point they don't really have much evidence of working since they're mostly for relapses. I haven't had a relapse in more than five years so I might actually be there too, but I have my head in the sand and I'm still working, and say my prayers all the time that I can continure.

Jim is awesome and I hope this will improve his qol. I know if I need to retire either voluntarily or not, I'll likely stop with the Nuvigil since that is the med that keeps me working.

God bless him and you too for all you do for the rest of us with your wonderful examples.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (12-03-2010), SallyC (11-29-2010), SandyC (12-02-2010)
Old 12-02-2010, 06:09 PM #9
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Jim, I hope it all goes well with stopping the Betaseron. 10 years is a long time.

I'm pulling for you folks over there in Illinois!
We are still fighting the legislature here in Maine. They changed the nature of our MM laws by requiring patients to register with the state. I refuse to do it. I am hoping we can get that changed because I do not trust the state to ensure that my information remains private. I also do not like the police having access to the registry. I will be an outlaw after Jan 1st, because I will only be using my doctor's letter, and NOT getting any freakin' ID card from the state!


Many of the places that have been chosen for dispensaries and growing facilities have enacted moratoriums on opening the centers. There are NO dispensaries in place yet, and we voted for this a year ago.

The state is now going to charge a sales tax, the towns where the dispensaries open want to charge licensing fees and security fees and who knows what else they will try to put on them before we get even one open.

There's a fee for caregivers to carry and dispense or grow, it is set at $300.00 if they do the growing and $100.00 if they are just procuring it from a dispensary. It makes me sick to see what is happening to what was supposed to help patients gain easier access to MJ rather than looking for it on the street.

Keep your eyes on your state legislature if it does pass!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (12-03-2010), SandyC (12-02-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I finally made an important decision about the pain doctor situation! tchr012 SCS & Pain Pumps 8 10-13-2010 01:51 PM
I made home made pasta today Jomar Food Court 4 02-19-2010 10:05 PM
I just made home-made yogurt MelodyL Food Court 7 02-20-2009 10:00 AM
I woulda made a rash decision. Blessings2You Multiple Sclerosis 14 07-17-2008 12:00 PM
Decision needs to be made pianoplayer Thoracic Outlet Syndrome 33 02-05-2008 11:33 PM


All times are GMT -5. The time now is 06:21 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.