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Old 09-25-2006, 10:27 PM #21
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I am upset because I think I'm having a flare up. I am not supposed to get those anymore, just because.

I have terrible pain off and on, from spasticity, I think. I started Baclofen last week, it helped for a few days, but today was another miserable day. I can't take steroids, because they make my blood pressure go sky high. I'm afraid of Tysabri, because I would likely be the one to get the PML on the mono-therapy.

I'm trying to finish my college degree, and now the Baclofen is fogging my thinking. I called the college disability department today, and that really upset me. I can't handle these setbacks. The woman there seemed to talk down to me, so I'm passing on it, not calling back. I will tough it out, they can just put up with me, and wonder why I am not the super student anymore.

I feel like I should be in control of this really stupid pathetic disease, but I'm losing ground anyway.

I am not my cheerful self lately.
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Old 09-25-2006, 10:41 PM #22
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Oh ewizabeth, I'm so sorry. Such a tough disease to live with.

You have RRMS? Try to remember that this too shall pass. I don't know what your history is but chances are that if you're RRMS at least some of your current symptoms will decrease and you will feel better.

You must rest and try not to get too upset. It is so important to not add more to your already overstressed body and mind. You already have a full plate with school and I know this kink in your plans isn't helping. But please keep in mind that this is probably the worst of it right now and you will probably begin to improve again.

Do you have some one that can be your advocate with the school disabilities office? I know that when I'm feeling sick, I'm in the worst possible position to feel strong and to stand up for myself. If you have a friend or family member that could do some of the 'talking' for you, it might help. You deserve any accommodations and you are entitled to them. If talking to the office yourself is something that you don't feel like doing, either do it by writing or have someone do it for you. Whatever gets you what you need. Zanaflex is another option for spasticity too if baclofen isn't helping.

Rest up and take care of yourself, okay?

Last edited by wannabe; 09-25-2006 at 10:50 PM. Reason: add info about zanaflex
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Old 09-26-2006, 02:13 PM #23
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You must rest and try not to get too upset. It is so important to not add more to your already overstressed body and mind. You already have a full plate with school and I know this kink in your plans isn't helping. But please keep in mind that this is probably the worst of it right now and you will probably begin to improve again.
Hi Wannabe,

There I go again, being a thread-stopper by saying the wrong thing in the wrong place. Thank you for the advice, and for consoling me when I was feeling sorry for myself. I was definitely in a curmudgeonly mood last night. I am trying to slow down, and think clearly, and not panic about school.

I do not have to be a straight A student. I just need to deal logically with this pain. I really need to call the neuro's office again, and maybe I actually need to go in, instead of suffering for so long. I wonder if my pains are related to Copaxone, because this has sort of crept up on me gradually. I see that joint pain, and muscle pain are side effects, and I have both of those. I am not a good and willing medicine taker. I am mostly upset that I might need heavy pain meds, and they will interfere with my thinking, and I make my living with my mind, and I don't want to lose that too!

So, I will crawl off to my little dark spot and make fists in my pockets. If I need to whine about this again, I will post a new thread.
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Old 09-26-2006, 04:07 PM #24
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My husband woke this morning to say he's had a great night's sleep but for some reason had awakened tired.

(Be glad you're not married to me)
I responded with , it was a terrible night. You insisted on the fan because it was near 70 (but raining) and it filled the room with humid warm air and the sheets are damp and I kept waking feeling sticky and miserable all because you didn't want to put the A/C on because we're into fall already.

And...the dog was restless and I was up to put her out three times while you blissfully snored away with your earplugs in.

And...she still wet her bed twice anyway so now I have to wash it and give the dog a bath to get the urine out of her fur.


He then has the audacity to suggest that we move our bedroom upstairs and leave the pets downstairs. Yeah, right! The dog tears up rugs and climbs on the couch and destroys the cushions when we're not near her and she's too lame to make it upstairs and you won't let the vet put her down because she's "just old" and not in visible pain although she can't see or hear or control her bladder and keeps tipping over!

Does that rant qualify as crudmudgeonly?
Sorry Cher, I couldn't help it.

Men are so clueless.
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Old 09-26-2006, 04:11 PM #25
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Thanks Sal. You DO understand!

Today is too nice to be grumpy so I'll not taint this thread with niceities. Maybe tomorrow.
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Old 09-26-2006, 04:16 PM #26
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Ewizabeth, why don't you stop the Copax for a few days and see if the pain subsides.

Sorry that the darn MS is making you feel so curmudgeonly. Go kick your Neuro in the shins...that should make some of your pain go away..tee hee.

Sneaking in a hug for you, while nobody's looking.
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Old 09-26-2006, 05:06 PM #27
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Quote:
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Thanks Sal. You DO understand!

Today is too nice to be grumpy so I'll not taint this thread with niceities. Maybe tomorrow.
I think wives all across America are nodding while reading your post Cherie

Now, I have the most wonderful husband, but, still, he does these so male-ish things. Can you imagine going through the hurricane and throwing stuff out thats wrecked, and then rebuilding with all the subcontractors , insurance folks to deal with, and doing it with a male partner?

I could write a book.... but instead, I'll just take my drugs
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Old 09-26-2006, 10:00 PM #28
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Quote:
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Ewizabeth, why don't you stop the Copax for a few days and see if the pain subsides.

Sorry that the darn MS is making you feel so curmudgeonly. Go kick your Neuro in the shins...that should make some of your pain go away..tee hee.

Sneaking in a hug for you, while nobody's looking.

Thanks Sally! That's a curmudgeonly solution to my problem! I might try that with the Copaxone, good idea!
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Old 09-30-2006, 04:16 AM #29
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This is the crabby corner, right?
Vacation was good but I was traveling w/a serious curmudge. OMG.
I learned many new derogatory and unpostable terms for drivers and other humans.

My sweet revenge- dragging him into so beautiful & soulful experiences it made him walk off mushy-eyed. Never before heard anyone curse art for making them cry.

I won.
In a good way.
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Old 09-30-2006, 07:55 PM #30
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Hey. That must be rennee from BT1. Good to see ya.

I never really did understand people who curse at other drivers.
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