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-   -   Passing This Disease On (https://www.neurotalk.org/multiple-sclerosis/140120-passing-disease.html)

Mariel 12-06-2010 06:10 PM

The big question never answered in my family. I have three older (deceased) relatives who
had either a definite MS diagnosis or a suspected one (these suspected people were WAY
back, like great grandma). Because I do have a genetic disease, Porphyria, which is one of the many which mimic MS neurological problems, I may or may not have MS, but my dx has not been rescinded, as I had the positive MRI and eye tests when I had Optic Neuritis, and many symptoms during the decades before diagnosis. I have been on the Swank diet for over a quarter of a century and I know it has kept me functioning, but now I have other things like Polycythemia Vera which give me foot neuropathy.

So it's a mystery who in my family has it. My son doesn't show any signs to me.

SallyC 12-06-2010 09:17 PM

Quote:

Originally Posted by Kitty (Post 723157)
But your DD has a definite dx of MS, doesn't she, Sally?

Yes, but she still has doubts. She stopped her LDN and her prozac a few years ago and had an exacerbation. Needless to say, she went back on both and hasn't had another flare since. (Praying, crossing fingers & toes and knocking loudly on wood).

Debbie D 12-06-2010 10:54 PM

Ackkk!!! I ALWAYS worry about this!! DS35 has "thinning retinas"...makes me worry, since I read something that states that this is a sign of MS.

So, do we make our children worry? Or listen to them, chart in our minds their sxs and make suggestions when it seems apparent that they should see a neuro?

That is the $64K question...:(

Kitty 12-07-2010 12:09 AM

Quote:

Originally Posted by Debbie D (Post 723232)
Ackkk!!! I ALWAYS worry about this!! DS35 has "thinning retinas"...makes me worry, since I read something that states that this is a sign of MS.

So, do we make our children worry? Or listen to them, chart in our minds their sxs and make suggestions when it seems apparent that they should see a neuro?

That is the $64K question...:(

I try really hard not to act alarmed when he asks me about certain things....like the day he described the feeling of something wet on his lower leg. It's a familiar feeling to me when I'm in a flare. I know there are other reasons for it but the "Mom" in me always thinks the worst! :rolleyes:

doydie 12-07-2010 12:13 AM

In our family we have an over abundance of auto immune disorders. I guess MS is the one I got, plus psoriasis. I do think that the tendency to have an illness can be in a family but who knows how far back it goes.

Snoopy 12-07-2010 10:44 AM

Quote:

Originally Posted by Kitty (Post 723030)
and that thing when you bend your neck forward and have the feeling of vibration in your torso (see....I can't even recall the name of it myself! :rolleyes:).

It's called L'Hermittes. L'Hermittes has different causes such as B-12 defiency, nerve impringment at the c-spine as well as other things.

Your concern is understandable, I think all of us with children worry and wonder.

I would certainly gently encourage your son to see his PCP for some bloodwork and then maybe go from there.

Blessings2You 12-07-2010 07:14 PM

My Dad had MS. He passed away a few years before my diagnosis, so he never had to wonder if or suspect that he "gave" it to me.

My daughter has described symptoms that send chills down my spine. However, I keep telling myself that some COULD be carpal tunnel syndrome, some COULD be many other things. Lots of people are "clumsy" or have balance issues. Still...

My daughter is the least suggestible person I know as far as "maybe I have that", but I'm sure the thought has crossed her mind. We don't talk about the possibility of MS, though I probably have teeth marks on my tongue.

ali12 12-07-2010 08:24 PM

As some of you may know, my nanan had MS since she was 38 years old (she's sadly passed away now).

My mum was having symptoms like your sons at the end / beginning of this year. She had numbness in her hand for weeks and kept feeling dizzy and fatigued.

I begged her to go to the Doctors but she wouldn't listen. She's kinda stubborn like that ... wont tell anyone she's ill but complains if I wont, lol!:rolleyes:

After a few months thankfully, her symptoms lessended and at the moment, they have gone completely. She has said that she will go to the Doctors now if they return ... think it scared her especially with my nanans history.

I do hope your son feels better soon. Most of my family on my mums side have a neurological condition (I have Reflex Sympathetic Dystrophy, Nanan had MS, Uncle had Parkinsons disease etc) so it does make you wonder if they could be hereditary.

Try and not worry ... i'm sure it's easier said than done!:rolleyes: I agree with what the others said, get your son to visit his Doctor ... better to be on the safe side!

Take care and let us know how things go!

Riverwild 12-07-2010 09:04 PM

Hey Kitty! I'm reporting me to you for this highjack!

HI ALI!! :)

SallyC 12-07-2010 09:49 PM

ME TOO....Hi Ali and Hi Missy River..:D


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