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Old 01-10-2011, 10:49 AM #1
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Quote:
Originally Posted by brainfreeze View Post
I was offered neurontin for this a few months ago, but declined because I take enough pills and really didn't want to add any more to the list, BUT, ready to call and request a prescription.
Don't rush. From what I've been reading lately, Neurontin is overprescribed, habit forming and probably shouldn't be taken for MS, at all.

I tried it, made me dizzy and sick and I would have had to build up to a gigantic amount, for it to do any good. I'd rather have an Aleve or Bayer, once in awhile than be zombi on Neurontin and Baclofin.
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Old 01-10-2011, 02:05 PM #2
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Quote:
Originally Posted by SallyC View Post
Don't rush. From what I've been reading lately, Neurontin is overprescribed, habit forming and probably shouldn't be taken for MS, at all.
I agree with SallyC based on my own experience with Neurontin/neuralgia. It did nothing and the withdrawal was fierce.
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2004 to present - Trigeminal Neuralgia
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March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
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SallyC (01-10-2011)
Old 01-10-2011, 06:31 PM #3
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Quote:
Originally Posted by dmplaura View Post
I agree with SallyC based on my own experience with Neurontin/neuralgia. It did nothing and the withdrawal was fierce.
Okay I'm on Neurontin and I hate it! I hate the way it makes me feel (can't even stand to walk because of being so dizzy and light headed). I hate it so much I asked my doctor to take me off of it! I didn't feel it was doing me any good and it causes terrible side effects. I can only take it at night. So my doc said sure you can stop, just go ahead and stop all at once Yeah, I tried to taper off, then I realized it actually was handling the horrible burning pain in my legs. I'm also on Tegretol for Trigeminal Neuralgia and Amitriptyline for a headache that never went away for three years. That is the only thing to help my headaches, they're still there, just not as bad. But the Tegretol and the Amitriptyline do nothing for the burning in my legs. I have backed the dosage of the Neurontin down and I wont let them up it for anything other than if my leg pain worsens now. I get it now that it does nothing for my other pains.

I would love to come off of all these medicines, but being able to function is important and so far I have not found any other way to do that.

So Neurontin does suck, but it does help with at least one pain for me.

If you need medicine and can't tolerate the pain you're in, talk to your doctor. But if the Neurontin doesn't work ask your doctor to find something else for you to try.

I hope you find something that helps!
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Old 01-10-2011, 09:15 PM #4
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Quote:
Originally Posted by nemsmom View Post
I'm also on Tegretol for Trigeminal Neuralgia and Amitriptyline for a headache that never went away for three years. That is the only thing to help my headaches, they're still there, just not as bad.
I'm glad you've found relief with the combination of medications, I too had a headache that never ceased for at least 2 years. I can understand how awful it is to live through that.
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9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
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Old 01-11-2011, 09:03 AM #5
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Well, thanks for all that! Guess I'll listen to my original instincts and not ask for neurontin. I'm already dizzy, don't need to be more so. Never thought to just take tylenol, but I'll give it a try!
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Old 01-11-2011, 01:23 PM #6
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Lyrica also made me sick quickly. I had some when I had Shingles neuropathy for a few
months, but one pill was all I ever took. I went back to Demerol until the neuropathy became better.

Right now I am suffering very bad foot pain and it may be neuropathy (certainly is) brought about by vascular problems due to the thick blood of Polycythemia Vera. It is
worse after I take a shot of Interferon A, so I will have to stop that. Maybe taking the timed released form could be better.

So I am posting just to warn that Lyrica could be as unpleasant as Neurontin for some people, although I see here that some do well with it. I must say it 100 % eliminated the neuropathy! But it made it difficult for me to breathe.
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Old 01-11-2011, 03:47 PM #7
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I am experiencing terrible pain in my legs from increased spasticity due to the cold. Cold or hot, I can't win
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