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04-09-2011, 05:02 PM | #111 | ||
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Sorry I didn't pay closer attention to give you the site I actually thought info would've already been posted here.
Between 25-36 infusions odds are 1.5/1000 Between 37-48 infusions odds are .9/1000 risk is greater if you had been on an immunosuppressant |
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04-10-2011, 09:19 AM | #112 | |||
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Magnate
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Thanks Linda! I hadn't had a chance to post this info yet, I've been doing 12 hour shifts and trying to fix my stupid laptop...
Biogen and Elan were approved for a label change for Tysabri. "The included data shows the risk of getting the infection is 0.3 patients per 1,000 when using the drug for less than two years. That rate rises when using the drug for two to three years, to 1.5 cases, but notably drops to 0.9 cases for the period of three to four years. The data is current as of January and Biogen said the label will be updated as needed." http://online.wsj.com/article/BT-CO-...07-712561.html The article linked to also addresses the test for antibodies and the plan to add it to the label.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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04-18-2011, 07:38 AM | #113 | ||
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Senior Member
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FYI - http://www.bloomberg.com/news/2011-0...ease-risk.html
I hope this report helps clarify more about Tysabri impacts. -Vic |
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04-21-2011, 02:12 PM | #114 | ||
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The AAN - American Academy of Neurology - had their 2011 conference on Tysabri. It states that if you have 3 risk factors, which are being on Ty longer than 2 years, taken an immunosuppressant before Ty and being jc virus positive your odds of pml are 1/100.
I have 2 of those and would like to know what those odds are. I hate that the med I love has a risk factor that worries me Linda |
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04-21-2011, 02:36 PM | #115 | ||
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Junior Member
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Do they consider previous use of short-term SoluMedrol to be immunosuppressive?
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04-21-2011, 04:42 PM | #116 | ||
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Quote:
"In addition, patients treated with an immunosuppressant (IS) prior to receiving TYSABRI have an increased risk of PML; IS use includes agents such as mitoxantrone, azathioprine, methotrexate, cyclophosphamide, mycophenolate and cladribine, rituximab, and chemotherapy (not otherwise specified)." Short term SoluMedrol not listed as IS |
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04-22-2011, 01:05 PM | #117 | ||
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Just found out today that I am JC Virus antibody positive. Like Grammie, I've been on Tysabri for over two years (4 years, 3 months). Guess I'll have to think about it and confer with my Neuro on the options.
Chris |
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04-22-2011, 11:03 PM | #118 | |||
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Magnate
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I had # 51 yesterday. No problems, no concerns, usual infusion day.
Next month will be 4 years for me.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | DizzyLizzy (04-24-2011), Grammie 2 3 (04-23-2011), Natalie8 (04-25-2011), SallyC (04-23-2011), shayna (04-28-2011) |
04-23-2011, 01:10 PM | #119 | ||
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How are you and your DW ? Hope well and doing well !!! On another site I am lindaincolorado Linda |
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04-25-2011, 11:35 AM | #120 | |||
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My doctor just called and I am negative for the JC virus antibody! Yeah!!!!! I get to stay on Tysabri! Thank god and what a relief because I was not looking forward to trying Gilenya.
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On Tysabri and love it. . |
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