advertisement
Reply
 
Thread Tools Display Modes
Old 01-23-2011, 03:42 PM #21
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default

I am new to Tysabri, and should be starting my infusions real soon. My question is....How do I know if I am a part of the stratify II study? Do you sign up or are you asked to join?
daisy.girl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (01-26-2011), Natalie8 (01-25-2011), Riverwild (01-26-2011), shayna (02-20-2011)

advertisement
Old 01-24-2011, 03:21 PM #22
komokazi komokazi is offline
Member
 
Join Date: Dec 2008
Posts: 192
15 yr Member
komokazi komokazi is offline
Member
 
Join Date: Dec 2008
Posts: 192
15 yr Member
Default

Quote:
Originally Posted by daisy.girl View Post
I am new to Tysabri, and should be starting my infusions real soon. My question is....How do I know if I am a part of the stratify II study? Do you sign up or are you asked to join?
If you received a JC Virus antibody test, you are in strafiy II study as the test is only available in the study.
komokazi is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (01-26-2011), Natalie8 (01-25-2011), Riverwild (01-26-2011), shayna (02-20-2011)
Old 01-24-2011, 08:34 PM #23
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default

I just heard from the Tysabri assistance program, and I qualified for a $10.00 co-pay for the Tysabri. But they told me there is a second fee for the infusion site that Biogen does not/can not help with. According to my insurance company that is an additional $40.00 co-pay.

I should begin my infusions real soon now.

Just curious....what do you all pay for your infusions? I am sure I am getting a good deal, however, I am not sure where I will get an extra $50.00 a month from....yes, it is really that tight financially in our home. Still have three kids at home too.
daisy.girl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (01-26-2011), Natalie8 (01-25-2011), Riverwild (01-26-2011), shayna (02-20-2011)
Old 01-25-2011, 06:16 PM #24
Natalie8's Avatar
Natalie8 Natalie8 is offline
Member
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
Member
Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Default

The cost of my medication went up a year ago. Now I pay $125 for the medication plus a $35 co-pay for a doctor's visit to get the infusion. At $160 an infusion I still consider that a steal compared to some other stories I have heard about costs. And I have a major insurance company PPO plan with a company that has thousands of employees.
__________________
On Tysabri and love it.
.
Natalie8 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (01-25-2011), Grammie 2 3 (01-26-2011), Riverwild (01-26-2011), shayna (02-20-2011)
Old 01-26-2011, 01:01 PM #25
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

I'm no help with insurance costs. I have a full service plan from the old days that pays all my hospital costs, and my infusion is done in an oncology center at a local hospital. I have no copay.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (01-26-2011), Natalie8 (02-12-2011), shayna (02-20-2011)
Old 01-26-2011, 01:53 PM #26
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default

I am on Medicare and have a federal plan (husband was a federal firefighter) for my secondary. I do not have a copay- I am very fortunate for the healthcare my husband and I have.
Grammie 2 3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Natalie8 (02-12-2011), Riverwild (01-28-2011), shayna (02-20-2011)
Old 01-26-2011, 08:52 PM #27
clarkstar's Avatar
clarkstar clarkstar is offline
Member
 
Join Date: Aug 2010
Posts: 316
10 yr Member
clarkstar clarkstar is offline
Member
clarkstar's Avatar
 
Join Date: Aug 2010
Posts: 316
10 yr Member
Default

can anyone clue me in to side effects? i had my 1st infusion on Jan 14th and on the 24th i started to feel sick, like a chest cold. if this is from the tysabri will it go away like a regular cold ? i'm also very fatigued. my headaches have stopped though
__________________
Multiple Sclerosis Diagnosed August 2010
clarkstar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Natalie8 (02-12-2011), Riverwild (01-28-2011), shayna (02-20-2011)
Old 01-27-2011, 09:34 AM #28
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

Side effects: I think each body is different. For me, I get a sinus infection and a uti that both hit around the same time, 3-5 days after the infusion. The day of infusion I usually get really tired, and just drained of energy and that lasts about 2 days.

I also have really bad joint pain but I don't know that I can blame that on the ty seeing as I was having that issue long before I stared it. But on the plus side, my last 2 MRIs have shown no new lesions.

Some people feel great with it and can tell when they are getting close to their infusion. Personally, it hasn't happened for me. Good luck though. Glad to hear the headaches are gone. I know that is a relief.
__________________

.
I am not spoiled!
legzzalot is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Natalie8 (02-12-2011), Riverwild (01-28-2011), shayna (02-20-2011)
Old 01-27-2011, 12:37 PM #29
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default

Quote:
Originally Posted by clarkstar View Post
can anyone clue me in to side effects? i had my 1st infusion on Jan 14th and on the 24th i started to feel sick, like a chest cold. if this is from the tysabri will it go away like a regular cold ? i'm also very fatigued. my headaches have stopped though
My husband brought home a nasty cold, that turned into a bronchial infection. I have caught the nasty cold, have treated with a lot of vit C, 2 days took a generic Claritan and Monday started an antibiotic for a different reason, but I bet it's helped the cough/congestion that is almost gone. I do not attribute the cold to Tysabri-maybe or maybe not I caught it because my immune system is lowered ?

I was sooo fatigued one day I almost couldn't move off the chair. I was scared that my ms symptoms has worsened The next day I was much better and today I am back to normal !!!

Glad your headaches have stopped, hope you feel better soon and that Ty works great for you

Linda
Grammie 2 3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
clarkstar (01-28-2011), Natalie8 (02-12-2011), Riverwild (01-28-2011), shayna (02-20-2011)
Old 01-27-2011, 02:57 PM #30
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default

I am scheduled to get my first infusion on Feb 2. We are leaving on vacation on Feb 10th.

I realize that everyones reactions are different, but, if you do get side effects, do they last more than a week?

I am hoping I will feel okay on the day we are to leave.

thanks
daisy.girl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Natalie8 (02-12-2011), Riverwild (01-28-2011), shayna (02-20-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
LDN Information & Check-in 2 SallyC Multiple Sclerosis 827 07-07-2017 09:46 PM
Tysabri Information and Check In part 2 ewizabeth Multiple Sclerosis 745 01-11-2011 09:17 PM
Tysabri Information & Check In Curious Multiple Sclerosis 988 04-16-2009 05:09 PM
LDN Information & Check In SallyC Multiple Sclerosis 844 01-15-2009 11:40 AM
Looking to Share Information & Support catluvr123 New Member Introductions 11 05-07-2008 08:45 AM


All times are GMT -5. The time now is 12:55 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.