Hi Linda, good luck with the doc discussion! I had #44 recently. I hope you can stay on Ty!

Hi Natalie, if I leave Ty it will be my choice-little scary. There was one med that I was interested in that I heard about at a RMmsC seminar about 1 1/2 years ago. Recently one of the Drs at the above told me he could get me on it and that I needed to talk to my doc about switching. I'll let you know !
Linda

HAPPY NEW YEAR
Linda

I had #90 today
I was considering a different med but, when I learned that Ty is the only med (for me) that helps with my sx therefore, my QOL it was a no brainer that I choose to stay on this med that has been so excellent for me
My neuro wants to monitor my jcv #s every 3 months.
Hope all are well/doing well !!

Linda

Holy smokes! I had # 90 yesterday!
Hard to keep track now that I am not counting, I had to sit and count them out on my fingers-LOL!
Still negative, results received last month, but no numbers attached, will have to ask my neuro next time I see him!
Hope everyone is doing well!

RW, congrats on losing count! That means life goes on and MS doesn't rule you.
I'm afraid to stop counting for fear of jinxing myself (knock on wood a million times!). But it is weird to think I've been on this drug now for 5 1/2 years!

Congrats RW
My neuro told me that you aren't given #s when you are negative; just to know that it is below .2
Linda

And I don't mean the yummy kind that comes after dinner with witty (or tipsy) conversation and nice cheese with crackers.

I had infusion # ???? (in my fifth year now) and my veins are going on strike. My beautiful nurses - one of whom has MS, and the other who is a super-gentle and experienced oncology/chemotherapy nurse have suggested I get a port put in after three unsuccessful attempts today to cannulate me (finally got it in on my cubital fossa - which I don't like)

Not sure how I feel about this - in Australia, they don't test the titre level for JC+ - you are just positive or negative (I am +). If I knew my titre level, I would have a better idea of how long I am prepared to risk Ty.

Does anyone else have a port? If so, what was it for, what was your experience, and did it make using Ty better?

Thanks

Hi guys

Does anyone know whether being JC+ is a problem if you are having surgery? I am planning to have a porta-cath inserted, and my Neuro put on the referral to the surgeon that I am on Ty and JC+ - can that make a difference risk wise?????

I don't think so, but I anyone knows something I don't, please share....

#45 today. I'm doing so well I'm practically losing count (knock on wood!).