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Old 12-25-2015, 10:09 AM #1
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SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
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SallyC SallyC is offline
In Remembrance
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Join Date: Sep 2006
Location: SW Ohio
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Default

Quote:
Originally Posted by Riverwild View Post
I haven't switched yet, waiting for my next appointment to talk with the doc. I have mixed feelings about the 8 week schedule. he doesn't seem to be in any hurry to switch me to the extended dosing, I think maybe he just didn't want me having it early anymore, even though I have gone as much as four days early, when I was going to be away for an extended period of time.
Maybe I don't have to give up the reins just yet...
Hi River!

And Hi Nat!
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"Thanks for this!" says:
Natalie8 (01-17-2016), Riverwild (08-05-2016)
Old 01-17-2016, 10:37 AM #2
Grammie 2 3 Grammie 2 3 is offline
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Default Older person med study

I met with my neuro Thurs. He is starting a study for older msers to see how they do without meds. He believes meds are not necessary as we get older and has now been granted $$ to do the study. He knows I believe if it ain't broke don't fix it and therefore, do not choose to give up Tysabri. He is my ms partner therefore, fine with my decision. By the way I turned 67 in Dec.

I have been getting infused less often; first every 6 weeks, after a few months went to every 8 weeks. I have been doing this for approx a year and thank G-d am doing well. There have been NO pml cases for those who have stretched out their infusions

Happy New Year!
Linda
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