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01-12-2011, 09:17 PM | #1 | |||
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Shayna, that's awesome!!! I am so happy for you!!
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On Tysabri and love it. . |
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"Thanks for this!" says: | Riverwild (01-15-2011) |
01-13-2011, 10:16 AM | #2 | ||
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Congrats Shayna! Finally received my Stratify 2 paperwork last week. Hope to get tested soon (and get results relatively quickly) as I'm now over 4 years on Tysabri.
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01-13-2011, 02:33 PM | #3 | ||
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It's amazing to realize that some people have been on Ty for 4 or 5 years. You're an inspiration to all of us hugs, Shayna |
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01-14-2011, 10:00 PM | #4 | |||
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1st infusion in the bag, no problems to report
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Multiple Sclerosis Diagnosed August 2010 |
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01-15-2011, 10:02 AM | #5 | |||
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Magnate
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Shayna, glad to hear that you finally received your results and that you tested negative!
Linda, I cannot imagine what is taking so long! I had my results back in less than 4 weeks! Let us know when you get your results! Chris, I can't believe that you still haven't been tested! It blows my mind that some people have to go through so much to get this test! I would think it would be in the pharmas' best interest to get the long term users tested ASAP. Clark, so happy to hear that you had your first infusion and that the process went smoothly!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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01-15-2011, 02:24 PM | #6 | ||
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Quote:
Yesterday I had #52 |
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01-18-2011, 01:10 PM | #7 | |||
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Magnate
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I know you'll remain vigilant. You're still a trailblazer! We don't know that having a positive or negative response makes any difference. We don't know how or when we are exposed to the JC virus. Someone could test negative now and be exposed and test positive six months from now. There may be other factors that make a person develop PML. I hear that old TV broadcast in my head sometimes. "This is a test of the emergency broadcast system. This is only a test." I get the stern warning at every appointment and know to report any changes in thinking, affect, vision, right or left sided weakness, etc. despite having a negative test result.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | azoyizes (01-21-2011), Grammie 2 3 (01-18-2011), Natalie8 (01-18-2011), SallyC (01-18-2011), shayna (02-20-2011) |
02-20-2011, 01:17 PM | #8 | ||
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Junior Member
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love and hugs, Shayna |
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01-13-2011, 02:28 PM | #9 | ||
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Junior Member
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Thanks Natalie. It was such a relief to finally receive the results and learn that they were negative. Now I can just continue with my wonderful Ty and not receive pressure from family members to take a break. I'm really looking forward to #41
hugs, Shayna |
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