Shayna, glad to hear that you finally received your results and that you tested negative!

Linda, I cannot imagine what is taking so long! I had my results back in less than 4 weeks! Let us know when you get your results!

Chris, I can't believe that you still haven't been tested! It blows my mind that some people have to go through so much to get this test! I would think it would be in the pharmas' best interest to get the long term users tested ASAP.

Clark, so happy to hear that you had your first infusion and that the process went smoothly!

I found out yesterday that I was positive as I said, I will not stop Tysabri. It would have given me peace of mind to be negative but I still feel the blessings of Tysabri for me out weigh the odds of pml... my neuro agrees.
Yesterday I had #52

I know you'll remain vigilant. You're still a trailblazer!

We don't know that having a positive or negative response makes any difference. We don't know how or when we are exposed to the JC virus. Someone could test negative now and be exposed and test positive six months from now. There may be other factors that make a person develop PML.

I hear that old TV broadcast in my head sometimes. "This is a test of the emergency broadcast system. This is only a test."

I get the stern warning at every appointment and know to report any changes in thinking, affect, vision, right or left sided weakness, etc. despite having a negative test result.

I had my 18th Ty infusion last week, and things are going pretty good.

I'm so glad I read the last of your posts, because no one mentioned testing for PML to me. My neuro only mentioned a six month break after two years, but I'm going to refuse. I don't want to backslide. I would rather take my chances.

The only good news I got last week... Ty is keeping the lesions at the same count. And My JC Virus testing was neg!
There was an issue with my last infusion (surprisingly not a blown vein this time.) but the medication was sent up a tube and not walked up from pharmacy.... 4 hours later they finally made me a new batch..... it was a royal pain. Took all day. That was Monday. Now here we are saturday, and I am still fighting the sinus infection. Getting better though.

The good news is GOOD NEWS
The medication mix-up doesn't sound like fun-extra four hours
Get well soon
Linda

I am new to Tysabri, and should be starting my infusions real soon. My question is....How do I know if I am a part of the stratify II study? Do you sign up or are you asked to join?

DARN!!!!!!!!!!!!!!!!!!!!!!! I was really hoping you would be negative. But, you're right, Grammie, the plus side of the infusions makes it all worth while. You're such a inspiration to all of us.

love and hugs,
Shayna