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01-25-2011, 06:16 PM | #1 | |||
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The cost of my medication went up a year ago. Now I pay $125 for the medication plus a $35 co-pay for a doctor's visit to get the infusion. At $160 an infusion I still consider that a steal compared to some other stories I have heard about costs. And I have a major insurance company PPO plan with a company that has thousands of employees.
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On Tysabri and love it. . |
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01-26-2011, 01:01 PM | #2 | |||
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Magnate
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I'm no help with insurance costs. I have a full service plan from the old days that pays all my hospital costs, and my infusion is done in an oncology center at a local hospital. I have no copay.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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01-26-2011, 01:53 PM | #3 | ||
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I am on Medicare and have a federal plan (husband was a federal firefighter) for my secondary. I do not have a copay- I am very fortunate for the healthcare my husband and I have.
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01-26-2011, 08:52 PM | #4 | |||
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can anyone clue me in to side effects? i had my 1st infusion on Jan 14th and on the 24th i started to feel sick, like a chest cold. if this is from the tysabri will it go away like a regular cold ? i'm also very fatigued. my headaches have stopped though
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Multiple Sclerosis Diagnosed August 2010 |
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01-27-2011, 09:34 AM | #5 | |||
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Magnate
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Side effects: I think each body is different. For me, I get a sinus infection and a uti that both hit around the same time, 3-5 days after the infusion. The day of infusion I usually get really tired, and just drained of energy and that lasts about 2 days.
I also have really bad joint pain but I don't know that I can blame that on the ty seeing as I was having that issue long before I stared it. But on the plus side, my last 2 MRIs have shown no new lesions. Some people feel great with it and can tell when they are getting close to their infusion. Personally, it hasn't happened for me. Good luck though. Glad to hear the headaches are gone. I know that is a relief.
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. I am not spoiled! |
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01-27-2011, 12:37 PM | #6 | ||
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I was sooo fatigued one day I almost couldn't move off the chair. I was scared that my ms symptoms has worsened The next day I was much better and today I am back to normal !!! Glad your headaches have stopped, hope you feel better soon and that Ty works great for you Linda |
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01-27-2011, 02:57 PM | #7 | ||
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I am scheduled to get my first infusion on Feb 2. We are leaving on vacation on Feb 10th.
I realize that everyones reactions are different, but, if you do get side effects, do they last more than a week? I am hoping I will feel okay on the day we are to leave. thanks |
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01-28-2011, 07:37 AM | #8 | |||
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Magnate
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For me, the side effects when I started Tysabri were minimal. I had a sore throat after three or four infusions, it appeared that the parts of my tonsils that grew back after a tonsillectomy many many years ago were inflamed. It was mild, more irritating than anything else, and stopped after a few infusions.
I literally haven't been sick with the usual maladies at all since I started; no colds, no stomach bugs, nothing. I had an appendectomy, I had salmonella from something I ate, and I had a UTI for the first time ever. This is since 2007. I haven't called in sick to my job since 2007, was out on medical leave for the appy, was on vacation when I got the salmonella and went to work when I had the UTI. I was nervous when I started, wondering what ailments I would get as a result of using Tysabri. I calmed down after 6 infusions and now it's just another day. I don't know if I am just lucky or that the revved up immune system that goes with MS is working, but for me, it's a normal life since I started. I had #48 yesterday. No problems, no concerns, in and out as usual. I met with my neuro afterwards. He told me I am disgustingly healthy and told me to get lost. It was 15 minutes, in and out of the appointment.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | clarkstar (01-28-2011), daisy.girl (02-07-2011), Grammie 2 3 (01-29-2011), Natalie8 (02-12-2011), shayna (02-20-2011) |
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