FAQ/Help |
Calendar |
Search |
Today's Posts |
|
01-31-2011, 06:39 PM | #1 | ||
|
|||
Member
|
1st Infusion scheduled for this Wednesday at 11:00AM.
I am a bit nervous. I have a friend that will drive me for this first one. My infusion site is about an hour away. So thought it best to have someone with me. |
||
Reply With Quote |
"Thanks for this!" says: | clarkstar (02-01-2011), Grammie 2 3 (02-01-2011), Natalie8 (02-12-2011), Riverwild (01-31-2011), shayna (02-20-2011) |
01-31-2011, 08:29 PM | #2 | |||
|
||||
Magnate
|
Good Luck! Please let us know how it goes for you.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
Reply With Quote |
"Thanks for this!" says: |
02-02-2011, 04:16 PM | #3 | ||
|
|||
Member
|
|
||
Reply With Quote |
"Thanks for this!" says: |
02-02-2011, 10:32 PM | #4 | ||
|
|||
Member
|
The office rescheduled me to Friday. Now I have a sore throat, and the nurse told me to call tomorrow to let them know how I feel. I feel fine, other then my throat is sore. Is that reason enough for them not to do my first infusion??
|
||
Reply With Quote |
02-03-2011, 02:15 PM | #5 | ||
|
|||
Member
|
I don't think so, but I'm not a Doctor. The big factor to watch for is a fever which is a sign of an active infection.
|
||
Reply With Quote |
"Thanks for this!" says: |
02-03-2011, 02:46 PM | #6 | ||
|
|||
Member
|
woke with a low grade fever this morning....neuro wants me to reschedule!! I am frustrated, because I am a little nervous and have been preparing myself for this....and now I have to wait again!!
at the end of next week we are going out of town for 10 days.....so don't know if I should schedule it for early in the week or just wait until we get back into town?? |
||
Reply With Quote |
02-06-2011, 12:14 PM | #7 | |||
|
||||
Magnate
|
I'd follow my doctor's advice.
It may be that you will feel better waiting until you get home from your trip. You seem to be very nervous and being in a comfortable place for any unexpected adverse effects is a good thing. I know others have had aftereffects, but for me, it's just a normal day when I have my infusion, and always has been. Other than a slight sore throat for a few infusions, I had no problems. It's normal to be nervous before the first one, but the infusion team will be watching you and know what to do now, unlike when the first infusion centers opened and had no idea what to expect from this new drug. Let us know how it goes.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
Reply With Quote |
"Thanks for this!" says: |
02-07-2011, 08:47 PM | #8 | |||
|
||||
Member
|
Daisy, I would get infused then push a mile in my wheelchair or swim 15 laps. It's nothing.
I set appt to see neuro wednesday because I forgot what nightly Copaxone inj were like and Ty's painless. I'd love to do Ty one month, Copaxone the next, rinse repeat and i'll ask but good luck. I KNOW a little of both would help me but it's not allowed. That or i'll stick with Copaxone for 3 months and go for Novantrone next week. I didn't know you had to take C while on Novantrone. That combo worked wonders on a lady at MS group. She's still in remission 4 yrs later after the 2yrs of N but she takes C every night. |
|||
Reply With Quote |
"Thanks for this!" says: | daisy.girl (02-07-2011), Grammie 2 3 (02-10-2011), Natalie8 (02-12-2011), Riverwild (02-08-2011), shayna (02-20-2011) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
LDN Information & Check-in 2 | Multiple Sclerosis | |||
Tysabri Information and Check In part 2 | Multiple Sclerosis | |||
Tysabri Information & Check In | Multiple Sclerosis | |||
LDN Information & Check In | Multiple Sclerosis | |||
Looking to Share Information & Support | New Member Introductions |