FAQ/Help |
Calendar |
Search |
Today's Posts |
|
02-02-2011, 10:32 PM | #1 | ||
|
|||
Member
|
The office rescheduled me to Friday. Now I have a sore throat, and the nurse told me to call tomorrow to let them know how I feel. I feel fine, other then my throat is sore. Is that reason enough for them not to do my first infusion??
|
||
Reply With Quote |
02-03-2011, 02:15 PM | #2 | ||
|
|||
Member
|
I don't think so, but I'm not a Doctor. The big factor to watch for is a fever which is a sign of an active infection.
|
||
Reply With Quote |
"Thanks for this!" says: |
02-03-2011, 02:46 PM | #3 | ||
|
|||
Member
|
woke with a low grade fever this morning....neuro wants me to reschedule!! I am frustrated, because I am a little nervous and have been preparing myself for this....and now I have to wait again!!
at the end of next week we are going out of town for 10 days.....so don't know if I should schedule it for early in the week or just wait until we get back into town?? |
||
Reply With Quote |
02-06-2011, 12:14 PM | #4 | |||
|
||||
Magnate
|
I'd follow my doctor's advice.
It may be that you will feel better waiting until you get home from your trip. You seem to be very nervous and being in a comfortable place for any unexpected adverse effects is a good thing. I know others have had aftereffects, but for me, it's just a normal day when I have my infusion, and always has been. Other than a slight sore throat for a few infusions, I had no problems. It's normal to be nervous before the first one, but the infusion team will be watching you and know what to do now, unlike when the first infusion centers opened and had no idea what to expect from this new drug. Let us know how it goes.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
Reply With Quote |
"Thanks for this!" says: |
02-07-2011, 08:47 PM | #5 | |||
|
||||
Member
|
Daisy, I would get infused then push a mile in my wheelchair or swim 15 laps. It's nothing.
I set appt to see neuro wednesday because I forgot what nightly Copaxone inj were like and Ty's painless. I'd love to do Ty one month, Copaxone the next, rinse repeat and i'll ask but good luck. I KNOW a little of both would help me but it's not allowed. That or i'll stick with Copaxone for 3 months and go for Novantrone next week. I didn't know you had to take C while on Novantrone. That combo worked wonders on a lady at MS group. She's still in remission 4 yrs later after the 2yrs of N but she takes C every night. |
|||
Reply With Quote |
"Thanks for this!" says: | daisy.girl (02-07-2011), Grammie 2 3 (02-10-2011), Natalie8 (02-12-2011), Riverwild (02-08-2011), shayna (02-20-2011) |
02-07-2011, 09:41 PM | #6 | ||
|
|||
Member
|
I had my first infusion this morning. It took four sticks to get a vein, and I ended up having the infusion through a small (butterfly) needle! Other than that, It went okay.....I am just tired and have a headache tonight.
|
||
Reply With Quote |
02-08-2011, 10:34 AM | #7 | ||
|
|||
New Member
|
I just stumbled upon this site and I'm so glad I did! This is great info, thanks so much to all for sharing!
I have had 2 infusions (and the JC test (neg) didn't know that put me in a long term study) and so far so good. I got wiped out (fatigue) for 2 days after the first one, 1 day after the second. I definitely have more pep and the first month felt like my walking was better (more leg strength) but now that's not the case, as I seem to overdo it everyday due to not being as fatigued (work ft and have a 4 yo, husb travels sometimes). The infusion itself is easy and I find it MUCH more comfortable and easier than steroid infusions. (no bad taste and no drastic effects on my body, plus I swear it just "feels" like a smoother solution somehow). While I'm a fan of C over the others, I definitely like not having to inject every day (needle-phobe). Biogen sent me a fleece blanket and I was like "whatever" (charge less for the meds and lower your marketing budget!) but I do get soooo cold during the infusion and for the rest of that day, so I brought it to the second one and it did help me stay warmer. Keep in mind, tho, I'm in MN and we are having a very cold winter....that doesn't help! I do have a question, and that is, I wonder if anyone else experiences, or knows someone who does, eczema or skin rashes from the med? I'm not talking about an allergic reaction (called my neuro and confirmed that). About day 3-5 after and for the next week to two weeks, I have terrible difficulty with skin rashes, like eczema, widespread on several parts of my body. I've had sensitive skin, but not experienced this before Ty. It gets worse with certain foods. It's the weirdest thing, like the immune suppression brought out a food sensitivity or something? I know the side-effects include yeast infections - I took that for the more familiar kind you think of when you hear that, not a more generalized GI-skin thing, but I'm wondering. Is it just me? |
||
Reply With Quote |
"Thanks for this!" says: |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
LDN Information & Check-in 2 | Multiple Sclerosis | |||
Tysabri Information and Check In part 2 | Multiple Sclerosis | |||
Tysabri Information & Check In | Multiple Sclerosis | |||
LDN Information & Check In | Multiple Sclerosis | |||
Looking to Share Information & Support | New Member Introductions |