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03-25-2011, 11:40 AM | #1 | |||
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In Remembrance
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River, you are going to keep getting tested, right?
Congrats on 4 good yrs on TY.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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03-25-2011, 12:30 PM | #2 | |||
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hey river, are you still on every 4 weeks? many i speak with at my infusion center are cutting back to 6 and 8 week intervals after a couple years
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Multiple Sclerosis Diagnosed August 2010 |
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03-29-2011, 06:48 AM | #3 | ||
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New Member
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Hello All. I am new here and I am looking for all you fellow Tysabri users. I live in Germany (husband was transferred for work 20 months ago) so I am looking for some English support. Do not know many people that have been on Tysabri as long as I have. I love it, no reactions, and I have been stable for over 4 years.
yesteray was #54 and it took 6 times to find a vein. It freaked me out. I already have a hard time when I have to go to the hospital to test for blood. They always have to go to a few veins to get more than one vial to test from me. My doctor here said I should start looking into Fingolimod the oral medication since I am having issues. So again stressing me out! Change medicine in another country. The doctor that I go to only does the vein in the arms, no the hand. On the 6th attempt they sent me to a different practice to have the doctor put the needle in my hand and then I walked back to my doctors office and had my medicine. How long can we safely stay on Tysabri? So many questions!!! Thanks!! |
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03-29-2011, 07:06 AM | #4 | ||
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I got a call from my neuro yesterday.
I tested positive for the JC Virus. Also, my neuro monitors CD4 T-cell level on all his Tysabri patients. My baseline was high....over 2000 (range 490-1700). Anyone else have their CD4 cells monitored?? Here is a report by Elsevier about Neuroinflammation in MS: "Autoantibodies and autoreactive T cells against these myelin antigens have been detected in MS patients." It said there was a type of CD4 T-helper cell that react against myelin. What I read, is that there are some studies being done to correlate these CD4 cells to MS and other auto-immune disorders. Source: http://www.direct-ms.org/pdf/Immunol...%2003%2006.pdf
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Dx: RRMS Jan 2010; LDN: March 2010-Dec 2010; Aug 2012-Nov 2012 Tysabri: Feb 2011-March 2011 reaction Gilenya: August 2011 reaction Copaxone: October 2011 reaction Tecfidera: May 2013 reaction |
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03-29-2011, 10:31 AM | #5 | |||
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In Remembrance
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So sorry Daisygirl.. I know what I'd do..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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