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Old 03-25-2011, 11:40 AM #1
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River, you are going to keep getting tested, right?

Congrats on 4 good yrs on TY.
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Old 03-25-2011, 12:30 PM #2
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Quote:
Originally Posted by SallyC View Post
River, you are going to keep getting tested, right?

Congrats on 4 good yrs on TY.
hey river, are you still on every 4 weeks? many i speak with at my infusion center are cutting back to 6 and 8 week intervals after a couple years
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Old 03-29-2011, 06:48 AM #3
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Default Tysabri #54

Hello All. I am new here and I am looking for all you fellow Tysabri users. I live in Germany (husband was transferred for work 20 months ago) so I am looking for some English support. Do not know many people that have been on Tysabri as long as I have. I love it, no reactions, and I have been stable for over 4 years.
yesteray was #54 and it took 6 times to find a vein. It freaked me out. I already have a hard time when I have to go to the hospital to test for blood. They always have to go to a few veins to get more than one vial to test from me.
My doctor here said I should start looking into Fingolimod the oral medication since I am having issues. So again stressing me out! Change medicine in another country.
The doctor that I go to only does the vein in the arms, no the hand. On the 6th attempt they sent me to a different practice to have the doctor put the needle in my hand and then I walked back to my doctors office and had my medicine.
How long can we safely stay on Tysabri? So many questions!!!
Thanks!!
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Old 03-29-2011, 07:06 AM #4
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I got a call from my neuro yesterday.

I tested positive for the JC Virus.

Also, my neuro monitors CD4 T-cell level on all his Tysabri patients. My baseline was high....over 2000 (range 490-1700).

Anyone else have their CD4 cells monitored??

Here is a report by Elsevier about Neuroinflammation in MS: "Autoantibodies and autoreactive T cells against these myelin antigens have been detected in MS patients."

It said there was a type of CD4 T-helper cell that react against myelin.

What I read, is that there are some studies being done to correlate these CD4 cells to MS and other auto-immune disorders.

Source: http://www.direct-ms.org/pdf/Immunol...%2003%2006.pdf
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Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
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Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
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Old 03-29-2011, 10:31 AM #5
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So sorry Daisygirl.. I know what I'd do..
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