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Tysabri Check In, Support and Information Part Three

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Old 07-20-2012, 09:30 AM #261
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Had first infusion, no pain or scarring. Got free drug, don't know how much will cost for clinic visit. So far better than injections. Fatigue level about same afterwards but hot weather could be factor.
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Old 07-26-2012, 04:06 AM #262
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Originally Posted by Grammie 2 3 View Post
Hi all !
Thurs was #70-no headache this time I am this VERY HAPPY CAMPER
A ms neuro at Georgetown U did a trial on getting infused 8 weeks not 4. He said everyone on Ty after 2 years should go to 8 wks whether jcv+ or -. I am going to check with my neuro in Aug-he's already told me every 4 but, now this new info ...I'll see what he says now ??
Linda
I thought about going to an 8 wk. schedule back when my insurance changed, but I am afraid of breakthrough relapses!
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diagnosed 09/03/2004
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Old 07-28-2012, 06:48 PM #263
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I just had #35. Still plugging along. Nothing new to report!

I'm still on the every 8 weeks plan....have been now for a couple of years.
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Old 07-31-2012, 03:50 PM #264
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Is it half the price, Nat?
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Old 07-31-2012, 07:06 PM #265
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Is it half the price, Nat?
Oh Sally, I wish it was half the price! My doctor no longer does it in the office where it used to be a $35 copay....now I have to go to a clinic which costs WAY more. But paying the lump sum every 8 weeks rather than 4 weeks is still better!
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Old 08-03-2012, 08:11 AM #266
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Hi everyone

At my last infusion, when they inserted the cannula, I am sure she must have hit a nerve. It felt like fireworks going off from my fingertips to my elbow. It was a party in my arm that I didn't want to go to.

Has anyone else had this? My blood pressure crashed, and I had tingles for ages.

Cheers

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Old 08-03-2012, 09:37 AM #267
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Sheesh Lyn, scary...darn sleepy nurses!!
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Old 08-10-2012, 11:29 AM #268
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Lynn, so sorry this happened I'm thankful I've not had anything like this happen!
Linda
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Old 08-10-2012, 11:35 AM #269
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I met with my neuro Wed and asked about going 8 weeks instead of 4. Nope he wants me at 4, says best efficacy. Since, he's with the RMmsC, knows more than me I'll do as he says

I had #71 yesterday New nurse, got into vein 1st attempt but, bent needle, drip had an issue-she fixed it-drip took an extra 10-15 min. I was frustrated
Got r done
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Old 08-10-2012, 06:53 PM #270
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Your Neuro must own stock in the company, Grammy..
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