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Quote:

Originally Posted by Dejibo (Post 736020)

MS is like fingerprints. its individual. While some may look the same, no one else can have "your" MS experience. While some are peppered with lesions and no sx, others have very few lesions and are peppered with sx.

Try not to let the facts get in the way of reality. ;)

So true. My MS is not the same as your MS. I wish people without MS could understand that. I wish my Neuro could understand that! :rolleyes: It's not a cookie-cutter disease. I tend to look at "facts" with a grain of salt. What really matters is how MS effects you....and only you.

Lesions are a result of the MS. not the other way around. I think! So sometimes the lesions heal, when the MS takes a break, but the MS, eventually, rattles on.:mad:

Quote:

Originally Posted by Harry Z (Post 735653)

I've followed MS research for over 40 years and that list of facts looks quite accurate to me. And since it appears to be obtained from all reported MS cases, I would assume that it includes those patients who have used any of the DMDs.

A couple of personal observations....it takes 8-10 lesions to cause one measurable symptom so the number of lesions one has doesn't seem to be nearly as important as to the location of any one lesion. I would therefore minimize the lesion count measurement that the drug companies give us when trying to demonstrate that their drug is working.

75-85% of RRMS patients go on to develop SPMS. Assuming (and that is a dangerous word in medicine) that DMD users are part of these stats, it sure looks like the DMDs have little effect, if any, in controlling the progression of the disease

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Hi my name is Carol and I have had ms for 12 years First symptom was optic neuritis, then numb feet and went up to my knees, then I couldn't walk more then 20 feet or so before having to stop and wait for the weakness in my lower spine and the tingling to pass and then start all over again. It took my doctors that long to find lesions on my therasic spine (2). I started on avanex for several years I was doing fine after the walking flair up for a year. I then went off of it. I was tired of the flu like symptoms. I was feeling good. Except for my emotions and making wrong decisions but I didn't realize this at the time (years). 3 years ago I started losing my balance and making faces and not realizing it. Wierd right!!! I then started having a strapping feeling in my right thigh after sitting or driving for more than 25 min. The pain then radiated down my leg to my foot, then up my right budocks ( I don't know if I spelt that right.) The burning is terrible, went to doc and had 3 new lesion on my brain. He didn't seem so concerned but I get confused very easily and don't remember things. But to get to the point I went for years without getting any new lesions, is that rare. Any input will be helpful. Sorry it's so long. Carol

It's quite frustrating to see that there are so many detailed stats on a disease that after some 60 years of research, has no known cause or anything close to a cure.

Harry

Hi my name is Carol and I have had ms for 12 years First symptom was optic neuritis, then numb feet and went up to my knees, then I couldn't walk more then 20 feet or so before having to stop and wait for the weakness in my lower spine and the tingling to pass and then start all over again. It took my doctors that long to find lesions on my therasic spine (2). I started on avanex for several years I was doing fine after the walking flair up for a year. I then went off of it. I was tired of the flu like symptoms. I was feeling good. Except for my emotions and making wrong decisions but I didn't realize this at the time (years). 3 years ago I started losing my balance and making faces and not realizing it. Wierd right!!! I then started having a strapping feeling in my right thigh after sitting or driving for more than 25 min. The pain then radiated down my leg to my foot, then up my right budocks ( I don't know if I spelt that right.) The burning is terrible, went to doc and had 3 new lesion on my brain. He didn't seem so concerned but I get confused very easily and don't remember things. But to get to the point I went for years without getting any new lesions, is that rare. Any input will be helpful. Sorry it's so long. Carol

Hi Carol. MS symptoms, although similar to each others', are individual, in how, when and where they strike. There is very little either usual or unusual in it's madness.:confused:

Hang in there and hang with us.:hug:

Nobody like me is in this thread. On my first MRI, they said I didn't have many lesions. Thought "whew" Now I know better. So typical of PPMS. Think I had dizzy some 10 years before my DX. Had my DX, thought this isn't devastating like they said. Year 12 I went from Canadian crutches, walker. In year 9 I was in a power chair. Doctor (Neurologist) and I have an unspoken agreement, we tried, no more MRIs, see you next year, call if you need me. I don't walk, little pain, cognitive pretty OK. We're all different. MS (and life). it'll always surprise you.

Nobody like me is in this thread. On my first MRI, they said I didn't have many lesions. Thought "whew" Now I know better. So typical of PPMS. Think I had dizzy some 10 years before my DX. Had my DX, thought this isn't devastating like they said. Year 2007 to 2009 I went from Canadian crutches to walker. In mid-2009 I was in a power chair. Doctor (Neurologist) and I have an unspoken agreement, we tried, no more MRIs, see you next year, call if you need me. I don't walk, little pain, no numbness, never ON, cognitive pretty OK. We're all different. MS (and life). it'll always surprise you.