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Old 02-01-2011, 01:28 PM #1
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Knowing that everyone with MS has a different level of physical (motor and sensory) disability and cognitive too, I see too that everyone has a different level of psychological ability to contend with and manage the disease. I know people with severe physical disability but their ability to deal with it is beyond measure. (here too!)

My worst possible disability would be to lose my ability to deal with the MS.
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Old 02-01-2011, 01:53 PM #2
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Mine is losing the ability to drive, I am completely dependent on someone else, I live in the country and the county does"t come out this far. I would give up anything to be able to drive again. I think I could deal with anything else.
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Old 02-01-2011, 02:43 PM #3
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I am one of those who have learned to deal. It took time though.. I am almost prettineer, beginning to commence to be content with this dispickible disease and even happy.. And yes, the inability to drive is the nail in the coffin, so to speak.
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Old 02-01-2011, 04:48 PM #4
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I don't even think of what might come...only deal with what is. I don't have it very bad, except for pain. I have to drive as long as possible, since I am the chauffeur to my inlaws.
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Old 02-01-2011, 05:21 PM #5
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Quote:
Originally Posted by Debbie D View Post
I don't even think of what might come...only deal with what is.
Me, too. I can deal with the here and now. Worrying about what might happen just stresses me out.
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Old 02-02-2011, 12:02 AM #6
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Although I never thought I wold enjoy not working I would enjoy just one day of going back to work, have an adrenalin rush of a code blue, a cardiac catheterization gone bad, teaching a new RN student or nurses aide just one more time. Nursing defined me, I think God knew it
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Old 02-03-2011, 02:01 PM #7
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I could deal with physical disabilities, I think. Including the inability to drive.

For me, the hardest would be the cognitive disabilities, if they affected my functioning in a big way. AND, based on my a-typical history during flares, if the mental health issues ever began to become a residual symptom, instead of one that only occurs during MS flares, that would be THE WORST!

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Old 02-04-2011, 12:33 AM #8
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I can't say what would be the worst in the future, but in the past I think that the effect my illness had on loved ones and colleagues was the worst part of disability. I spent a long time without a dx, and came under considerable suspicion because of that. Seeing people doubt you are "real" is hard, but of course that taught me what I could really rely on. It
was a great growth event in my life, over many years. Because of what happened to me, I tend to be compassionate toward ALL people, for no one knows what they are really going through or why they are as they are. I believe there is only a small sliver of
our lives which we have real control over, to change or direct, and the rest of it is all
"given". But that small sliver of something we can change or direct is the essence of our soul.
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Old 02-04-2011, 11:56 AM #9
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Well said Mariel, thank you..
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Old 02-04-2011, 04:11 PM #10
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At this very moment, the worst possible disability for me is not being able to walk very well.

This week has been all downhill. I can barely stand up from a seated position, and whatever is going on (I have spasticity around my midsection and my waist, and numbness from about the ribs on down) I feel like crap. (not hungry, when I do eat, I feel sick afterwards) I walked out into the family room a bit ago to talk to my dad, and it took a LOT of energy. Starting to consider hijacking one of my mom's various rollators.

I called my neuro this morning and he suggested another neuro. (he said he doesnt know what to do for me) So, I called and am having my files sent to one of the neuro's that my current neuro suggested.

I'm starting to think any disability from MS is the worst possible.
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