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Old 02-25-2011, 06:05 AM #1
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Default A new study on Chronic Fatigue Syndrome

http://www.cbsnews.com/video/watch/?id=7357544n

I wonder if any running the study would think of comparing the proteins to results of spinal fluid in MS to see if there is a link to the fatigue symptoms?

Just my humble opinion that sometimes they can`t see the forest for the trees?
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Old 02-25-2011, 07:44 AM #2
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Sleeper,
Interesting theory but I fear the study is something like "Does Chronic Fatigue make people tired?" 8-D

Seriiously, do you have a medical or scientific background. I've noticed this about you before.
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Old 02-25-2011, 08:23 AM #3
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No, actually I was a truck driver, a semi-intelligent one? I can actually read, write, and think freely? Some things make me think...hmmm?

I had to diagnose myself, because doctors didn`t seem to follow a logical train of thought. Then find a specialist that would do the proper testing to confirm it. One of my early varied diagnosis`s was Chronic Fatigue Syndrome, so sort of a vested interest?

Just to me? if something is found to explain the fatigue in one illness? How can it hurt to check and see if there is a relationship? They already do lumbar punctures on people with MS, do another test of the blood while you have a sample available?
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Old 02-25-2011, 09:06 AM #4
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Quote:
Originally Posted by TheSleeper View Post
They already do lumbar punctures on people with MS, do another test of the blood while you have a sample available?
It makes alot of sense.......but unfortunately doctors don't always follow the "common sense" approach. It makes me mad that I have to suggest such obvious things to them. What am I paying them for???
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Old 02-25-2011, 10:01 AM #5
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Agreed Kitty, after looking at the differential diagnosis PPMS was the only thing that made sense to me, I couldn`t get any of them to listen until after I told my second neuro I wanted to see a real doctor.
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Old 02-25-2011, 10:17 AM #6
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I had no question after reading some that I was PPMS. To give my doctor credit, Doctors usually will not DX PPMS as Insurance companies will not pay for meds. not proven to work on PPMSers or on anecdotal histories. After I failed to respond to Rebif, my doctor wrote down officially PPMS. We both knew it. He went on to become head of the MS center at Johns Hopkins. I'm proud of him. My new doctor is young, but is a great listener. We don't agree on everything but are respectful to each other. (well, I did kind of yell at him in an e-mail but we never talk about it. Jeez, I could be his mother)
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Old 02-25-2011, 10:29 AM #7
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The doc that finally agreed on my dx was the number one or two man at the Cleveland Clinic`s Mellen MS center.
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