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03-22-2011, 01:24 PM
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#11 | |||
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Wisest Elder Ever
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Quote:
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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| "Thanks for this!" says: | SallyC (03-22-2011) |
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03-22-2011, 01:35 PM
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#12 | |||
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In Remembrance
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Quote:
 
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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03-22-2011, 08:53 PM
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#13 | |||
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Elder
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There are many folks who cannot tolerate the other meds. If it worked well for me I would feel like they do.
It is risky but if it works and your QOL is at stake, I can completely understand those who choose to stay on Tysabri.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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03-22-2011, 08:58 PM
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#14 | |||
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Magnate
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To put this in perspective:
http://www.nsc.org/NSC%20Picture%20L...y_Facts_37.pdf Cancer:1 in 7 Stroke:1 in 28 MVA: 1 in 88 Intentional self harm:1 in 112 Accidental poisoning by exposure to noxious substances:1 in 130 Falls:1 in 171 Car occupant:1 in 303 Assault by fiearm:1 in 306 Pedestrian:1 in 549 Motorcycle rider:1 in 770... and my favorite: 1 in 1 from any cause Now you can say that the population as a whole is the control number but if you take care of yourself, make sure you are screened for the various diseases, don't walk against the light at crossings, etc, that you cut your risk. For me, it's the same with Tysabri. It's perceived risk and when you do what you are supposed to do, and pay attention and report any signs or symptoms that you have, your odds of dying decrease. I'm a firm believer in the right to choose, whether it's my healthcare, my president, my lifestyle or my financial style. I don't expect to be rescued when I run whitewater, I learned how to do that myself and if I die that way, it's my choice to participate in that risk and I have decided to die laughing, because for sure, one day I am going to die, regardless of how I go. 
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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03-22-2011, 09:05 PM
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#15 | |||
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In Remembrance
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Spoken like a true daredevil, EvilRiver..
 
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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03-23-2011, 06:08 PM
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#16 | |||
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Member
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As long it's not me & if so, oh well. Hey infusions every 28 days beats the heck outta daily shots.
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