Hey BBS - How are you doing? I am not on T but going off A finally.
Did you ever resume taking anything after A?

Tina

Tina, Hi and welcome home. Nice to see you again. Long time.

Glad to see you too BBS, but I saw you recently at PT.

Hi SallyC, fellow PTer, and great to see you again September.

Nope, I am going bare: the only treatments I do are Swank and Swim. No abcr drugs for me. I should say I take daily Valtrex to suppress Herpes, but I think research shows Valtrex does not control MS.

I am so done with Biogen. They refuse to take responsiblity for what happened to my lungs. What I think that really means is that they think they could protect themselves if I were to sue them, so there is no need to compensate me for my lost wages, which is all I wanted.

You know, initially their stance was they were not to blame.

Then, Tysabri caused the 3 deaths and suddenly out of the blue I hear from Biogen's attorney and that they are looking into my case again. So, they got all my records, even my lung biopsy slide, and then, two weeks ago, they let me know they take no responsiblity for what happened to me.

There is a special circle in Dante's Inferno for folks like that...

Are you going off of A because of your breathing problems?

Yes..strange thing is that the breathing issues subsided for a while.
New batch..more problems. Doc says go off for 3 months & see if the issues resolve... if so, then I start C.

He asked me about T, I said no way.. the people that died were on A & T.
He said well you would go off A.. I said it would have to be years before I was off A & willing to try T.

Are you still slowly getting better?

I PMd you about me.

I hope that your breathing resolves off of Avonex. Copaxone sounds like a good choice. I"m off of all MS drugs.

I am so cuirous about Tysabri, but I'm not bad enough to try Tysabri. Plus, I dont trust Biogen to be honest about Tysabri side effects. I am so hoping that some of our fellow MSers who are doing poorly will do well on Tysabri though.

I too really look forward to any updates from people on how Tysabri is working for them. I hope it proves to be a really good treatment option for us.

Had my first infusion yesterday. Have had some flu like symptoms, was told that could be expected. No benefit yet, but it's only been a day.. I'll post with updates...

i've been approved but have to wait another 6 weeks (from total 3 months) to get oral cytoxan out of my system.

cant wait. just got thru 3 day ORAL SOLUMEDROL to get over bad flare brought on by stress of travel and mother's death and all that goes with that. happy to say treatment worked and systems back to usual bad but tolerable.

cant wait to get started on Tysabri. have lost too much already. left RRMS years ago. Specialist says i am great candidate....i am excited to get going.

Hi Marcstck, Good for you..wow...I hope you do well.

Keep us up to date with your progress.

Welcome Home and Hugs,