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03-25-2011, 12:50 PM | #21 | |||
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Elder
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with the new blanket the kitties are all happy to lay in bed with me. purrrrr.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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03-28-2011, 05:19 PM | #22 | ||
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SallyC you make me laugh, I am so cold right now, I am wrapped up in long sleeves, sweater, socks and warm houseshoes and drinking hot chocolate, it's 65 and sunny outside.
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04-03-2011, 05:18 PM | #23 | ||
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My daughter Megan was diagnosed with MS LAST August. Her symptoms had started a few months prior but the number of symptoms and their severity was increasing.
She had severe fatigue, some cognitive issues, cold blotchy ( numb at times) legs/ feet, heat intolerance, headaches, vision impairment, electrical shocks down both arms, expressive aphasia that came and left, balance issues, stamina issues, and more. She was diagnosed with CCSVI in Sept 2010 and on the table her body got intensely warm and her numbness left. Over the next hours and days most of her symptoms left, the expressive aphasia took 3 months but has gone too. She no longer has any symptoms, except her pinkies occasionally are numb upon arising and then it abates. They venoplastied her Azygos vein that drains the spine and it had 2 twists called candy wrapper twists, causing her blood to reroute to get back to her heart /lung for fresh oxygen. Causing a delay and hypoperfusion. She also had a partial blockage of her Left internal jugular vein. Both were ballooned, neither was stented. She is now 6 months post venoplasty and still symptom free. Just rescently she had an MRI and her lesions are all smaller. All of her symptoms are gone. Now I am not sure everyone would benefit but I don't know why the neurologists are not wanting to get the clinical trials done on CCSVI angioplasty. This s the best thing that's come along ever. I am an RN that had some cardiovascular knowledge and I knew her risks were low. So many have their numbness and cold limbs improve. Please investigate this as an option and get tested. |
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"Thanks for this!" says: | SallyC (04-03-2011) |
04-04-2011, 07:33 AM | #24 | |||
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Elder
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My last MRI showed NO changes. not one. I refuse to do one every six months as they are traumatic for me. Its also STILL snowing here! its cold in NH. COLD COLD COLD! my body is craving sun! When the weather turned and we got some decent days I was much warmer. I am going to be a better judge when it stops snowing, the ice clears and I can put my coat away. Till then the husband is cold. The cats are cold. The neighbors are cold. brrrrr....get me outta here!
Would love to hear more about the DD (dear daughter)
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | SallyC (04-04-2011) |
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