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03-30-2011, 03:31 PM | #1 | |||
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There is a Gilenya study in Elk Grove, IL starting up soon. My neuro said it was ok if I wanted to try, so I am going to. They are comparing satisfaction levels with DMD's not effectiveness. They give med for 6 months. There is no placebo and it is an open study so you will know which med you are on. I saw the ad in today's Chicago Tribune. It's for RMS. If I get selected, I'll keep you posted.
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05-10-2011, 11:50 PM | #2 | |||
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Quote:
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06-17-2011, 09:07 AM | #3 | |||
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Member
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I got selected for Gilenya. It's only been 2 days but I feel like a ton of bricks have been lifted off my chest. I don't feel the impending dread of taking an injection and I feel like I have a piece of my life back.
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06-17-2011, 10:57 AM | #4 | ||
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Thank you for trying this study. I hope it helps you and all of us!
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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"Thanks for this!" says: | SallyC (06-17-2011) |
06-17-2011, 11:46 AM | #5 | |||
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In Remembrance
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I'm glad it seems to be helping you Please keep us posted, MG..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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06-28-2011, 04:32 PM | #6 | |||
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Member
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It's been a week since I started taking gilenya and so far no side effects. I go get my blood work done on 7/11.
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