I don't think LDN stops working, but it is possible to have a flare and I've heard that the LDN will shorten the flare and leave no permenent MS damage?? I hope this is tru for you.

Thanks, Sally. I'm still taking it. Too chicken to stop!

I'm still mobile and able to do just about anything I was able to do before....it just takes me longer. And that's okay since I'm not in a hurry anyway.

Is it starting to ease up, Kelly? I do hope you start feeling better.

Tricia, sometimes it seems like it is and other times it seems just as bad as it was when it started. I'm hoping it goes away soon. It's more aggravating than anything. Plus, it's so tiring to have to be so aware of every step I take. Know what I mean? It's like you have to be hyper-aware all the time.....and that just wears me out.

I agree, Kelly. It does wear you out to constantly be looking out for obstacles and coordinating your body to do what it is supposed to do. It completely adds to the fatigue and is one of the reasons many of us fatigue so easily. It takes more brain work and effort to accomplish what others do normally. We have to think more about it.

I always mention to those that don't fully understand that I am severely impaired with my right hand (my dominant hand). I still do normal things, but my brain has rewired/repaired things and it takes a lot more brain work for me to accomplish things. Someone looking at me or seeing me do things would never know that I am something like 97% impaired in that hand. Whoops, unless they are watching me do something that requires fine motor skills like picking things up or writing or putting on mascara (which that wand hurts when it hits your eyeball and can make a mess out of your eyelid. haha).

You're in my prayers, Kitty. I hope this 'flare' or whatever is going on, moves on very soon~

I'm so sorry your having a tough time, Kelly . I think it's great that you don't stress out about things. . I'll be thinking about ya

Well, I thought I would post an update as it's been a full three weeks since this annoying sx started.

I'm happy to report that it's almost cleared up! In three weeks my legs and feet have gone from completely numb to almost back to normal. I can feel them and they don't hurt anymore after I've been walking for a while. I haven't taken anything but my LDN. No steroids, no baclofen. I think one night I took Aleve before bed but that had more to do with a headache than with my legs.

I'm walking much better and it no longer feels like I have balloons for feet. My gait is improving daily. I think you're right, Sally. LDN does significantly shorten the flare.

Just thought I'd share some encouraging news!

Sorry that you are having a rough time Kitty. Lately, I have been feeling like I am walking in someone else's legs too - it's not much fun and it is exhausting.

I hope that the numbness and fatigue gets better for you really soon.

Lyn

Yeah!!! I am so glad to hear that you are doing better. That's awesome, Kelly!