NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Hello all (https://www.neurotalk.org/multiple-sclerosis/147976-hello.html)

Quote:

Originally Posted by Dejibo (Post 762566)

My neuro says LDN is "hooey!" and he refuses to prescribe it. he also says CCSVI is a "placebo effect" in the main stream right now, and as folks calm down they will see that it was all a waste of money. This is the local guy that told me "you are too old for ms! why are you really here?"

The big girl hospital has more of an open mind, but isnt interested in giving out LDN nor a script to see a vascular guy.

That's horrible Dejibo! That sort of thing is frustrating to me. I'm sorry you were dismissed too when we know it works for us!

Quote:

Originally Posted by Kitty (Post 762579)

Either one of these might cause you to have to have fewer visits to the Neuro and fewer meds that cause problems of their own. How dare we want to feel better! :rolleyes:

Exactly Kitty. I recently left my old neuro because of things like this. The new one really listened and a loved that but he's not as experienced in MS so I'm not sure if I should go to the referral to UCSD (Which is about 8 hours away) or go back to my old neuro?