[NewsBot]

When international specialists in disorders of the nervous system gathered in Toronto last year for their discipline's largest annual conference, they were confronted one afternoon by two men determined to change the world of neurology with a radical new theory about one of the great mysteries of modern medicine: multiple sclerosis.


Moderator edit: Because some people have had trouble with the original link, I have replaced it with one that my own scanner says is safe.

http://www.jacksnewswatch.com/2011/0...-theory-widen/


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[Dejibo]

I read the whole thing and I applaud their findings. There is a huge movement of folks that will get quite angry and upset if you say a single word against Zamboni, but I want MORE answers! not just videos of folks the day after thier "liberation procedure" I want to know why so many need it redone, I want to know why so many fail, I want to know why Dr. Zamboni's wife wasnt fixed, and why she continues to take her CRAB meds if this is a cure, and why so many neuro's are backing up fast from this saying "stay away!"

Was there this kind of fury over Tysabri? of Copaxone when they came out?

[barb02]

My computer detected some kind of threat when I clicked on the link.

[SallyC]

I don't know if CV causes MS or MS causes CV, but if a proper test reveals that you have closed veins, then a proper Vascular surgeon, opening them up, can't be bad. You are bound to feel better if your veins are open with a proper flow from and to the heart and brain.

The procedure does NOT cure MS, but for many, it has improved their MS symptoms and their quality of life. Sounds like whay raising my endorphines with LDN, does for me!!!

I don't think the angioplasti is dangerous, but placing a stent in your vein, may be.....So I would hold up on the stenting, untill it is perfected for veins. Even if that means doing angio more than once.

[jacksonsmommy]

Am I 100% confident that CCSVI is THE answer for MS? No. I do believe there are environmental factors that come into play as well. Or maybe MS really does cause CCSVI? Chicken and egg anyone?

Did the liberation treatment dramatically improve my quality of life? Yes!

I did stop taking my copaxone a month after my treatment almost a year ago. It was doing zilch for me. I'm not convinced that any of the CRABs really do anything other than line pharmaceutical pocket books. Their risk profile was not acceptable to me. I like my internal organs thank.you.very.much.

I have started taking LDN to try and stop/slow the disease progression. I felt LDN was super low risk and had only upside.

It will be a year on May 31st and I can still honestly say I am very happy I had CCSVI treatment. No, this was not a cure and I'm not going to pretend that it was. It did however dramatically improve my quality of life. That is a hell of a lot more than the drug companies have been able to do for me.

[Koala77]

Originally Posted by barb02

My computer detected some kind of threat when I clicked on the link.

Barb, type the title into your search engine. There are many different sites offering this same article so you should be able to find one that your scanner likes.

[Harry Z]

Originally Posted by SallyC

I don't know if CV causes MS or MS causes CV, but if a proper test reveals that you have closed veins, then a proper Vascular surgeon, opening them up, can't be bad. You are bound to feel better if your veins are open with a proper flow from and to the heart and brain.

The procedure does NOT cure MS, but for many, it has improved their MS symptoms and their quality of life. Sounds like whay raising my endorphines with LDN, does for me!!!

I don't think the angioplasti is dangerous, but placing a stent in your vein, may be.....So I would hold up on the stenting, untill it is perfected for veins. Even if that means doing angio more than once.

Sally,

I certainly have to agree with your comments on this. It's too bad that Zamboni's work caused such a huge passionate reaction in both the pro and con camps of CCSVI. I suspect that if a large research center had published this work, the reaction would have been different. Instead we had people demanding that CCSVI be made available to everyone and others trying to prove it was quack medicine. Certainly a situation that MS patients do not need.

Take care.

Harry

[jeep4wd]

I think the main problem with CCSVI it isn`t a pill...No huge piles of money for all the people we trust to help.No money in cures and just enough new discovery`s to keep donations rolling in...Not with billions at stake...Wonder why this is being stopped as much as posssible at every turn.

[karilann]

I am banking on a scientist or doctor to have such a huge ego that his or her only goal is to be world famous like Salk, Currie, Flemming etc.

There are a lot of competitive independents doing work out there that are not related to the drug companies......I think that is where real progress will be made.

The race to come up with a cure or super treatment is Pulitzer prize worthy and the researchers want that prize! So lets cheer for for the egomaniacs!

[SallyC]

A big HOORAH for all the egomaniac researchers out there.