NeuroTalk Support Groups - vitamin d & MS?

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- - vitamin d & MS? (https://www.neurotalk.org/multiple-sclerosis/149046-vitamin-ms.html)

my vitamin d lvl is 19. or 25. attached, maybe someone can decipher it for me :confused:

and i had been taking the supplements (Rx) for over 2 months. 1 month was 2000/day.

http://i56.tinypic.com/14nzcpw.jpg

also, i have high alt & ast (83 & 76), low potassium (3.3), and i dont see magnesium on there. top it off with some pretty bad foot pain that i'm worried might be gout? only my right foot though and my urea nit lvl is 15. plus its in the metatarsus area? feels swollen and painful

Quote:

Originally Posted by barb02 (Post 767311)

There was an article in the Momentum magazine that I received today on vitamin D. It discusses how there are many different opinions regarding vitamin D and desirable levels and safe dosages. The article acknowledges that after reading it that one is probably going to be more confused than ever and that you should talk to your doctor:rolleyes:

Saw this today too. They can't even decide what a normal level should really be! Yikes! But one thing I got out of it: they all agreed 2000 iu a day is a good bet on the amount anyone should really be taking.

Quote:

Originally Posted by mrsD (Post 767908)

That is D2.... there is only one RX form of D and it is the old plant derived form.

New evidence shows that it does not work well. Up to 87% less well than the OTC active form called D3.

Get your newest results, drop the RX D2, and use instead D3
(many places sell it--NOW brand and Puritan's are very inexpensive)
1000IU for every 10 pts you need to raise. If you are overweight, the fat on your body will take up some of it as well, so you might need to increase that 1000/10 to 1500/10pts or more. It takes about 3 months to show any changes with D supplements. So it is not a quick result.

D2 is not active in humans. It is very old, and back then no one knew that.

D3 is the active form, just like you get from the sun.

damn my memory is so bad. i was at walmart and didnt buy the d3 formula because i thought you guys said i needed D2. :paperbag:

Medicine moves very slowly. I agree it is difficult who to believe.

Go to Grassrootshealth.net and see the list of doctors who support the new research.

Studies show very little risk of toxicity even from massive doses for long periods of time. The body of work that has been done in the past 10 yrs is quite large now.

I agree for MSers to follow the ultra high guidelines target (100) is a bit more worrisome than the recommendations that are more moderate (50-80). So look up the studies for MS recommendations specifically to help you decide. The only toxicity found, and that is anecdotal is elevated calcium and that can be tested for and monitored.

Studies keep rolling in for MS:
http://neurotalk.psychcentral.com/post767924-1.html

I will say both hubby and I feel so much better with D supplements. I used to get alot of sun on vacation and come back home with a deep tan, and feel great and by end of Sept the creeping awfuls would return for me (arthritis pain). Neither one of us has had an upper respiratory infection since increasing from 1000IU daily (which is what we used to take) for just over 2 yrs now.

Get tested, and decide what you will do. But staying really low is not going to be good for anyone, MSer or not.

I personally was skeptical years ago when the D information started rolling in. We started on 1000IU daily, increased to 2,000 next year, then 4000 and finally 5,000 and I still tested at 43! 5,000 seems to be good for both of us tho and we do get sun more than most people.
Now I am taking 10,000 IU one day and 5,000 the next and will get a retest in fall with my annual physical. Doctor wanted me to try and get a bit higher closer to 70.

I don't feel comfortable giving really high dose recommendations yet to people on these boards, esp the ultra high MS recommendations, so being monitored for doses over 5,000 IU daily D3 is still a prudent thing to do. Just remember, do not take high dose calcium products while on the high D. That is where you may get into trouble! The D will facilitate absorption of calcium so you should be okay with food sources.

My Vitamin D tested Feb 2010. The endo wasn't sure about anything other then total but i said check d2 ect. I have to check records to see what dose of d3 i was taking then. I'm double (88) total now. No idea what the rest means. I've never taken d2.

25-OH total 44 ng/ml
25-OH, D3 44ng/ml
25-OH, D2 <4 ng/ml
1,25 (OH) 2, total 56 pg/ml
D3, 1,25 (OH) 2 56 --/ml
D2, 1,25 (OH) 2 <8 --/ml

Quote:

Originally Posted by EddieF (Post 769040)

This lab site explains the two tests:
http://www.labtestsonline.org/unders...in_d/test.html

Where I had mine done, they only do one D...now. Places vary, and reasons for the tests vary.

I also took for a long time 50,000 icu but have not for about a month and just took another one tonight. I have not checked my vit. D levels for about a year.