advertisement
Reply
 
Thread Tools Display Modes
Old 04-24-2011, 03:26 PM #1
volada's Avatar
volada volada is offline
Junior Member
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
volada volada is offline
Junior Member
volada's Avatar
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
Default vitamin d & MS?

haven't been on the forum in a while...too busy w/work & family stuff.

had read a few years ago when i was diagnosed that there could be a vitamin d connection to ms but only just got tested last week and i'm an 8! my neuro said the bloodwork could soon become part of standard testing for ms patients but wanted to let you all know to possibly get tested. my neuro will have me take supplements and go on some prescription but also wanted to see if any of you have experienced a similar issue with vitamin d? also if so how/if it was resolved....

take care m
__________________
1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
volada is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AynaDee (05-03-2011), Dejibo (04-24-2011)

advertisement
Old 04-24-2011, 03:45 PM #2
viseeu's Avatar
viseeu viseeu is offline
Member
 
Join Date: May 2008
Location: Notasulga, Alabama
Posts: 171
15 yr Member
viseeu viseeu is offline
Member
viseeu's Avatar
 
Join Date: May 2008
Location: Notasulga, Alabama
Posts: 171
15 yr Member
Default

I'm sure there is info here somewhere about the vitamin D and MS connection and I heard some time ago it could be a problem; mine dropped way low at one time a few years ago so I just take a good D3 supplement now and my neuro does check levels when they do blood work every 6 months.
__________________

.

.


.
first flare 7/22/2000
Dx 8/3/2000 RRMS-- no relapses since
Betaseron 11/15/2000
Didn't miss a single injection the first 8 years. Now take about 6 shots off a year
.

Great minds discuss ideas, average minds discuss events, small minds discuss people.
Hyman Rickover, "The World of the Uneducated", "The Saturday Evening Post", November 28, 1959
viseeu is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (04-24-2011), volada (04-24-2011)
Old 04-24-2011, 03:54 PM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

The D used by doctors on RX is antequated... D2 and does not work much at all.

D3 OTC is what you will want. The general ratio for increasing is 1000IU D3 daily for every 10 points you need to raise (US units).

Your target should be 50. (my doctor wants me at 70!).

I was taking 5000 units a day 8mos out of the year (I am outside in summer)...and I tested only at 43. Should have been a bit higher...but it was still good compared to other people posting all over the boards. I have seen one fellow at PD here who tested at 3 ...

Here is a thread with the newest research and medical videos:

http://neurotalk.psychcentral.com/thread92116.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (04-24-2011), viseeu (04-24-2011)
Old 04-24-2011, 04:34 PM #4
volada's Avatar
volada volada is offline
Junior Member
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
volada volada is offline
Junior Member
volada's Avatar
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
Default luckily i have a good neuro

Quote:
Originally Posted by mrsD View Post
The D used by doctors on RX is antequated... D2 and does not work much at all.

D3 OTC is what you will want. The general ratio for increasing is 1000IU D3 daily for every 10 points you need to raise (US units).

Your target should be 50. (my doctor wants me at 70!).

I was taking 5000 units a day 8mos out of the year (I am outside in summer)...and I tested only at 43. Should have been a bit higher...but it was still good compared to other people posting all over the boards. I have seen one fellow at PD here who tested at 3 ...

Here is a thread with the newest research and medical videos:

http://neurotalk.psychcentral.com/thread92116.html
thanks for your links... i'm lucky to have a good doctor--i just should have insisted on the test two years ago...but the ms diagnosis was overwhelming in/of itself...so was a little preoccupied...
my neuro has prescribed:
ergocalciferol (vit D supplement) 50,000 units: One capsule
weekly for 3 months
AND start simultaneous supplementation with over the counter
vitamin D3 2,000 units: One tablet daily.

and then blood work in 3 months to monitor....have to say starting to feel better-ish already...was feeling kinda weak/wobbly but just thought was another vague ms thing....
__________________
1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
volada is offline   Reply With QuoteReply With Quote
Old 04-24-2011, 04:37 PM #5
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Please read the link I gave you... new studies show D2 is about 87% LESS effective than D3.

Doctors have not received this info yet. Just take more D3 daily to make up the difference. 5000IU may raise you enough daily with D3.

It takes about 3 months to work. And if you are low in magnesium even the D3 may not raise you well. Please look at that thread I gave you carefully...because there are details there to help you. Otherwise you take the D2 and fail and wait longer for D3 change to work for you. It is your choice.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
viseeu (04-24-2011)
Old 04-24-2011, 04:45 PM #6
volada's Avatar
volada volada is offline
Junior Member
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
volada volada is offline
Junior Member
volada's Avatar
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
Default d3 and forergocalciferol

Quote:
Originally Posted by mrsD View Post
Please read the link I gave you... new studies show D2 is about 87% LESS effective than D3.

Doctors have not received this info yet. Just take more D3 daily to make up the difference. 5000IU may raise you enough daily with D3.

It takes about 3 months to work. And if you are low in magnesium even the D3 may not raise you well. Please look at that thread I gave you carefully...because there are details there to help you. Otherwise you take the D2 and fail and wait longer for D3 change to work for you. It is your choice.
thanks! maybe i'm reading the sequencing of the posts wrong, but i am taking d3 and a prescription forergocalciferol (vit D supplement) 50,000 units: One capsule weekly for 3 months. just started this week...but glad to have followed up with the D thing...
__________________
1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
volada is offline   Reply With QuoteReply With Quote
Old 04-24-2011, 04:54 PM #7
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

The 2000IU of D3 may raise you 20 pts. That will still put you low.

The D2, is not active in humans. D2 is made from plants.

Doctors don't know better, because their reference books are written by old doctors, who only know the RX form...which is over 40 yrs old.

If you use 5000 IU D3 daily instead of D2 at all you may raise close to 50 points. That D2 will not do much for you. Just because it is a "big sounding dose" doesn't mean it will work for you. I have a link to a study at the end of that thread.

Some people don't raise quickly... this has to due with other cofactors not being present like magnesium, or due to being overweight carrying alot of "fat"...where the D goes.
Quote:
Vitamin D's Co-factors

Vitamin D has co-factors that the body needs in order to utilize vitamin D properly. They are:

magnesium
zinc
vitamin K2
boron
a tiny amount of vitamin A

Magnesium is the most important of these co-factors. In fact, it is common for rising vitamin D levels to exacerbate an underlying magnesium deficiency. If one is having problems supplementing with vitamin D, a magnesium deficiency could be the reason why.
from http://www.vitamindcouncil.org/
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 04-24-2011, 05:14 PM #8
volada's Avatar
volada volada is offline
Junior Member
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
volada volada is offline
Junior Member
volada's Avatar
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
Default thanks for the reminder

Quote:
Originally Posted by mrsD View Post
The 2000IU of D3 may raise you 20 pts. That will still put you low.

The D2, is not active in humans. D2 is made from plants.

Doctors don't know better, because their reference books are written by old doctors, who only know the RX form...which is over 40 yrs old.

If you use 5000 IU D3 daily instead of D2 at all you may raise close to 50 points. That D2 will not do much for you. Just because it is a "big sounding dose" doesn't mean it will work for you. I have a link to a study at the end of that thread.

Some people don't raise quickly... this has to due with other cofactors not being present like magnesium, or due to being overweight carrying alot of "fat"...where the D goes.


from http://www.vitamindcouncil.org/
will certainly read more. forgot about the co-factors... but also doesn't the prescription of: ergocalciferol (vit D supplement) 50,000 units also help? have just been a little freaked that my reading was so low...but good to know...and will try to handle
__________________
1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
volada is offline   Reply With QuoteReply With Quote
Old 04-24-2011, 05:38 PM #9
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

D2 has shown poor response in studies:

I guess I'll have to give you the link?

http://www.nutraingredients-usa.com/...-than-D2-Study

D3 is 87% more potent than D2 in raising D levels in the blood.

On that link I gave above is also a paper on MS.

On the average, medical doctors are not informed on the newest research on supplements. Especially on the D. They will test you but give you old useless products based on the tests.

If you read the experts, you will see. Mayo, Cleveland clinic etc...from links on that thread I gave you.

Should you do what your doctor advised...you will see perhaps 20 pt increase (based on the D3) 20pts is not enough for MS patients.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 04-24-2011, 07:37 PM #10
jacksonsmommy jacksonsmommy is offline
Junior Member
 
Join Date: Aug 2008
Posts: 85
15 yr Member
jacksonsmommy jacksonsmommy is offline
Junior Member
 
Join Date: Aug 2008
Posts: 85
15 yr Member
Default

The MS Clinic in my city recommends we all take 6,000 - 8,000 IU/day.
jacksonsmommy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (04-25-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
So should i or should i not take b12 vitamin? Monica de Lara Peripheral Neuropathy 24 01-12-2012 05:41 AM
Vitamin D NurseNancy Multiple Sclerosis 22 05-31-2011 10:57 PM
Vitamin D and Autism/ Vitamin D Council newsletter jccgf Autism 2 02-02-2010 02:50 PM
Vitamin C? daniella Vitamins, Nutrients, Herbs and Supplements 9 12-08-2007 05:50 PM
Vitamin A carolyn_lsc Vitamins, Nutrients, Herbs and Supplements 5 12-05-2006 01:26 PM


All times are GMT -5. The time now is 11:14 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.