Another one in my circle is going back to RE do the CCSVI stenosis clearing surgery after relapsing.

I promised to share when I found honest videos that show folks that are past their initial CCSVI surgery video and I found this one. She is clearly struggling, and is willing to go back and have this RE done as many times as it takes.

http://www.youtube.com/watch?v=veY4e...&feature=share

I dont wish to cast shadows on anyone elses journey but they are now saying that MS Causes CCSVI not the other way around, and this explains why so many are having to REDO their surgery. Those in Canada are coming to NY and other places and are paying CASH to keep having this proceedure. Its not cheap by any means, its like $10,000 and that doesnt include the hotel room, and travel expenses.

Very nice girl. I want you all to give her warm thoughts for her return trip.

thats very interesting!

will keep your friend in my thoughts

"best 6 months out of the past 8 years" is what she said stuck in my head and hopefully everyone else's

it must have been an amazing relief for all of these folks to search it out to have it done again. To go from extreme cog fog, and dragging a leg to up and running and talking to your children again...placebo or not, I can completely understand why so many want it.

I was complaining because its so hard to find folks with honest videos past 6 months out from their treatment. Many are very active verbally, but when you find out they are having it redone, and didnt want to show folks it upsets me. THIS girl is right out there! I love it! Some I spoke to told me they didnt want to show they had a relapse past 6 months because they wanted so badly for everyone to go get tested for CCSVI and seeing someone relapse would only scare them away. That upset me. Skewing the facts in either direction would upset me.

I say Rock on Cat! I hope it is ten times better for you this time than it was last time.

I think the reason for the absence of more uptodate videos, is deniel. We MSers are so good at that, ya know. And, maybe they're embarrassed, because of how they bragged, in their first video?

CV is not turning out to be the cureall that many expected, but does give some relief for MS sx. Many are having to do it over to get the effects they may have had at first and others get no relief at all.

I feel bad that so many are having to do the angio over again, but I just hope they don't go ahead and get stents, quite yet.

I'm with Sally. I think the ones that were first to have it done kind of jumped the gun and announced they were cured when it was just a remission of symptoms. I feel bad for them because I know how much they wanted this to be "the cure". I truly believe that, for some, it will be the most dramatic improvement they'll see but for everyone with MS it's not the cure we all hoped for.