Hello all,

I just spoke to a person about starting a new medication and I was sad about the price. This is for me specifically:

It will cost my $2161.75 each month for a 28 day supply. They will pay $800 of that price which brings the price to $1361.10 each month. That is a lot of money. I will not qualify for additional payment help. What are your thought about this medication and that price?

Thank you,

Eric

I would not be able to afford to take it. It would come down to groceries vs medications. I hope you find the answers you seek.

So far, none of the MS medications are worth the cost, either in money or side effects.

The money hungry greedy, scoundrals.

JMHO..

Link to the drug information site

I asked my doc about this drug as I have been injecting Betaseron since 2003. He does not like the side affects associated with the pill. However; there are side affects with all the MS related meds.
If you had nothing to lose, I'd say give it a try........
But the cost is ridiculous. Theres a good chance you could get good results from one of the other drugs.
Would your insurance cover the other injectables?
I know the Betaseron people have programs for those who can not afford the drug.

http://www.gilenya.com/index.jsp?use...76878980108690

I hear you Dejibo! That is a lot of money to me too. We have other things to purchase and the drug is still so new without years of data behind it too Thanks for your thoughts on this.

Hi Sally. They prolong relapses but there is no cure. That saddens me. It is TONS of money, I have a lot of school bills (but almost finished there-thankfully) and one of my children will need braces soon. I'm too scared of Tysabri side effects to go that route. Thank you for posting your thoughts.

Hi Karilann,
You're right. Medications all have side effects and some are very bad. I do not qualify for payment help to make it worth it. I've called to see if they were checking with both of my insurances and am waiting on the return call from them on that. That is a good point, what about the other injectables instead of the pill. I'm tired of the injections though and thought it would be nice to take a pill. It's so difficult sometimes. Thank you for your insight and support.

I'd love to stop injections and just take a pill too, but there's way too many possible side effects to Gilenya and IMO, it hasn't been out long enough to know the long term effects. My neuro said that neither he or the other 2 MS Specialists in his practice have prescibled Gilenya at all. Just my thoughts on the subject..

That's good news to hear Desinie. Thank you for that piece of info.

are there any more clinical trials you can get in? maybe a combo trial. one with C and G? Or A and G? That would be my only suggestion.