Possibly, gut let's not jump the gun. It could be other things as well?:hug:

Newbe
 

Hi all I'm Les and I'm new

Hi Les, nice to meet you. Tell us a little about yoursef and what brings you to the NeuroTalk MS forum.

Welcome..:hug:

Wishing all new comers to NT a very warm welcome :hug:.

Please feel free chat to others about anything that you are going through or are working on figuring out. Through sharing our concerns, experiences and even our rough patches with others, we find support and often lighten the load for everyone...including ourselves :).

With love, Erika

New Member, symptomatic and frustrated
 

My name is Tammey, and in 2005 while working up a potential pituitary issue (idiopathic galactorhhea), my neurologist told me that he found two "footprints" on my MRI that were consistent with MS. He said not to worry about it, since I had no symptoms, and at the time, three lesions and an episode were required for diagnosis.

Recently I lost my job and had to move, which was very stressful and traumatic for me and my family. Since then I have been having symptoms consistent with MS, and I am miserable. First, I had severe pain and burning in my right foot that lasted for about two weeks, then slowly improved. My latest bout started about 9 days ago, with pain and stiffness in my right hand and arm, an unrelenting burning sensation along the entire radial nerve, weakness, and loss of coordination.

I cannot hold my coffee cup unless I am concentrating on what my fingers are doing. When I do not concentrate I drop things. Typing is a chore, because I have to concentrate on the fingers of my right hand to make sure they are hitting the correct keys. I am very fatigued. I wake up around 9 am, then go right back to sleep until noon. Then I take a nap around 4 pm, and wake up and stay awake until about midnight. I have no appetite, and my stomach is upset often. I have been having mild flu symptoms for almost a year.

At first, I went to my GP for suspicion of atypical shingles (due to the extreme sensitivity along the nerve route), and the doc is working me up for a variety of issues. I have also recently had a change in my emotions that I do not feel relates to a situational depression. I had been feeling fine for over two months, and was looking forward to starting back to college to finish my masters in nursing, and be a soccer mom to my teenage daughter. I was already taking a low dose of zoloft, and have found that if I am more than two hours late taking the medication, I am an anxious, tearful mess.

I decided to call my neurologist for an appointment, who belongs to a large local medical practice. The nurse got on the phone, reviewed my symptoms, and told me point blank that I have carpal tunnel syndrome, and that she was NOT going to make an appointment with my neurologist, but someone who specializes in carpal tunnel. As a Registered Nurse who worked in ICU, Emergency Room and Administration I am pretty shocked by this response, especially because this physician has an MRI that meets current diagnostic criteria IN HIS HANDS! I have decided to wait on my primary physician for follow up. We drew labs yesterday to rule out all of the non MS diseases, and my doc is very suspicious for MS. I never told her about the MRI from 2005. (I have been too sick to think straight).

I know I am a nurse, which can make me very impatient, so I really need some support getting through this phase. I am still rather shocked that this nurse tried to diagnose me over the phone and then still would not allow me to see my doctor as I requested. I am finding this phase very frusting. I am in pain, and I feel terrible, and I feel like I am being restricted from the very doctor who has the answer locked away in my medical file.

In advance, thanks for your support.

hi tammey and welcome to NT.

there's 3 things that come to mind. write your neuro a letter telling him what happened to you. talk to your pcp to intercede for you by contacting your neuro himself. and 3, show up in his office unannounced and demand to either see him or his office manager. refuse to leave until you either see him or get an appt. or do all 3. i'm furious for you.

i'm a nurse too. 35 yrs in NICU. i'd also call your other dr and advise her/him about that '05 mri. get the results or the disc and send it to her.

there is something that happens with MS that affects your emotions. i can't remember what it is right now but i know someone will.

hang in there. don't give up being your own advocate.
please let us know how you're doing. we care.

Welcome Tammy, nice to meet you.:)

Hello. My name is Carolyn and I have Devic's disease. I know that's not strictly MS but this is as close as I'm going to get to a support forum - there's precious little out there for my condition because it's so rare. I have had it since 2004 and I only got diagnosed in 2010. I've only ever had 2 doctors, out of the countless ones I've seen, that didn't immediately say 'Devic's disease? What's that?' It's frustrating.

I'm currently stuck in hospital (day 5) waiting for an MRI after my left leg stopped working 5 days ago. I have a new foot drop now and am suffering excruciating back pain - an ongoing condition that was previously chalked up to a bad back, but now I'm told might be demyelination-related. That would explain why it was so hard to treat but if it means my disease burden is increasing...

Welcome to NeuroTalk Caroline. So sorry for the Illness that brings you here, but glad you joined us.:)

I know nothing about Devics except that it sure sounds like MS to me. So Welcome home..:hug:

hi carolyn and welcome to NT,
sure you can stick out with us.

i'm sorry you're so sick right now but hope your drs can help you.
please keep us posted.

First post
 

New here. I'm waiting for a spot in neuro movement clinic disorder. Could someone tell me if that's just diagnostic or do they help you move better? My background briefly. At age 21 began with problems. At 28, was told ms or Parkinson's. New dr in my 30s assured me nothing wrong with me. Continued downhill battling illness, vertigo. Visited 8 drs finally referred to neurologist but was told to cancel apps.
They found 2 lymphomas (pulmonary) I had as little as 1 mo to live. Promised I would feel better but things got 10x worse. Successfully treated 2 yrs ago. My tremors (not essential), fatigue weakness have been increasing upon exertion. Finally saw neuro department and am now in process of ruling out common stuff. They did tell me I have neuro problems. Oncologist had referred me to rheumy who diagnosed fibro, but I do not have fibro pain

. Neuropathy started in hands and feet spreading up to include entire legs. Neuropathic pain came with chemo. Used to read 5 books at a time, lost ability to read/comprehend. Not totally, I can read children books. Former classical pianist. I passed out driving home from pool, now neuros all concerned with my syncope. On lighter side I do act at local theatre, short skits. Other than that I got nothing. Any advice welcomed! Best wishes to everyone, Katherine

Welcome Katherine. Nice to meeet you. Sorry as to why you are here.:hug:

The process of Diagnosis can sometimes take awhile to pinpoint, especially neurological diseases. Ask your Neuro to treat your symptoms as best as he can and hang in there.

Let us know how it goes with your Neuro.:)

Thank you so much for your reply! I was hoping to bump into a nurse on this forum just to validate that I am not completely nuts! :wink: It is day 12 and the burning pain has subsided somewhat. It is constant, but no longer maddening. The weakness and poor coordination have also improved a little. Perhaps I am getting used to it, or maybe the additional rest has helped.

As for the neurologist...I wrote a professional letter of complaint describing my history and symptoms, radiology report, and the nurses response. I ended the letter with a request for the CD of my MRI. I did add one zinger at the end, though. After citing my qualifications, I reminded the customer service department that the standard of care is that any patient complaining of unremitting pain should be seen by a doctor within 24 hours, and ANY person complaining of arm pain, unusual weakness and fatigue, and nausea should be seen in an Emergency Department immediately to rule out cardiac issues. Fortunately my PMD was right on top of that, and cardiac has been ruled out.

In the meantime, my laboratory studies should be in Monday or Tuesday, I will obtain the CD's of my MRI's, and after following up with my PMD next Monday I am going to make an appointment with the MS clinic at Mt. Sinai and put this issue to rest. They will find a cause for these symptoms whether it is MS or not.

Sadly, I think I have been having MS symptoms for several years and did not recognise them. I have had difficulty with urination and frequent UTI's since 2009, and leakage of stool since 2009 as well. My last job was very demanding and everytime I had a viral illness (I worked with children) I would develop a pain syndrome in my hips and upper legs that was excruciating, and lasted for weeks. I have had shingles 4 times, and always thought the virus had irritated the nerves due to the sensitivity to varicella. I know I am at least half right, the virus certainly did irritate these nerves.

I am very fortunate that I live in a supportive household with supportive family and a roommate who has been a life long friend of my husbands.(Who is also a nurse, and getting more worried every day. He has never seen me sleep like this). Everyone knows that something is really "not right". I am typically very energetic, and lately I have not been able to get off the couch. Yesterday I took my daughters to the movies, and was so exhausted today I took a five hour nap. I have been napping almost every day for the last 12 days, and it had been years since I had napped during the day. Even when I am very sick, I don't sleep during the day. Fortunately, the family has been picking up the ball, and being incredibly helpful. (The teen's are still teens, but they don't gripe as much when I ask them to do the dishes!):)

Thanks for your support, and validation of my concerns regarding my doctors staff. It is nice to know I have a safe place to share this issue!

Tammey:hug:

Thank you Sally! I used to live in SW Ohio, near Zanesville, and had a home in Dresden. I received my nurses training at Ohio University. I really want to thank you for what you do, and how helpful this community is. It is a blessed place to be when you can help others when they need you the most, and do so just because you can! :hug:

Tammey

Movement clinic
 

Sally, thank you. Do you know if movement clinic is just diagnostic? UVA neuro dpt said they want to fit me in as soon as possible. Also he said didn't think I have Parkinson's. Nor did I have essential tremor. Since he left out ms might it be a possibility? He wants to do emg himself (had one done 6 mos ago) and ordered MRI. I know there's a bunch of other stuff it could be. I have other crappy stuff, band around chest. Just started this summer uti, now bladder probs. cog issues. Passed out 4 times in heat.

They're checking hypoglycemia, thyroid. Crash Generally around 3-5 for last ten yrs. just list some stuff because it's not just one thing. I disagree w fibro and cannot relate to info, particularly in as exercise makes me worse. 15 yrs I've put up with therapists saying its all in my head, last one told me maybe I was just babying myself which is why I went swimming in warm pool and oops 95 that day. Passed out driving home. (i was told I passed out due to lyphoma/anemia). Ranting a bit beg pardon. I don't care about syncope, it's the fatigue that's wearing me down. Any advice appreciated. Except for a few shows, I'm housebound. 2-3 decent hrs a day every few days. Thanks again, Katherine

Hey!

I have been following your posts, and it seems like your case is a little complicated. I had a complicated case also, and eventually needed to go to a major medical center for diagnosis and treatment. Sometimes you need to start from scratch, and let someone look at your case with a fresh perspective.

As a nurse, my best advice would be for you to create a journal or outline of your medical and neurological symptoms. Be sure to include the year, and if not the month, the season. Extremes in temperature can worsen neuro symptoms, and may aid in a diagnosis.

Then, (a daunting task) compile your medical records in a folder in date order. Include EVERYTHING!!!! Chemo, surgeries, meds, colds, flu, ANYTHING a doctor has treated you for. This will give the docs the info they need to diagnose you. Include Emergency Room visits. Often an ER will do a more comprehensive assessment (radiology, labs, etc) than your primary doctor, because they do not know you well. A "snap shot" of your entire condition during illness can be invaluable to a practitioner who is trying to put a puzzle together.

In general, they will look at the outline, then look at the files if they need more information. Medical people love to work with patients who want help, will give them the tools they need to work with, and will take thier advice. NEVER express yourself dramatically (unless you truly can't help it), as medical practitioners are accustomed to seeing people who "cry wolf" and if you appear to be "crying wolf" it WILL be assumed that you are.

Nurse Nancy (in this forum) said to me "Never stop being your own advocate". She is right. I hope this helps give you some tools to navigate the medical community.

You are tired, but not beaten! You can advocate for yourself. Keep on trying!

:hug:

Tammey

I think like you do lol. However neuros were not very interested in history. Might be a good thing. They asked me why I wasn't in to see them sooner. That I have neuro probs. Dah.. Pcp said it would be a waste of my money. Neuros did say other drs don't know what to look for. Loved the horse snort the neuro dpt head gave when I told them my previous dr refused me a physical in 2009, told me to come back when I'm 50.

Anyhow would love to chat with ya if we are both going thru diagnostics. I read ur post.. Smiled cause I so relate.

My biggest prob I moved to va 6 yrs ago, being sick I don't know anyone here. An old social friend is a neuro chiro I told him about my pn he wants me up in mainline pa so I maybe treated proper. My cousins in San Diego r immunologists, they offered me their couch.

I've not told either of them that I'm getting worse in some ways, better in others. I was hoping to get my strength back and a diagnosis first. Furious w onc/hemo told him I wasn't from here don't want to be here! He promised me I would feel so much better! I don't have the wits to move :-) or to figure out this website. I'm homeless in another year. My landlord kindly offered me his cabin, I asked him if it had a bathroom, he said he'd add one.


I do hope you find answers and some relief soon.
Warm regards, Katherine

Wow. You have a lot of stuff going on, and stress isn't going to be helpful. Kind of hard to put your energy into getting better when you are worried about having a place to live.

You have a very good resource in your friend who is the neuro chiropractor. I'm thinking they can guide you to what you need to do. It also seems like you would benefit from a case worker. That may be a little challenging without a diagnosis, though. That said, once you have a diagnosis, a case worker can help you look at the resources you have, what additional needs should be provided for, and help you get those services. Case workers are not just available at the department of social services. Every hospital (including large clinics) have case workers to manage issues just like yours.

Your friend in PA has a lot of resources and contacts that may be helpful to you. If you need to travel to PA to be seen, I would do it. I am lucky because I only live an hour from NYC, and truly have my choice of clinics to go to. If I lived farther away, I would still go there. When I was diagnosed for my pituitary disorder I lived three hours away from the clinic. The process was exhausting, but well worth it!

Keep up the good work!:hug:

Tammey

Wow! I am starting to feel better! Energy levels are back up, pain is almost gone, and function is better. Still a little uncoordinated, but functional! Day 14...seems like that is becoming my pattern. I recalled the other day that early in June I suddenly lost my hearing in my right ear. I went to the doctor thinking I had an ear infection, but they couldn't find anything. They thought my allergies (for which I didn't feel very symptomatic) may have caused some swelling that wouldn't allow my ear to drain. They put me on flo-nase (a steriod), and the symptoms went away in a few days. That was also a two week course. Hmmmmmmm.........

Hello all. I am new to this thread and looking for advice and support for what I have been going through. After 5 years of symptoms of ms I am still without a dx but every time i go in with a new symptom am told it sounds like ms. At this point I am not very functional at all and with every attack I get new symptoms and am desperate for help. The depression has started to get pretty bad over the past two weeks...

Thankyou :)

I'm back home now. The 2 hour long MRI (can you say torture? Especially with the flipping facemask clip digging into the back of my head!) didn't show anything, but the lesions I have now took literally *years* to show up on scans - I don't know if that's specific to Devic's or I just have a stupid CNS, but either way I'm used to long waits for answers. My walking improved enough that I got discharged but I am still very easily fatigued atm. I'm going to see a highly regarded neuro in my city (Melbourne), hopefully she has some answers. I'm tired of being a medical mystery.

Welcome Lisa! You will get a lot great advice and support here! Great people with lots of experience living with neuro stuff, getting help and coping with it all. I have only been in the forum a few days, and feel great about the lovely people here!

Wishing you health, happiness, and peace,

:hug:

Tammey

AFAIK it wasn't recognised as a separate condition until quite recently - it used to be called optico-spinal MS. It presents pretty much the same but the attacks happen preferentially in the spinal cord and optic nerve, usually with long tract lesions. So it's kind of better and worse at the same time, if that makes sense.

Welcome to NeuroTalk MS forum Lisa. Please come in and join us. We are discussing MS and depression inside. We understand.:hug:

Hi Lisa
 

[QUOTE=LisaLisa37;933418]Hello all. I am new to this thread and looking for advice and support for what I have been going through. After 5 years of symptoms of ms I am still without a dx but every time i go in with a new symptom am told it sounds like ms. At this point I am not very functional at all and with every attack I get new symptoms and am desperate for help. The depression has started to get pretty bad over the past two


Just wanted to say hi. I'm playing the waiting game.. I think one of the hardest things is not knowing what to do.or at leat I feel better if I have some plan of action. I actually snapped over a month ago :-) froze mentally, my old acupuncturist got me a little stable. So I can only offer to be here if you just need a sympathetic shoulder. I have new symptoms popping up all the time, some last only few mos, some progressive. My neuros suggested I play lots of video games.. So if u like we could hook up on some computer games. Kinda kills boredom and strengthen cognitive skills. Hang in there, most people think waiting is the hardest part. Have they ruled anything out yet for you?
Warm regards, katherine

Hello Banburycross,

Welcome to our community.

That waiting game has got to be one of the hardest things to endure; especially when symptoms are ongoing and it seems that nothing is being done about it.

For what it's worth, many excellent diagnosticians take an opposite approach to the urgency of "Don't just stand there...do something!" and instead think, "Don't just do something...stand there." This means that that they are evaluating the whole picture rather than jumping at the first or most obvious symptom; and that often ends up being the best approach in that it may avoid an incorrect or ineffective treatment plan.

Please do keep us up to date on how things are going. Sometimes just sharing what we are going through with others who truly do understand the frustration that this disease can cause is a tremendous help in itself :hug:.

With love, Erika

[QUOTE=Banburycross;933634]Hello Katherine. I too have no plan of action at this point and think that is making depression worse. I have always been pretty active and now cannot even do some simple yoga. I have a list of new symptoms that have come over the last 6 months- more than any over the last 3 (severe joint & nerve pain, numbness & weakness of legs, burning hands & feet, coordination/balance issues, blurry vision, fatigue, tremors of hands & head, muscle spasms & cramping). I cannot work for the past 3 years due to continued falls, i have not driven in 8 months, and most of my household chores are now being done by others. My drs are pretty much just treating symptoms with medication (gabapentin, cymbalta, baclofen, & low dose of oxycodone) and redoing tests already done (lumbar mri to check for pinched nerve twice, vision test twice, blood test checking for Lyme, hepatitis, & HIV, EEG for sleep issues, and next week I get to have my second emg even though the first showed nothing abnormal) My new neuro said I don't have ms based on my brain mri from 5 years ago when my vision and balance issues started. I have an appt with my primary doc next week also and am planning on asking to be taken off meds. They are not helping me- seems pointless. I'm desperate for help but at the same time am so frustrated with it all I don't want to go back. Every time a new symptom comes I have started going to urgent care clinic (3 times in past month) and each dr looked over letter I bring with all my symptoms, diagnosis, tests done & what I do on my own and all said they would speak with my primary about testing for ms so I guess we will see next week! Sorry for the long-winded response! On a positive note I do play online games- I love any puzzle, word or trivia games. What do you play?

Warmest Regards,
Lisa

Hi Lisa! Do you have a large hospital (like a university medical center)in your area? They often have neuro clinics that are more aggressive in diagnosis and treatment, and have practitioners who specialize in diagnosing and treating neuro disorders. Radiologists are trained in interpretation of MRI, but radiologists who work with neuro disorders have experience and special training in the types of MRI needed to visualize certain disorders, (type of contrast, type of scan, etc) and subtle changes that may indicate a lesion that a less experienced practitioner may miss.

Most of the time these clinics will make you an appointment without needing a referrral. All they ask is that you bring any previos MRI's, and possibly lab results. (in addition to your standard insurance and demographic info). After your first visit, they will begin scheduling the right tests, diagnose what is happening to you, and begin treatment.

I became frustrated with my local neuro and endocrinologist when I was having symptoms of a pituitary disorder, and they wanted to take me off the only medication that actually helped me. I made an appointment with the Department Director of a large Neuro clinic, and the first thing he said to me when he saw my MRI's was: "I can't use these, they are doing the wrong scan". Once the correct scan was ordered, the doc was able to diagnose my issue, and endocrinology was able to sort out the hormonal symptoms. My treatment was very successful.

Please review the tread about depression and MS. I think a lot of the info can relate to neuro issues in general.

Good luck, and keep on advocating for yourself!

Tammey

My neuros suggested I play lots of video games..

I found this very interesting...With my last bout of symptoms I had several days where I didn't feel like I could process or retain information. I felt like my IQ dropped 30 points, and I just couldn't think.

So...I started playing my computer puzzle games. I don't know if it helped, but at least I felt like I could concentrate on something. I haven't had cognitive issues since I started feeling better physically.

Hello. My name is Miami and I have Spinal Myoclonus. My neck was broken after a semi hit my driver side door, and snapped my neck. I was paralyzed for 2 months before they relized what was wrong and now my spine is damaged. Still learning his, since I just discovered it last week, but have been suffering since May 8, 2012. I am grateful I am doing well.

Hi Tammey. I do have a big University hospital nearby but 1) they are not accepting new patients with my insurance & 2) you need referrals for everything here. I was talking/crying to my fiancé today while being stuck in a car for 7 hours today (i wouldnt wish what I went through today on my worst enemy) and he is contacting a dr friend tomorrow for advice. I am in so much pain today i want to die- like my whole body is buzzing with electric shocks. Something's gotta give. Once i feel a bit better i will begin to research other options- maybe traveling to where i dont need a referral. I can relate to feeling like your IQ is dropping! My brain feels like mush quite often lately. Do you have pain? If so, how do you deal? If not, what symptoms do you have to deal with?

Perhaps your insurance company would be a good resource. They should be able to point you to providers in your area that can help you. If they have a nurse call line, call it and tell them you are sick, in pain, and need help finding a doctor. They should be able to guide you through the channels they require you to take. If you get resistance, put on your assertive hat, and flatly tell them that they have an obligation to help you find an adequate provider, even if you have to change doctors. (Sounds like you could use a second opinion anyway). If you feel the call would be too overwhelming, your fiance can call, just stay available to authorize the conversation.

As far as my issues are concerned, I have been in pain for several weeks, and lost a great deal of function in my right arm. It has been slowly improving, but when the pain was at it's worst, nothing helped. I did try some ice on the areas that hurt the worst, and it helped while the ice was on those areas, but the pain came back just as strong when I took the ice off. I have been having headaches every day, and was very fatigued, which is also improving.

I saw my primary today, and she has ruled out cardiac, arthritis, lyme, thyroid, diabetes, and other autoimmune issues. She got me an appointment with my neurologist on Wednesday, and I have an MRI this week also. She feels that her first diagnosis would be MS.

I have a strong family history for MS. A cousin on my dad's side is in a wheelchair, and a maternal uncle committed suicide shortly after he was diagnosed. (Not an option for me! I want to live until I am a very, very old lady!)

What really frightens me is what this is going to do to my nursing career. I am a Critical Care and Emergency Department Nurse, and my job requires that I be mentally alert, and have good dexterity. (Neither of which I can rely on now). If I cannot reliably perform nursing tasks, then I cannot work with patients. I know that some accommodations can be made, but I couldn't think this last time I had a flare up, and I can't in good concience jeopardize the safety of my patients. I am making plans to go a back to school and get my masters as soon as we sort this mess out, and I am on a treatment plan. Then I can teach nursing, and wont be a risk to the people in my care.

I also feel very guilty about how this is going to affect my family. My husband and I will be celebrating our second wedding anniversary next week, and we were looking forward to a healthy, happy retirement. He is a nurse too, and we both know what we will be in for as I continue to lose function. I am also worried about our daughters, one of which just graduated from nursing school, and the other is in high school. I do not want them to change their life plans to take care of me. (or in anticipation of taking care of me). I want them both to be independent and happy, not worried about whether or not I need help.

So....If the MRI shows MS, then I am going to be very aggressive in treatment. I want to retain as much function as possible, for as long as possible. I have seen as many miracles as tragedies in my career, and will not give up. I have encouraged many patients to dig deep and find the strength to continue treatment, I should at least do the same for myself.

:hug:

Tam

I will be able to figure out how to proceed based on what my primary dr tells me on Wednesday. I have two maternal aunts with ms who are are not very open about their struggles. Just when I feel like I cannot handle any more I see/read something (like your post) that inspires me to keep trying. I have and always will be my biggest advocate and need to be reminded of that sometimes :) I am sorry for the pain you are in and for having to deal with the planning of your career in the future. Sometimes I feel like the loss of life as I knew it is more upsetting than my symptoms. It's difficult to let things go that you love- change is never easy. I appreciate your responses to my posts. This site has helped me to not feel so alone lately. Good luck with your upcoming appointment & keep me posted.

Lisa

new member
 

hi! i was diagnoised with rsd of my left arm in august 2012, after trigger thumb surgery april 2, took 4 doctors and 5 mths to see that i have it, now it has spread to my right arm, neck, left leg and foot, i now go to a pain clinic, on morphine 30 mg 3 times a day. and 15 mg for break thru pain and gabapentin 600 mg 5 times aday, i hate the morphine i have begged the doctor to give me something else, she insist its the only thing that will help me, can someone tell me what else would help? also been trying get my workers comp, they have denied me

Hi and welcome
I think you have accidentally posted on the MS forum instead of RSD
Here is the RSD forum http://neurotalk.psychcentral.com/forum21.html

No new updates from the docs yet. I have the disk of my mri, so I can take it to an MS Neuro for review if I need to. Hope your stuff is going well.

:hug:

Tam

hi katherine,
i don't know where you live but it sounds like you need a new neuro; and or a pcp that will listen to you and take you seriously.

you sound very symptomatic and it sounds like you're having periods of separate attacks. you need diagnosis and tx, imho. please get another opinion.

you're your own best advocate. don't give up and don't listen to drs who don't listen to you. keep us posted when you can.

Hi
 

Hi I'm paleon183 and I live in London UK

Hi! I have many friends who live in the UK and Ireland...what brought you to this forum?

:)

Tammey

Hello paleon183,

Welcome to our supportive community. Hope that we can help with what brought you here :).

With love, Erika