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Old 09-24-2011, 09:25 AM #121
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You bring up a good point Chad. Night sweats are also a sign of lymphoma, which is believed to be sequel to Epstein Barr Virus that causes mono. In the early stages lymphoma has few signs. The night sweats are one of the few in fact.

Most M.Ds. use labs that are not Lyme experienced or sensitive.

Ignex is a lab with more acute testing to reveal what others miss.

http://www.igenex.com/misdiagnosis.htm

Some people go thru a dozen or more doctors and testing before reaching Igenx. Local labs like Quest, etc can have false negatives.
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Old 09-24-2011, 09:55 AM #122
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You bring up a good point Chad. Night sweats are also a sign of lymphoma, which is believed to be sequel to Epstein Barr Virus that causes mono. In the early stages lymphoma has few signs. The night sweats are one of the few in fact.

Most M.Ds. use labs that are not Lyme experienced or sensitive.

Ignex is a lab with more acute testing to reveal what others miss.

Some people go thru a dozen or more doctors and testing before reaching Igenx. Local labs like Quest, etc can have false negatives.
about two or so months ago the glands in my right armpit swelled for no reason and hurt only lasted a few days and went down right before my gp appt she said to me she could feel anything at that time but she said something about lymphoma but she said we will deal with that as a last resort. i had on my last blood/ 24 hour urine showed my serum testosterone level was low at 134 and the free testosterone was low at 4.7 i am some gel now you rub on your arms but if it is supposed to make you feel better it don't.
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Old 09-24-2011, 10:30 AM #123
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about two or so months ago the glands in my right armpit swelled for no reason and hurt only lasted a few days and went down right before my gp appt she said to me she could feel anything at that time but she said something about lymphoma but she said we will deal with that as a last resort. i had on my last blood/ 24 hour urine showed my serum testosterone level was low at 134 and the free testosterone was low at 4.7 i am some gel now you rub on your arms but if it is supposed to make you feel better it don't.
in addition i lost 48 pounds in two months for no reason it made eating not so fun, and every doctor to date says its anxiety and depression and yeas i have those but wouldnt anyone who lost there job and is in pain
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Old 09-24-2011, 11:59 AM #124
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Chad,mI think that the same herpes virus that causes Mono and other diseases, also triggers MS.

Put Mononucleosis and Multiple sclerosis in your browser and you are sure to have some hits..
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Old 10-08-2011, 11:27 AM #125
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Hello

I would like to introduce myself. I was brought here by the MS Society website, and wondered what help and support is available for those of us in Limboland. I have already had my first appointment with the neurologist, who examined me and told me that the exam was fine and that it was benign but he wanted to send me for a scan just to be sure. I am now more confused than ever, not sure whether he meant I'm totally fine, or that I have benign MS. I still have trouble walking, sleeping and moving around, pain and numbness in all four limbs particularly down the left side of my body.

I wonder if any of you out there with MS or pre MS could advise me as to which part of the website would be best for me.

I also have Hashimoto's I've had it for years and we thought that I had ME/CFS several years ago, now the numbness and tingling has started in limbs, MS is on the cards.

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Old 10-08-2011, 12:46 PM #126
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I'm new here on this site. 56 YOWF with ms. First diagnosed as proable MS in 1984. Had CCSVI procedure at Stanford by Dr. Dake in November of
2009. Initial improvements in energy and getting up at night to go to the bathroom which . Never had improvements in motor skills. Struggling with the motor skills (especially walking) is very tiring. I try to limit my moving around
since it is a struggle. I use a walker at home and a wheelchair out. I'm not convinced I had immune system involvent since I never had RRMS or enhancing lesion on any of the MRIs I've had (first in 2006). Still seem to have more energy post procedure than pre procedure but motor skills are worse. Seems the autoimmune theory is what has gained the most traction and is accepted by both patients and doctors when the results of DMDs and the AI theory are questionable. I guess one would say there's more they do not know about MS than they do. I would say I'm just confused.
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Old 10-08-2011, 01:17 PM #127
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Welcome to both Denise and Mspatient..

Denise, I'm a left side MSer too. Thank God, I still have strength on my right side. Makes it easier to transfer from scooter.
Glad you found us and happy to have you.

MSpatient, Nice to meet you. We have a few people here who had CCVSI treatment and still have MS, but are having good symptom relief.
Come on in and be confused right along with us.
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Old 10-08-2011, 03:35 PM #128
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Welcome Denise and mspatient! Glad to have you here with us. Hope to see you around the forum.
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Old 10-08-2011, 08:32 PM #129
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Heart New to Neuro Forum

It is great to find a forum that is specific Q&A to Neurological disorders or Neuro pain syndromes. I am not sure what to do next but appreciate being invited to say hello

HELLLLOOOO OUT THERE
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Old 10-08-2011, 10:57 PM #130
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Hello Jossy and welcome to you.
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