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Old 05-24-2011, 10:02 AM #11
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Hi Old Gal, welcome. I bet I'm older..
I was DX in 1976..

I'm so glad you found us. Come on in and join the Whine and Cheese party. We all understand where you're coming from and are here to support you.
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Old 05-24-2011, 10:12 AM #12
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Hi Ally and Old Gal! Welcome to NeuroTalk! Make yourselves right at home and join in the discussions. Also, The Stumble Inn is a place for MS folks to gather and talk about stuff that's not MS related. Here's the link http://neurotalk.psychcentral.com/forum102.html.

Good to have you here!
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Old 05-27-2011, 10:44 PM #13
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Default Hello all.......

Very interesting and infomational site! Thank you!

My name is Curt, 38yr (39 in a couple weeks) ,white male. Currently trying to figure out what the heck is going on with my BODY! These nerve pains, uhggg, had enough! I have NOT been diagnosed with MS, yet. Just getting started with trying to figure it all out. Met with a doc last night and this (MS) is his first thought. I did a TON of reading last night online and can truly say I have 98% of the symptom's. I can't have a MRI due to steel rods in my back, so the doc ordered a CT Scan to rule out a herniated disk, if that is ruled out he will order a spinal tap and other tests.

I tell ya, I feel your pain, truly! This has been a nightmare for a few months, and I am done!

Anywho, I'll be hanging around reading and asking "newbie" questions. First 2 are:

What the heck is a "hug". And what does "MX'S" mean?

Thanks,
Curt
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Old 05-28-2011, 03:57 AM #14
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Hi Curt and welcome! Sorry you're having to go through the diagnosis stage of the game. It can be frustrating but so many other conditions need to be ruled out before MS can be diagnosed.

Many of the "old-timers" here (me included) use abbreviations for lots of medical/forum terms and it can be confusing to a new person. Here is a link with a post that lists many of the abbreviations and their meaning: http://neurotalk.psychcentral.com/sh...=abbreviations.

Hope to see you around more often!
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Old 05-28-2011, 05:57 AM #15
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Hi All

Ive been diagnosed in past year and things have seemed not very different after recovery from my initial attack.I had ongoing sensory loss on my left arm which I learned to accept.
But in the past 2 months , my head has gotten fuzzy ,I feel detached and disconnected with my children and colleagues.When people speak ,its almost as if I hear them through water!
My neurologist is very clever and nice, but I dont feel he understands my symptoms and I get the impression , my symptoms mean no different to him.
I also feel slow in my thinking and struggle with typed words.I also lost some math skills in the past month!..its all very strange.
I wish I could just lie down and let the time pass, but I have an exam to prepare for and I really can afford to fail.
I really want some advice about us being able to lead normal full lives...is this possible?I know everyone has problems , but I had no plan to feel physically so not with it at my age.Im still angry and sad this has happened to me.
Sorry to overload people with my first chat!
best
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Old 05-28-2011, 08:33 AM #16
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Hi Fuzzyhead and welcome to NeuroTalk!

We all have different and varying symptoms with MS. I do understand the cognitive challenges you're having, though. I think that's one of the most difficult "invisible" symptoms we deal with. It's confusing to not only us but those around us, too.

I will tell you that the more stressed out and anxious I got over it the worse it seemed. But, I didn't know how not to! Fortunately, I've learned to take these peaks and valleys in symptoms in stride and not get too emotionally disrupted about it.

Good luck on your test. Hopefully your nerves will allow you to take the test without too much anxiety.

There are lots of folks here with MS so please continue to come here and read and post. It helps to know you're not alone.
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Old 05-28-2011, 01:23 PM #17
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Welcome, Fuzzyhead. I'm sorry as to what brings you here, but am so glad you found us.

You could possible be in the middle of a flare and that's what brought on your cog fog. Make your Doc listen to your concerns and treat your symptoms accordingly.

I too hope your test goes well....all the luck for you.
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Old 05-29-2011, 10:53 PM #18
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Hi to all the new members. Welcome to Neuro Talk.

There are newbie people here, long-time MS people and those in limbo as we call it, because they are waiting to find out what is wrong and why they have so many unexplained symptoms.

We all had that problem at one time, and it is not fun getting tested and poked. But that is the only way the doctor can make a true diagnosis. You don't want the wrong one and get medication for the wrong one. It takes time.

If you have been new to the disease it takes getting used to that too. Whether you are young or older, it is always a shock and it never seems fair, does it?

Well, we find ways to get around our memory and fatigue problems, some helpful hints some can share with you on many symptoms or medications available. We will be glad to try to answer your questions, if we can. Welcome to all and nice to meet you.
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Old 05-30-2011, 12:26 PM #19
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OOPS, I missed Curt..how'd I do dat?

Welcome Home to NeuroTalk, Alaskan..
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Old 05-30-2011, 06:33 PM #20
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welcome to the new ones! Glad to have you here.
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