hello BAnna and welcome to NT,

i'm a retired (MS) RN; 35yrs NICU.
i hope to hear more about you. this is a great forum.

hi greenflower. i'm glad you found us. we're an informative and supportive bunch of nice folks.

i got a quick dx also. i'm thankful for that.
hope to hear more about you.

Hello
 

I do not have MS. I have a mitochondrial dysfunction that shares many of the problems also associated with MS. Recently I stumbled on a treatment that has improved my condition both physically and mentally.

I found the following while investigating the benificial effects that 5 mg of benadryl every 4 to 6 hours has had on my condition (mitochondrial dysfunction).

" Drugs for treatment of multiple sclerosis and
other autoimmune diseases"

"Researchers in Dr. Lawrence Steinman's laboratory at Stanford have developed a new strategy for treating or preventing autoimmune diseases with antihistamines"

I tried to post the link to info on this, direct from the Stanford site but was not allowed. *edit*


I have been putting this info out on the web for a bit now, *edit*


David Staup

Hello David, welcome. :)

Using Antihistamines in MS is not a new theory. It dates back to the 80s when a nurse discovered that it helped with her MS symptoms. It helped some but like all meds, so far, not all.

Thank you for your input.

Be well.:hug:

Ummm... help?
 

First, my name is Dianne and I am losing hope for getting SOME kind of answers so this is my very first time on any forum or message board, etc, so please bear with me. I also am no longer able to drive, have lost my car, home, internet access, pretty much everything, so I may be semi-sporadic getting any replies because I have to be driven to the public library and my poor mother with all my medical appts has enough driving on her plate.. Oh and a job! I also, at this time, should explain that I am (ok, WAS.... til recently) a Master's level nurse and I have tried every doctor I trust and have spent hours and hours searching the internet. Soooo, if there is anyone out there that can even point me in a new direction, you will have my gratitude.

Nearly 15 years ago I was diagnosed with Fibromyalgia, which at that time, barely anyone had even heard of, but with a wonderful dr and much trial and error with treatments and meds, I was able to retain my orthopedic nursing (which means a LOT of lifting and pulling, if you know what I mean). Then, beginning very mildly in 2009, I began to have short bursts of confusion, an occasional hallucination, and bouts of imbalance and coordination issues. NOT great symptoms to have as a nurse, by the way. Anyway, because it was all pretty sporadic and I had 2 children used to having a roof over their heads and all that other stuff I did to spoil them. But the problems becameworse and more frequent and developing many other lovely ones as well as lots and lots of lovely new ones until, after several "discussions" with my supervisor, I finally messed up bad enough that I was terminated in Dec 2010.

Over the past year and a half I have seen doctor after doctor and had test after test. I have good days, bad days. Mostly bad since I finally 6 weeks ago gave up my extreme denial and allowed my nursing license to expire. I now have nearly constant tremors, the confusion/hallucinations are worse, the vision, coordination, and balance issues so bad that I now require a walker even in my own home. And, more. As I am sure many of you understand.

I have had far to many tests, etc to get into all of that. However, if someone could help me with 2 of the last 3 MRI's (3rd one was only 2 days ago so I know nothing yet.) In May 2012, I had a brain MRI without contrast that said "volume loss and white matter disease identified, nonspecific but far greater than expected for age." In August I had a MRI of the cervical spine with and without contrast that showed "nonspecific but extremely prominent abnormal signal in the pons on the sagittal T2-weighted images, vast change from MRI dated May 2012" and then also said "minimal multilevel degenerative disease C 4, 5, 6, and 7 but the central canal and the neural foramina are patent." I know enough to realize that that second part is just degeneration and old age is catching up with me 15 years early...lol... But the first part, esp combined with the 1st MRI with only 6 weeks or so between is where I need help.:confused::confused:

I have, as I said searched and searched using different boards, different ways of wording my questions, and I am so certain that MANY of you have been through the same thing, so I would really appreciate any help you can offer...

Thank you!!!

Hi everyone, newbie here
 

New members to the MS forum please introduce yourselves here so we can welcome you! :)


Ok, I'm new. At least, at age 63 I'm new HERE. :winky: I'm Robbie. I used to be active, healthy, happy, pain-free. . . . .now I'm just working on being happy. I was diagnosed in 1992 with Hep-C and took Interferon-Alpha treatment for 4 months. Afterwards, I was blessed with Hashimoto's, Chronic Depression, Anxiety, M.S.--and the spiral continues. I worked full time up until last November, when I fell at work and broke my left shoulder and tore the rotator cuff. They let me go in December and I took early retirement. Am currently working with a lawyer to jump through the SSDI hoops. Ah, such fun:eek:

So, hi everyone!

Robbie

hi dianne and welcome to NT,

i am so sorry for your situation and i can feel your desperation.
do you have a good internist/pcp? could he refer you somewhere or pave the way for you to be seen emergently?

is there a large medical center in your area or a teaching hospital where you could be seen?

as i'm sure you know keep meticulous records for your file of test results and mri's. other drs will want those.

please keep in touch with us as you are able.
i'm praying for you. you seem to be handling this in an expert way.

i'm an RN too and had to resign in '05. i havn't lost as much as you but i understand.

Welcome Dianne and Robbie to NeuroTalk, nice to meet you. :) :hug:

hi robbie and welcome to NT,

i hope you get the ssdi. working with a lawyer is a good idea.
i wish i had done it the 1st time around but i have it now.

hope to hear more about you.

Hey yall, MS DX'd this year, still learning to coup with things. Most of the day to day things are back to normal. I've had 2 episodes over the last few years. My first one went away before I could see a nuero and he didnt order an MRI. Saw him again this year after my primary ordered an MRI and he sent me to a specialist at UCSF (4 hours away!) UCSF maybe far, but super people down there! Anyways, just trying to figure things out and talk to others. Thanks for having this sort of thing available!