You bring up a good point Chad. Night sweats are also a sign of lymphoma, which is believed to be sequel to Epstein Barr Virus that causes mono. In the early stages lymphoma has few signs. The night sweats are one of the few in fact.

Most M.Ds. use labs that are not Lyme experienced or sensitive.

Ignex is a lab with more acute testing to reveal what others miss.

http://www.igenex.com/misdiagnosis.htm

Some people go thru a dozen or more doctors and testing before reaching Igenx. Local labs like Quest, etc can have false negatives.

about two or so months ago the glands in my right armpit swelled for no reason and hurt only lasted a few days and went down right before my gp appt she said to me she could feel anything at that time but she said something about lymphoma but she said we will deal with that as a last resort. i had on my last blood/ 24 hour urine showed my serum testosterone level was low at 134 and the free testosterone was low at 4.7 i am some gel now you rub on your arms but if it is supposed to make you feel better it don't.

in addition i lost 48 pounds in two months for no reason it made eating not so fun, and every doctor to date says its anxiety and depression and yeas i have those but wouldnt anyone who lost there job and is in pain

Chad,mI think that the same herpes virus that causes Mono and other diseases, also triggers MS.

Put Mononucleosis and Multiple sclerosis in your browser and you are sure to have some hits..:)

Hello, I'm New
 

Hello

I would like to introduce myself. I was brought here by the MS Society website, and wondered what help and support is available for those of us in Limboland. I have already had my first appointment with the neurologist, who examined me and told me that the exam was fine and that it was benign but he wanted to send me for a scan just to be sure. I am now more confused than ever, not sure whether he meant I'm totally fine, or that I have benign MS. I still have trouble walking, sleeping and moving around, pain and numbness in all four limbs particularly down the left side of my body.

I wonder if any of you out there with MS or pre MS could advise me as to which part of the website would be best for me.

I also have Hashimoto's I've had it for years and we thought that I had ME/CFS several years ago, now the numbness and tingling has started in limbs, MS is on the cards.

Kind Regards
Denise

I'm New
 

I'm new here on this site. 56 YOWF with ms. First diagnosed as proable MS in 1984. Had CCSVI procedure at Stanford by Dr. Dake in November of
2009. Initial improvements in energy and getting up at night to go to the bathroom which . Never had improvements in motor skills. Struggling with the motor skills (especially walking) is very tiring. I try to limit my moving around
since it is a struggle. I use a walker at home and a wheelchair out. I'm not convinced I had immune system involvent since I never had RRMS or enhancing lesion on any of the MRIs I've had (first in 2006). Still seem to have more energy post procedure than pre procedure but motor skills are worse. Seems the autoimmune theory is what has gained the most traction and is accepted by both patients and doctors when the results of DMDs and the AI theory are questionable. I guess one would say there's more they do not know about MS than they do. I would say I'm just confused.

Welcome to both Denise and Mspatient..:) :grouphug:

Denise, I'm a left side MSer too. Thank God, I still have strength on my right side. Makes it easier to transfer from scooter.:)
Glad you found us and happy to have you.

MSpatient, Nice to meet you. We have a few people here who had CCVSI treatment and still have MS, but are having good symptom relief.:cool:
Come on in and be confused right along with us.:D

Welcome Denise and mspatient! Glad to have you here with us. Hope to see you around the forum. :)

New to Neuro Forum
 

:grouphug: It is great to find a forum that is specific Q&A to Neurological disorders or Neuro pain syndromes. I am not sure what to do next but appreciate being invited to say hello

HELLLLOOOO OUT THERE

Hello Jossy and welcome to you.:hug:

Well I guess I will introduce myself. Earl, a good friend IRL told me about this forum today. I live in Phoenix, AZ and am originally from Kansas City, MO.

I have a long list of health issues and some that are still being determined and perplexing doctors. Some of these issues have been several years in the making and I have gone through several doctors some that said its in my head and others that tried but didn't know what else to do. Things seem to finally be progressing toward answers.

Anyway I was diagnosed with migraines at a very young age and later vertigo to go along with it. In college was when I began having the tingling and loss of feeling in my hands, legs, and feet and falling was a very regular occurrance. My doctors didn't seem to think anything of it. For whatever reason after 3 years the tingling and loss of feeling almost stopped happening until 2-3 months ago.

In 2006 I was diagnosed with Hypothyroidism. In July 2008 Bipolar 1 Rapid Cycling and Severe Anxiety were added to the list. After many doctors I was diagnosed with fibromyalgia and CFS in October 2009. I have not worked since July 2009 when I fell asleep at the wheel and totaled my car by hitting the parking garage wall at work. At they believed me that I got in a wreck and couldn't make it into work because they could go look at my car. Sleep Apnea is also par for the course as well.

My sleep symptoms have eluding doctors now for several years. We just ruled out narcolepsy. Now wanting to explore other possible issues such as neuropathy or MS. Just going through a list of things and crossing them off one at a time I guess. Collecting way more diagnosis than I ever care to. So I guess I am here to learn more about MS while I am in the process of finding out whether I have it. I can benefit from all the wisdom here for sure.

Welcome to NeuroTalk HH, any friend of Earls is a friend of ours.:cool::)

Your symptoms sound MSy to me. I hope you soon have the answers you need to get the proper treatment.

Hang in there with us and have some fun and support while you wait, Patiently..NOT! :D

Hi, HH and welcome to NeuroTalk! :welcome_sign:

You know Earl so you must already know we're a goofy bunch! :p I'm glad you've decided to join us. Lots of good folks with lots of experience with MS here. We'll all help you as much as we can. :)

Hello there, not so new to Neurotalk, been here since before.
 

Alot of things are going on in my life. Don't know were to start. I have MS/this should be confirmed around Nov 2nd. I'm 47 yrs old and my name is Heather. There is more to this picture than I even want to take in. My problems began about 12 yrs ago and a few surgerys later and alot of meds. Lyrica is my newest I have been on for about six months and boy do I some issues with this. I am just afraid and feel like no one understands me. Some days I just want to stay in bed and forget but i can't cause the pain is always there and sleep.......What the heck is that? I'm not coping very well these days. I think if I was to ever have another surgery I would sign the paper to do not resusitate. My family is not so understanding. Gee, I really am down right now and can't express how or were my feelings are and what I'm going threw.:(

:hug: Heather :hug:

I'm so sorry you're going through such a difficult time right now. You've come to the right place, though. We've got a wonderful group of folks here on the MS forum and totally understand the need to vent. We understand, we care and we're always here to lend an ear or a shoulder or both. :)

Welcome friend
 

Yeah, I did show her this site and even encouraged her to join. I did "warn" her that once she admitted to knowing me IRL she might get mixed comments, clearly TT hasn't seen her first post. :)

She is a wonderful, giving person and her device dog, Jax, is equally awesome. Big ole teddy-bear. I'm glad she joined.

.. and thanks for being nice (so far) :)

Happy to have you back home Heather. Sounds like you are a little depressed. :hug: It's a symptom of MS and it is one thing that can be helped. See your Doc about an anti depressant. Not all will work for you, but if you find the right one, life can seem normal again.

I'm sorry your family does not understand, but it's hard to understand an illness if you don't feel it yourself, so come here to vent and get it out....we DO understand.:hug:

Thanks for the welcome!
 

Everyone thanks for the welcome. Yes, I do have an amazing service dog Jax. He was a therapy dog at a nursing home before I got him so he is extra sweet.

I just got my appointment with a neurologist and the big day is November 10th. I know a diagnosis can take awhile but I am hoping that it will be fast. My LTD disability ends in January and I will have absolutely no income at that time. My doctors have deemed me unable to work but LTD won't extend the time and I am still waiting for SSDI hearing date. I have no spouse or family I can turn to for help so it could get really interesting. Just taking it a day at a time and praying God will handle things as He always does.

My short term memory is horrible these days so I have been writing down symptoms as I think of them and I have filled a whole page on a notebook so far writing in two columns. Its pathetic when I am 29 to have so many but I try to have a sense of humor about it. Not much else I can do about it. Is there a good website I can go to that has a comprehensive list of symptoms for MS?

Welcome holdingontohope and Jax.

We hope you find the major cause of your problems and stop collecting all the other disorders along your waiting-journey. Many of us have other medical problems besides MS. As long as they are not life threatening I am sure coping skills will help too. Good luck on Nov. 10th and nice to meet you. :)
Join us in the mean time. Keeping busy helps. Lots to talk about here.


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Welcome back to you Heather. You do sound very depressed. Not good. Please see your regular doctor if you feel worse until your Nov. 2nd's Neuro appointment. Get some medication for depression. Lyrica can cause depression, so ask about that. It didn't work for me when I went off Neurontin and tried Lyrica. My sensory symptoms got worse and pain too.

I had to get off each of them, slowly. Good luck and nice to meet you. :)

The National Multiple Sclerosis Society has a helpful list.

http://www.nationalmssociety.org/sea...um=20&x=43&y=7



.

Hi, I'm Sandra,

I was diagnosed with MS 4 months ago. I'm scared and I feel angry, upset and alone at times. I'm supposed to start Copaxone in 4 days and I don't want to.

I have felt great since March- my Naturopath made me change my diet, we didn't know about the MS yet. Since then I feel wonderful. I work 2 jobs, both part time, I do zumba everyday and I'm quite fit now. I don't want to start the copaxone and get side effects when I've been feeling good with the MS diet. I also don't want the lipoatrophy, I've lost 25 kilos this past 6 months and I've suffered with anxiety, depression and enormous self esteem issues for 15years. I'm so scared, I've been crying a lot today.

I guess I'm just confused.

Hello Sandra and welcome to NeuroTalk from another Aussie. Please know that it's quite normal to have all those feelings you've been experiencing, most of us have been through the same ones.

I hear you about the Copaxone. I don't take any of the DMDs (disease modifying drugs) and I've been diagnosed for 34 years. If you are not happy to start medications straight away, then don't start. Tell your Neuro that you need more time to decide.

We have a very active MS Forum here with lots of wonderful caring people who have MS, or have symptoms similar to those of MS, and we're all here to lend you the support that you need. Please ask us anything you want and one of us will try to answer for you. If you want to vent, then we'll listen, if you want to cry, we'll comfort you and if you have funny to say,we'll laugh along with you.

Feel free to post about any of your concerns down under here in the main forum, and if you have something off topic you'd like to talk about, then come join us in the Stumble Inn.
Here's the link : http://neurotalk.psychcentral.com/forum102.html

I'm sorry that you have MS, but I'm ever so pleased that you found us here.

Hi Sandra and welcome to the board! :)

Hi Sandra, nice to meet you..:)

Oh boy do I understand the anxiety, depression and the cry at everything side effects of MS. I'm on Prozac, but I recommend Buspar to start...it's better for the anxiety at first. I love Prozac now, but it's a bit of a toe tapper at first. Talk to your Doc about it.

Stay with us, we're family who understand.:hug:

Thank you so much for welcoming me! I think I'll tell the MS nurse my fears and tell her I might wait till I see my Neuro in 4 weeks.

Hello. I don't know if this site is new from previous site run by Mass General which I used to use all the time. I know I got email from them saying that they were moving. Not sure.
I am 64 , retired RN who is caring for my hubby of 44 years who has MS. He has had MS since he was 21 yrs old ( now almost 68 , so MS for 47 yrs. He is bedfast, has fair upper body strength. He has very bad short term memory and now even long term memory affected. He talks very little and is tired out most of the time. He has had to quit driving and have help with care since he was in his 30's. He has been on disability 30 years. Our life has not been easy but I can always find someone else worse off. At least I had the time to finish my education and use it for his care and also work as long as I could myself before getting sick myself with Intersticial Cysitis , PAD and Osteoarthritis and having to retire in 2000. Complicating Gary's case is that he also has Crohn's Disease, diabetes, and has a supra pubic catheter which has been a problem blocking up. I may not be on frequently as I am kept busy and sometimes just too tired to do anything but rest when i can, but I hope I can check in and get advice and give some myself. :)

Welcome, Linda, so glad you could join us. MS is a nasty disease and can really be hard on the caregivers. Bless you for being there for him.

I hope you will come here often to chat. We are here for you and Gary.:hug::hug:

MS
 

Hi my name is Kathy and I am new to this site, not sure how it works. I am lookinf for answers about MS.

Hi Kathy and welcome to NT. It'll be pretty quiet here for the next few days but it's generally a pretty busy site. I hope you'll keep coming back. Reading and posting makes things seem not so bad. It's good to know there's someone else who understands. :hug:

Hello Kathy and welcome to NeuroTalk :)

Ms with out answers
 

My name is Kathy, I need to see why this is so hard to get answers, about MS from our doctors?

New Member
 

Hi my name is Kathy,looking for more answers for MS

Spasicity
 

I am new as of yesterday, looking for some answers about leg spascity, would like to talk to someone with it.

Hi Colleen, my name is Kathy I have not been dx yet, but have alot of the systems. My nero thinks I may have ms, first mri I had a few brain lesion but spinal tap was neg. Just had another mri after five years and I have alot more lesion, not active. My biggest problem is my legs. Do you get pain in the bones in your leggs and they seem to get will stiff. It is called spascisity, I told my nero that is my worry is with my legs. How long did your legs take to progress to where they are now. I am so looking for some answers. Take Care Kathy

scared
 

Hi my name is anna and ive had ms for 5 yrs

Vaccination
 

I took Gylenia for one month and then I was accepted into nursing school. They require that I take Vaccines ( Measles, German Measles and Varicella) I am super scare because those vaccines don't come as Killed virus, only live or atenuated. I am scared that it can cause a flare up. I caught a cold and it is taking forever to go away which shows me my immune system is week. I am not taking Gylenia since last week. Does anyone have been through this tough decision? Am I going to get sick if I take the vaccine?

Please, let me know ASAP!
Thanks and Regards!
Carolina

Hello carolinaassis and welcome to NeuroTalk.

Gylenia is an immunosuppressant and is probably the reason you are having a hard time getting rid of the cold. Those with MS do not have a weak immune system. Our immune system is compromised or "confused," it is attacking the wrong thing.

It is not recommended for those with MS to use "live" vaccines, however, there are circumstances where live vaccines are necessary. You should discuss this with your Neurologist for the best advice.

Vaccines
 

I was taking gylenia. I took for a month and now I am off for a week. I need to take varicella, measles and german measles vaccines. I am soooo scared. Does anyone knows if I take I will get sick, get the disease? By the way, I am with a horrible cold and not getting better.

Newbie Saying Hi
 

Hello -- I'm new here. I've been experiencing base-of-the-skull-pain episodes for years. I've been doctoring with a good primary doc -- referred me to a rheumatologist (whew...no problems there) but he discovered a complete tear in my left shoulder. Went thru shoulder surgery July 28 and the LOOOOONG recuperation. Now that I'm getting better the skull pain is returning. Bummer!!!!! My exquisite PT therapist ?thinks? I may have a pinched nerve at the base of my skull. She is recommending I talk to my doc about traction as it ?may? help. I'm looking forward to reading all your stories -- and offer support to all here............and find info for myself as well.

Husband of Wife with MS
 

Hi all, my wife has had MS for 14 or so years and has gotten significantly worse recently, and I am here to read the experiences of other people who are supporting loved ones with MS, and perhaps to seek advice now and then. It will be good to hear what others have gone through, what helps them, and so on.

Thanks,

Hawk