Im in n.e. Ohio, Youngstown to be exact

New member- is it a blessing in disguise?
 

I found this website because of a google search on MS and High Blood Pressure. I'm only now beginning to experience some of the "typical" MS symptoms or at least knowingly experience them. I actually think MS may be a blessing in disguise. It has had me reevaluate priorities, love my kids and husband more and I have learned that asking for help is o.k. For the first time in 8 years I took more than 5 consecutive vacation days and ignored work completely. I'll never not be a "type 'A'" personality but I think I can change to an A-. What about you?

Hello Mcsisters and welcome to our community.

Managing stress in this world of ours is an important and beneficial way to promote health and well being; especially when dealing with diseases like MS that seem to be amplified by stress.
How one does that seems to be as individual as the manifestation of MS and I'm happy that you are taking steps to explore your options in that respect.

For me, voluntarily taking time off work to rest was difficult at first, but when the body just couldn't do the work required, it became a necessity at times...and the frustration that goes with that reality can become its own stress.
Finding things to do that don't tax the body when one is used to working but can't, helps to manage that secondary stress.

Please keep us posted on how things are going for you.

With love, Erika

Welcome home to NeuroTalk Mcsisters, where we all understand and empathise with all you are going through.

I was the Queen of type A's. I have given up my title and succomed(sp) to a lesser position.:D

Come in and join us..:hug:

Hi McSisters.:)

See you on the board.
ANN :)

Hi ya'll
 

Hello group. I am Kitty Berry, southern girl transplanted to DC via my Air Force husband. We have a sweet 11 year old daughter with a myriad of health issues that are a mystery. 4 years ago she started experiencing internal tremors that made her just crazy. We finally found a Neurologist that started her on Requip that managed the tremors. We thought we were home free. Fast forward 2 years and relentless global sharp shooting pain hits. She has to be hospitalized for Ketamine infusions to get it under control. Now she has pins and needles anytime she experiences temperature changes anywhere on her body. She does have Type 1 diabetes. A muscle biopsy showed Type 1 muscle fiber hypotrophy, she has 2 unknown Mitochondrial mutations, white matter changes on her MRI, 2 normal EMGs, and now a normal skin biopsy. The Neuro today told me she is Psychosomatic. Needless to say it ticked me off. Just because she is difficult to diagnose doesn't mean she is crazy. We are so desperate for help.

Hello tikiberry and welcome to our community.

I am so sorry that your daughter is having these symptoms and that you are having trouble getting some answers. Unfortunately many conditions that affect the nervous system can mimic MS, including nutritional deficiencies, endocrine disorders and toxicities. That makes diagnosis of the cause of neurolological symptoms difficult so quite often a few are given until the correct one is found.

Here's a shot in the dark though:
You mention that your daughter has some mitochondrial alterations and is also diabetic; so I'm wondering if she is consuming Aspartame.
A small percentage of people (more so in children), are very sensitive to Aspartame and/or its metabolites, and even with ingestion of small amounts may develop symptoms like the ones that you describe.
It might be worth checking it out.

Here's a link:
http://voices.yahoo.com/aspartame-po...oma-38555.html
QUOTE: "The symptoms of Aspartame poisoning are known to mimic Multiple Sclerosis, Lupus, and also Fibromyalgia (spasms, shooting pains, numbness in your legs, cramps, vertigo, dizziness, joint pain)."

Hope that you get some answers and that your daughter overcomes her health challenges.
Please keep us posted.

With love, Erika

Welcome to NeuroTalk Tikiberry. I hope we can be of some help. Of course, to some Docs, we are all psychosomatic.:mad: If they aren't smart enough or interested enough to figure it out, then they pull that one.:rolleyes::rolleyes:

Get yourself another Neuro, who specializes in MS illnesses. Erika's suggestion is a good start to your own investigation. There are many Neuro Illness that mimic MS, so be patient, but insistant.

Come back and let us know how it goes for Daughter and you.:hug:

Hi folks! :-))
 

Hi folks,
Just signed up and wanted to introduce myself. Diagnosed with myofascial pain and fybromyalgia. Have not to good days and bad days.:( Hoping to see if any other sufferers have this.......some days I can hardly walk? Is that usual with MFS?:confused:
Look forward to learning more from folk on this site.
Lizzy:)

Hi Lizzy :)
You have posted this on the MS (Multiple Sclerosis) forum but I think you may be wanting our Fibromyalgia forum? here it is http://neurotalk.psychcentral.com/forum12.html