hello MS Dx,

i'm not surprised to hear your story. some docs have it and some don't.
2nd opinions are always a good idea. i've been on copaxone for 10 yrs and my neuro said i could stop. i've been very stable the past 10 yrs. i hope i don't end up with a relapse like you did. time will tell i guess.

but welcome. i'm glad you've joined us.

To M.S. or not to M.S. that is the question.
 

Hi
My name is Mike.
I live in Wales next to England U.K.
I have M.S. and I like to talk and live live to the full.
Just saying Hi to one and all.
I have placed this web site in my book mark bar, may be I can help in some way, and may be you can help me also, time will tell.

Stay happy one and all.
Mike

Hi Freysgirl and Mike. So glad to welcome you here to NeuroTalk.
So sorry that you both have been DXed with this lousy Disease.

This is where you should be. I hope we can be of comfort and help
to you.:hug::hug:

Hello
 

Hi All,

I'm Sam from the UK.

I'm 31 and I'm in the middle of the testing process to see if I have MS. It's been really helpful looking over this forum over the last couple of days so thanks.

S.

Welcome SamL:)

I wish you well with the testing.:hug:
Check in with us after your Appt. and let us
know how you do.

Thanks Sally!

Will do.

Anybody here with Neuromyelitis Optica?
 

Hi everyone. I know Neuromyelitis Optica isn't MS but this is the closest forum there is here. Some members suggested I try here.
I am waiting on test results for NMO. My symptoms related to pain seem to be getting worse. And it's a weird kinda pain and is accompanied by the feeling of "heat" either in the skin or joints. It was thought to possibly be MS until the doc got a better look at the spinal lesion.
I live alone and taking care of myself is getting very hard but when do you decide it's all too much? And what comes next, a nursing home? I'm really discouraged now. I've been having trouble for a long time. I have a Neurologist, Psychiatrist, a Counselor and Pain Specialist, but none of them actually "experience" anything I'm dealing with. That's why I'm here I think. I'm really just stumbling around here. I've never joined a site like this with "forums" and I haven't figured out how to reply to a response without getting an error message. I'm probably just not doing it right.
Anyway....Help?!

Once again...Welcome to NeuroTalk, Purple Paisley :)

I would like to re-post the link for The Guthy Jackson Foundation. All you need to do is click on the link to get to the website. :)

http://www.guthyjacksonfoundation.org/

The Guthy Jackson Foundation has a lot people, with NMO, who woukd be of help and support. Some with NMO also frequent MS forms.

To reply: When logging in click the "remember me" box, click "post reply" and when finished click "submit reply." You need to have a certain amount of posts before you will be allowed to post links. If you are using the "quote reply" just delete the link in it, if any --- until you are able to have links in your replys.

:hug: No. Once your Neurologist figures out what is wrong treatment will hopefully improve how you feel :hug:

I don't know what medications, if any, have been tried for your pain but treating neuropathic pain (nerve pain) can be trial and error. Usually regular pain medications do not help with Neuropathic Pain. Some antidepressants can help, Neurontin, Lyrica, Benzodiazepines...it just depends.

I know other members will have some ideas, thoughts or suggestions :)

HII was told i have MS in 2011, an i am upon this website an im glad i did.I can finally talk to people who are going through similar things like meeeee :) :grouphug:

Hello Tenice and welcome to NeuroTalk.:hug:

So sorry as to why you're here but glad you found us. I hope
you like it here and I hope we can be of help to each other.

Everyone here understands what you are going through,
so don't be afraid to share. Tell us a little about yourself.:)

Happy to have you here.:)