Hello Kellie and welcome. So glad you found us. Ugh, the diagnosis process begins.
I hope it happens fast for you. It sounds like your Doc has found signs of MS.

You are in the right place for understanding and support. Please let us know
what your Neuro says.

Good luck and good wishes..:hug:

My son most likely has MS
 

Hi,
I just signed up. I am a mom to a 25 yr old son who most likely has MS. He just told me about 2 wks ago and I have been reading books and webpages, watching videos, and learning all I can about MS.

About 6 yrs ago, Joel was have severe headaches and he went and had an MRI done. He was told by the neurologist that all indications pointed to MS and that Joel should have further testing. Joel did not tell anyone. He did not get any further help because he was not having any other issues at the time. Now, things are much different. I knew something was wrong during the last year and I finally had to confront him about it. I was afraid he was on drugs, so I made him tell me. He said he was sure he had MS.

Joel is walking with a cane and has pain, tingling, and numbness in his feel and legs. Extreme fatigue and insomnia are big issues. He is very forgetful and he went from 185 lbs to about 160 lbs within about a year due to nausea. He is so thin. He has trouble writing and has sensitivity to heat. There are other symptoms. He has moved to Colorado because the only thing that seems to help ease the pain in medical marijuana which he cannot get here in TN. It's hard to be so far away from him and not be able to help him more. He has difficulty keeping a job due to the symptoms. With no medical insurance, he is not seeing a doctor and has not gotten a definite diagnosis yet. I am hoping there is help for him out there somewhere.

Anyway, that is our story. I'm glad to be here.
~Gypsy

Hi Gypsy and welcome to NeuroTalk.

I know it's got to be hard being so far away from him. Have you told him about this site? He could get some great support and advice here.

I hope he will be able to get a diagnosis from a Neurologist and start some sort of medication. There are lots of programs for those who cannot afford the high priced DMD's there are for MS.

I just started Tecfidera and am on the Active Access med program because there is just no way I could ever afford the $5K it costs for this med.

I hope you and your son continue to come here.

Welcome Gypsy.:). I hope your Son comes home, where he'll have the support,
he needs and deserves. I would not be a happy camper, without my DD and
SSons close.

I hope things settle down for him and for you.:hug:

Kitty, Thanks for the welcome and the kind words. I will check on Active Access.

Hi Sally,
Thank you for the welcome! I love your little quote about the world sucking...lol. I did tell Joel about this site and I will be back often. :)

New to MS Forum
 

:grouphug:

I just joined this group, although I'm not new to MS. I've had Primary Progressive MS for 20 years, so I can understand and sympathize with many MS patiients.

As time goes on, maybe I will be able to help others find ways to deal with MS symptoms that I, too, have experienced.

Are there other PP and SP folks on this forum? I'm looking forward to getting to know you all.

msbluis (Ms Blue Eyes)

Hi Gypsy
 

About 6 yrs ago, Joel was have severe headaches and he went and had an MRI done. He was told by the neurologist that all indications pointed to MS and that Joel should have further testing.

Joel is walking with a cane and has pain, tingling, and numbness in his feel and legs. Extreme fatigue and insomnia are big issues. He has difficulty keeping a job due to the symptoms. With no medical insurance, he is not seeing a doctor and has not gotten a definite diagnosis yet.

~Gypsy

I'm so sorry to hear about your son's health problems, but by his not going back to the doctor for further testing, he might be wrong about his self-diagnosis. Although I agree his symptoms resemble MS; they could also have other causes. For instance, a stroke could cause severe headaches and weakness. Age 25 is young for an MS patient. Not unheard of, of course, but most MSers are dx'd between age 35 and 55. Is there MS in your family history? Is he an only child?

I feel for you with him so far away and you wanting to help him. I wish I had a better suggestion. He's 25. He's on his own. You can't help someone who doesn't want help, unfortunately.

Best of luck,
Karen
msbluis

Hi.
 

Hi...I'm Maura. For the last 5+ years I have had several surgeries (to "fix") the numbness/tingling in my hand/arm. I was diagnosed with Thoracic Outlet Syndrome and had a rib resection/scalenectomy in Boston at Mass. General.

Well, long story short, since January (TOS), I have gone downhill. Extreme fatigue, numbness/tingling/burning has spread to my feet and my other hand. Pain in joints, legs, arms...and so I went to my pcp. Ran a bazillion tests (neg-same as they've been for years), and she referred me to a neurologist/rhuem.

Several mri's later, they have found several lesions, which prompted an LP. That showed many of the O bands. All of this combined with several other symptoms has led me to a larger neuro practice. Again, many tests over the last few months...finally getting somewhere. Oh, Rhuem diagnosed me with Fibromyalgia and Miofacial syndrome.

Neuro is saying probably RRMS, however wants a thoracic mri. Also wants testing done to see why I have had bladder issues since I was in my 20's.

I'm a mama to two awesome kids (17,13) and happy wife of 23 years now. I taught Elementary School for over 22 years, and was a principal until December. Unfortunately, after the surgery in January, I had to leave my position. No, I'm not really upset about that part anymore, I just want this long road to show some kind of answers.

I'm hopeful as the mri's/lp showed something at least. Meds changed slightly, but as they have often spoken to me about ms, I'm thinking that's most likely going to be my life going forward.

Well now, not my LIFE, but you know what I mean. Sorry for my lengthy post...it was actually a bit cathartic getting it all out, looking at those words.

Looking forward to meeting you all! Thank you for any and all advice!

Blessings,
Maura

Welcome to NeuroTalk, Maura. :)

Sorry for the reason you're here but you'll find a lot of support and friendship here.

Hope to see you often around the forum. :hug: