[SallyC]

Welcome Home Mary, nice to meet you.

[marypanther92]

Thank you Sally

[Kitty]

Hi Mary and welcome to NeuroTalk! Sorry for the reasons that brought you here but you'll find lots of knowledge and compassion here. Join right in wherever you feel comfortable and let us know if you have any questions.

[JuneT]

Hello, everyone,

I've been diagnosed with MS since 1977 but it's these last few years that things seem to be happening. I have a marvellous hysband and getting out and about in our bright red Lotus really does improve the day even when members of the public do seem to question my parking in the disabled bays...until theysee my very jazzy stick, that is. At the moment it's the neuropathic pain that is causing the real pain...I sometimes wonder if the GP can ever really know just how much pain I'm in and to tell my husband that he understands my frustration never comes near to it! Anyone have any good tips fro the pain..we've tried all the "accepted" drugs but a hot wheat bag is as good as anything else!

[Kitty]

Hi, June! Welcome to NeuroTalk.

[SallyC]

Hi June, welcome to our little nest.

I beat ya by a year, DXed in 1975/76. I'm lucky, don't have chronic nerve pain, but I have experienced nerve pain, know what it feels like and it is horrible.

Glad you join us, come right in and have a lot of support with a little fun, too.

[gpridgen46]

Hello, new to the forum. Have MS and first episode was about 2 years ago, put me in the hospital for 4 days and then lots of tests afterwards.

Now having more symptoms on a daily basis for the last few months. Left foot goes numb, legs feel like weights, or wobbly with tingling and pain. Brain fogs and speach issues. Potty issues are also tons of fun! And I have squiggly lines and "junk" flowing through my eyes. But I know that these symptoms will all go away in time. Had 4 MRI's and seems like there were no new Lesions. But since the episode is still going on maybe in a bit they will show up or they are being little rascals and hiding out somewhere. My neuro treats a lot of people with MS so feel comfortable with her. In fact I should be calling her to let her know about the eyes since that is new. And if necessary she will send me to Duke for more evaluations. She has offered but I said no for now. But with this one, I may really need to go over there. I know that I really need to just go home and rest completely for a few days. But with everything going on it is hard to do that.

Currently I am on only Gabapectin 900 MG every 6 hours and Bacoflen 10 mg every 6 hours. Seems to help a bit. We have not started any other MS drugs at this point. I believe we are in just watch and see so she knows what type of MS I have.

Glad I found this forum and hopefully will be able to share and learn about this disease from others.

[SallyC]

Hi Gp, welcome to NeuroTalk.

Your Symptoms all sound ever so familiar. We can all empathize, as most of us know exactly what you're talking about.

Stay with us, learn and enjoy.

[babycakes]

Hi. I've enjoyed rrying to eading this for the first time... I have M.S., R.A. and am currently at a point where it's taking everything I have in me just to continue to work my very full time job. Between the MSFatigue (I like the 'one word' suggestion) , the cognitive issues and the falls where I break things (wrist, ankle, lumbar/sacral, knee, my pride, etc), things are not going very well these days.... Folks at work have no idea the amnount of extra energy I'm having to exert just to 'cover up' the fact that I'm having such challenges. Know what I mean?

[SallyC]

Hi Babycakes, nice to meet you. Yes yes and yes, I know what you mean.

Welcome Home..