[cathy36]

Hello everyone! I was diagnosed w/ MS April 2012...been on Avonex for 7 weeks now...at the full dose for 3 weeks, titraited for the 1st 4...these side effects are CRAZY!! Has anyone had this happen...they get the injection, feel crappy for a couple days, feel better, but suddenly feel crappy again for a few hrs?? Especially facial flushing?? Scared me to death!! My one Dr feels I had an allergic reaction, whereas my neurologsit says he thinks I picked up an infection. Well...it only lasted (the flushing) for like 2 hrs...then gone! Thanks for any advice...

[SallyC]

Hi Cathy, welcome to NeuroTalk..

So sorry for your MS DX. You've come to the right place for support and friendship.

I was on Avonex for 7 mos. The sides never diminished and I chose to stop it. It was a quality of life decision.

I don't know what to tell you. If you think ur Doc is right about you having an alergic reaction, then stop and maybe try another one?

Good Wishes..

[dilemmantrauma]

Just saw this MS specific "new member" thread.

I have MS, diagnosed in the first part of 2010, symptoms dating back to '95 or so, just never serious enough to warrant going to the doctor as far as I could tell.

With no insurance, if I didn't need to go to the ER, the doc was never really an option for me until MS hit hard at the end or '09.

Anyways, hello.

[SallyC]

HI Dile, welcome to your new home.. So sorry for your DX of MS but, glad you could join us. Please make urself Comfy.

We are here for each other, when noone elsr understands..

[thedelacruz5]

Hi, Im Alicia, i was diagnosed april 2010 with RRMS.
I cant decide if I should go to the hospital or not. I need some advice...
Im having a major flare up. The left side of my face went numb a month ago, and a week ago, I began experiencing Optic neuritis in my left eye. Now I feel like im getting a cold, and 2 days ago I began experiencing Vertigo. I feel super weak and feel like im gonna drop to the floor every 10 min.
My doctor seems too busy to get back to me, he did order an MRI last week and Ive taken 5 days of oral steroids, but things are just getting worse. I want to avoid any permanent damage to my eye. Any advice?
Thanks

[SallyC]

Hi Alicia. welcome to NeuroTalk..

[tenthreetwelve]

Hi everyone, my name is Terri, diagnosed w/ MS yesterday 10-3-12.
Cried me a river yesterday..and a lil this morn.
Onset of my journey was 8-24-09 w/ numbness beginning on right toe, then left toe, then slowly day by day working itself up to my waist during the course of approx 3 weeks.
Then thankfully it all began to reverse week by week from the waist down this time & all sensation came back except for residual loss of feeling from knees down, I know am officially a Weeble as I know wobble.
MRI's showed lesions, 1 on brain, other on t-spine, no o-bands.
Diagnosis was Transverse Myelitis.
Thennnn fast forward to a lil over 3 years & approx 2 months ago I had a harsh spasm in the right arm for days on end, after it ended my upper right quadrant was numb, stayed that way for 2 weeks then all feeling came back.
Neuro visit called for more MRI's & another dreaded LP, lesions show no growth, lots of changes in c-spine but no lesions & the results of the LP came in yesterday showing O-Bands & something about my eyes, I was too shocked/scared to ask/say anything.
Dr asked if I had any questions & I simply nodded No thru my sissy tears & of course have now thought of a zillion questions to ask her.
Now I have to have a Evoked Potential ? test & some special IGMCNO (i made those letters up, i could barely hear her thru all the thoughts running rampant in my head) blood test for my eye or brain ? Foggy here now.
And they have a nurse coming to show Hubby how to give me shots of Avonex because these hands cannot stick a needle into this body...I decided !
And I'm confused, who says I'll have another spasm incident & need meds now ???, I'd never been ill a day in my life until 3 years ago so all this is so new to me.
Sorry for the long long tale, so much to read, learn, about MS, TM seemed like a cake-walk now.
Off to read more of the message boards now, thank for you for listening ~ Terri
p.s. hope i posted this in the right spot, in the right way

[Koala77]

Hello there tenthreetwelve and welcome to NeuroTalk, but I'm sorry that you needed to join us here.

First, let me say BREATHE! Take in some oxygen and breathe. It's an awful lot to take in at once but please know that nothing is urgent at this stage, so you can take a little time to take stock, collect some information and make some valid decisions about your ongoing care. It doesn't matter much whether you start medications this week or next, so don't panic.

Please take a little time to read and ask questions. We're a very friendly lot here and you will always find an understanding ear and a shoulder to lean on.

I hope that helps a little. Sending some understanding cyber hugs ....

[coraanne]

Hi my name is Jenna and I live in SC at the base of the Blueridge Mtns with a bunch of sheep, chickens, 2 dogs, a 7 year old and my husband.
I was first diagnosed at age 26 in 1998 but after years of doing well on avonex and never having a brain lesion they took away my diagnosis. I got sick again and a cervical lesion got me rediagnosed, but no one was really sure until 2011 when a MRI showed 10 brain lesions. Everyone is on the same page finally and I am on Tysabri now, but I have had repeated infections soooooo, the Neuro wants me to stop taking it. I feel like it is the last chance drug and I am scared of going off of it. But we will see what this month brings!

[SallyC]

Welcome 10/3/12. Is that your measurements, your IQ orhow long you're staying? Nice to meet you. Please do come on in and join us

Welcome Jenna, nice to meet you too. You shouldn't be on TY, if you have an active infection. Try something else.