[SallyC]

Welcome home Laura, nice to meet you. So glad you could join
us, although, so sorry as to why you are here.

Come right in and join us anywhere and be sure to check into
the Tysabri thread and The Stumble Inn.

Welcome from all of us..

[littletexan77]

Hi, I'm James. I've been here for about a week now and just found this thread. There's a lot to this site! Anyway, it was the troubles I'm having with my SCS implant that brought me here. I have Spondylolisthesis and Spondylosis in 2 areas. I am also waiting on confirmation of Peripheral Neuropathy. Long story short, car wreck in '03, year of recovery, current surgeon says my PT back then "did it wrong" and that my gait is "the worst I've ever seen", and that I am "walking wrong". How do you walk wrong - if I get from point A to point B with a cane or walker and I win! Anyway, the SCS is supposed to get me through therapy and re-train my muscle memory to teach me to walk, stand, sit, and even lay down properly. LOL After that, I have a surgery to fuse L-1 and 2 followed by recovery and rehab and then a surgery for, I think, C-1 and 2? Don't recall. Anyway, it's about a 5 year road to recovery and my surgeon says by then I will be better than I am now. He did admit that he can only fix my back, the nerve pain and occasional bouts with neuropathy will remain to be seen with a 50-50 shot of going away. Also, I have a 10 yr old with mild CP, dysgraphia, and autism. The public school failed us, and since I am stuck at home anyway, I home school him. I also have a 3yr old, a 2yr old, and a 1yr old. I DO NOT RECCOMMEND DOING THIS! Gratefully, I am in a position where I could afford to hire live-in help - I don't know what I would do without her! I can't pick up my children or play on the floor with them, which breaks my heart. Most of the time, I can't even change their diapers, dress, or bathe them either.

[ANNagain]

Welcome to NT, Laura.

We are glad to have you.

Just jump in.
ANN

[ANNagain]

Double post.

Sorry,
ANN

[misswriter]

Hi. <waving from Canada> I'm Kim and I believe I have undx'd MS which began a year and a half ago. My battle to get dx'd has been frustrating.

[ANNagain]

Welcome Little Texan (James) and misswriter.

See you around the board

ANN

[NurseNancy]

hi james, i'm glad you found NT.
it has a lot to offer and many forums where many people can help you with
your problems and offer support.

[NurseNancy]

hi kim,
welcome to NT.
what has your dr been doing to try and dx (diagnose) possible MS?
what else is he looking for?

hope to hear more about you.

[kemokimo]

I am 69 and have had a burning peripheral neuropathy in my feet since 2007.
I live on the Texas coast and I used to be an avid fisheman with a 23' center console outboard boat. I love the outdoors and there are many places I have yet to visit and scenery I have yet to enjoy. The last was the Grand Canyon. I had to bring a wheel chair. Not exactly how I invisioned my trip before this crippling malady.

A year ago I was also diagnosed with spinal neuropathy. That is arthritis of the lower spine. I swim for exercise and to reduce the pain in my back. Walking would also reduce the pain if I could go far enough. Between the back and the feet I spend too much time on my back. Not good.

The only relief I have gotten from the feet is from Lyrica. Unfortuneately I cannot tolerate the side effects. Ditto for anti-depressants. I am now searching for vitamins, supplements, etc. that might help. Two I recently stumbled across are alpha lipoic acid and benfotiamine. What do you think? Any more suggestions?

[ANNagain]

Hi Kemokimo. Welcome to the board.

Asking your questions below might get more answers. I don't know much about supplements. Sorry.

Glad you are here,
ANN