advertisement
Reply
 
Thread Tools Display Modes
Old 05-28-2011, 02:50 PM #1
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by mrsD View Post
Doing the homework is complex and time consuming and that is why I do it for people here. Since I retired I have more time.
And she is a great one to get good, reliable information from. I know because I bug her on almost a daily basis with some kind of question!

My quality of life has greatly improved since starting LDN and my supplement routine. I wouldn't be without it!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (05-28-2011), mrsD (05-28-2011), SallyC (05-28-2011)
Old 05-28-2011, 03:29 PM #2
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Must you get tested for deficiencies first before taking, say, D3, or can you simply take 2000IU daily and benefit? I don't get any sun anymore so I probably could use some D3.

What do you think, Mrs D? And have you been tested, Kelly?

They also say not to take too much A when you are taking D3?
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (05-28-2011)
Old 05-28-2011, 03:46 PM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

For those not tested, the accepted amount is 2000IU D3 daily.

You buy the single D3 supplement...NOT cod liver oil with A in it.

But say you test at 20... take 2000IU... in ideal situations you might raise to a level of 40. That would still be low for an MSer.

If you do not go outside much...you won't test very much in D.
There is one person on the NT boards who tested at 3. That is pretty scary. The MS recommendations are higher than for others. People like me are given 50 as a goal. My doctor wants me at 70.

MS patients should get screened for B12 (low B12 mimics MS symptoms) and D. The data are clear on this.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (05-28-2011), SallyC (05-28-2011), Twinkletoes (05-28-2011), TwoKidsTwoCats (06-01-2011)
Old 05-28-2011, 03:50 PM #4
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Last month I tested at 55 for Vitamin D.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (05-28-2011), SallyC (05-28-2011)
Old 05-28-2011, 04:34 PM #5
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default

I take B12 and my numbers got to within normal range...
I take D3 but my numbers were also normal, but I feel more won't hurt.
I take Cranberry and Ester C to combat UTIs, but I still get one every three months like clockwork
And I take Juice Plus, which is basically ground up food...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (05-28-2011), SallyC (05-28-2011)
Old 05-28-2011, 04:41 PM #6
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

I take 1000 IU of D3 daily, my D level was 154 (should be > 75!) - this based on Canadian measurements (if they differ from the USA... I'm not sure what 'measurement' is used).

I've taken that much D3 for 3 years now, my doctor was very pleased with my overall results. I had a full work up done for vitamins, minerals, etc a couple months ago.

Everyone's different, I was never shown to be deficient in any area, so it's definitely worth getting tested, so you aren't ingesting more pills etc unnecessarily.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (05-28-2011), SallyC (05-28-2011)
Old 05-28-2011, 04:55 PM #7
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Canadian is divided by 2.496= 61.70 US units. ng/ml

A good reading.

http://www.unc.edu/~rowlett/units/sc...ical_data.html
http://www.vitamindcouncil.org/news-...d-level-units/

Within the range of 50-80ng/ml US.

I get alot of sun in summer. And take 5000IU D3 during the rest of the year, and tested at 43.

I've increased to 10,000 IU every other day with 5,000 on the alternate days. Will get retested in Oct.

Not everyone responds to oral D3 and not everyone can make D3 from the sun depending on age, or use of statin drugs etc.

So testing is the only way to get a good idea of what is going on.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (05-29-2011), Kitty (05-28-2011), SallyC (05-28-2011)
Old 05-31-2011, 10:34 PM #8
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Default

I take certain supplements which work to help symptoms, or almost eliminate some.

With 800-1000 mg of Magnesium, prescribed a quarter century ago by a neuro, I have no jerks or spasms in my back or lower legs. Without, I have these spasms and jerks all night. When I went to the ER for an intestinal block, they kept me overnight, and I was without magnesium. i jerked and spasmed all night. They had no source of magnesium.

With 250 mg of non-flush niacin, I have eliminated the blind episodes I had. I used to get essentially blind for ten minutes (the first two times it was totally blind). I would recover after ten minutes but that wasn't fast enough for any doctor to observe it. Now
I may have a non-pain migraine once in a while, but no blindness. A chemist told me it opens the vessels.

I now have to be sure to take Calcium too for the leg jerks. I have taken that even before magnesium, but as I age I find I will get the jerks if I have forgotten the Calcium,
even though I take the magnesium. I take the two separately.

At one point I was having almost-jerks in my legs even with magnesium, and the chemist I know ( a friend) recommended 100 mg of B1. With this, I didn't even have the almost-jerks. As I age, will there be more things I need to stop it?

In my first bout of a-fib, five years ago, I was found to have low potassium. Taking 20 MEQ with my low dose propanalol mostly regulates that. Even in the hospital with my first bout of a-fib, which lasted hours until they got the potassium report back, I normalized soon after the potassium and did not have to be cardio-converted.

I take Lutein Eyes for eyes to avoid macular degeneration, which both parents had when they were 15 and 10 years younger than I am now. I do not have it.

My D3 level went up when I took D, but I have no proof that it helped anything. I was
very low at 15. It went up to 85% of normal, whatever that is (the doctor just gave me
the percentage). I avoid as much sun as possible due to having Porphyria. My sun avoidance didn't help my skin cancer until recently--no cancers now for 3 years. I used to have two a year--but I don't know if that could be related to having more D3, if D3 helps the skin? I only take 600-800 mg of D3 per day, fearing I might stir the Porphyria, because it reacts to hormones, and D is a hormone.

I used to have ridged nails, but since taking a gelatine product, only one tsp a day, that
has gone away and nails do not break.

I take a few more things, like a low dose Multiple Vitamin without Iron, but I don't have any proof that this does any good. The others have all been demonstrated to bring improvement.
Mariel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (06-01-2011)
Old 06-01-2011, 04:55 AM #9
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

In the US the lab ranges show 30 at "normal".... 85% of 30 is 25.

I think it would be helpful for you to get the number result, from your doctor's office, so you can know for sure where you are.

When Vit D is low-- calcium/magnesium balance gets out of whack.

The new research shows that normal range should be 50-80ng/ml.

Most of the lab ranges reported for B12 and Vit D have not been adjusted to reflect the new data.

Also, the rise in skin cancer that is so disturbing today, is slowly being examined and is thought to be a lack of Vit D at the root of it all. Vit D seems to be a scavenger for cancer cells. Having good levels, seems to prevent other cancers too, in the studies coming out.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (06-01-2011), Kitty (06-01-2011), SallyC (06-01-2011), tkrik (06-01-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Vitamin B12 level is very high, but not taking B12 supplements cvmoss New Member Introductions 7 04-18-2012 02:24 AM
NEW ...DNA testing for vitamin supplements... mrsD Peripheral Neuropathy 2 05-12-2008 11:05 AM


All times are GMT -5. The time now is 03:58 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.