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Old 05-30-2011, 10:41 PM #1
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Mrs. D. Going right to the med closet now to get out the magnesium lotion. Thanks some more.
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Old 05-31-2011, 05:10 AM #2
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Lightbulb

There is another intervention for burning feet... Unlike magnesium it does not really CORRECT things, but it will put the burning to sleep quickly.

Biofreeze gel. This is a fast acting gel with 3.5% menthol and an antioxidant more potent than green tea (Yerba Mate-- aka Ilex) which penetrates and stimulates the cold receptors . We have heat and cold pain signaling in our bodies. The cold ones take precedence and override the heat ones which seem to mis-fire often. So the net result is the burning stops.

This eventually wears off, but it lasts quite a while, at least for me. I think the base gel is important because Biofreeze only has 3.5% menthol in it. Other things are much higher including the new Precise cream from Tylenol... but they do not work the same way Biofreeze does. The gel base is non- greasy and goes in quickly. It is quite an elegant product.

Now available on Amazon and other online outlets for less $$ than it used to be.
http://www.amazon.com/Biofreeze-4-Oz-Tube/dp/B0014WK260
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Old 05-31-2011, 07:37 AM #3
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I am going to invest in a foot bath and some epsom lotion Thanks! I did a 3 mile walk today and im beat! my legs are wobbly and sore and I dont know if I can build enough stamina to do that MS walk or not. Whew!
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Old 05-31-2011, 08:01 AM #4
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Lightbulb

hint: do NOT use hot water in the bath.

Only lukewarm or cool with the epsom salts. Don't want to stimulate those heat receptors!
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Old 05-31-2011, 01:46 PM #5
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Dejibo, three miles! That's very good!

Mrs. D. I got so busy I forgot the foot stuff, but I'm going to get it out today. One reason I forgot is because my feet are less painful today than average, but I still need it.

I would be afraid to use the menthol even in very low percentage. It is one of the worst
things for Porphyria. It is in eucalyptus trees, and I discovered how bad those were when we lived in CA in a condo under a euc forest. I was even putting euc oil in the
air conditioner--completely ignorant because I did not have a dx. If I had known what to do it would have saved SO much anxiety and grief, especially for my husband. I do drink
green tea and am not sure whether yerba Matte would be OK . I will ask the person who
specializes in such things on the Porph forum.

Today, thinking about "over heat", which I do have due to Polycythemia Vera (verified by
doctors of oriental medicine) I remembered that I have a bottle of herbs from Evergreen
herb company, which are anti-heat. I took them last August and they were OK for me.
I am starting them again today, in small dose as always.

I will get out the mag oil now. A million thanks, Mrs. D. You have a amazing knowledge.
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Old 06-01-2011, 01:30 PM #6
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I have this mostly at night. I take 1/4 of a 20mg Klonopin and it does 2 things.....stops the pain and puts me to sleep.
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Old 06-01-2011, 06:57 PM #7
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Mrs. D, I could not find my magnesium lotion, it must have got lost in transit from Seattle, where I was last year until I broke my knee (fell down stairs due to neuropathy).
I went to CVS online to ask what ingredients were in their Epsom Lotion. Probably it's fine, as it says "unscented", but I need to know what's in it. I called but they were closed. I
will try again tomorrow.

My feet are pretty good today. about 80% better than when I was on Hydrea or Interferon. I could walk to the clinic from my car, where I had a CBC today,
and into the library to seek the research desk aid to inquire about side effects of
the radiation treatment p32 (Potassium version) for Polycythemia Vera, and I
also shopped at the market! Getting around as well as most people, and my
balance was only slightly off. That's my marathon equivalent to Dejibo's walk of
three miles! but now, down for the evening. I am waiting for research desk
aid--very nice librarian at that desk. We have an outstanding library here in
Los Alamos, which is something one would expect with all of the research
scientists here. We have more Ph.D.'s in science per capita than any town in the
USA, and 11 cases of Polycythemia Vera (that is a cluster).
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Old 06-01-2011, 07:09 PM #8
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Sally and Mrs. D, you are quite right that the small amount of soy oil in the capsules Sally bought will probably be fine for her. In my case, I probably could not digest them, as I get
indigestion from most soy oil...so it's better for me to use the Twin Lab non-oily D3. I do
take the capsules with the oil or fat that I DO use, such as eggs, bread, mayonnaise, etc.
I use a brand of mayonnaise that has both canola and flax in it. I know that canola is not the best, but I can tolerate this flax oil and I can't tolerate every flax oil, so by experimentation I have found a small source of Omega 3.
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Old 06-02-2011, 11:19 PM #9
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Quote:
Originally Posted by mrsD View Post
I would try magnesium lotion first. (I don't know what you can have orally)

Magnesium helps with the micro-circulation, which often is hard to test for.

Thick blood from polycythemia or from elevated antibody peptides tend to clog up the tiny vessels in the feet. Magnesium helps open those tiny ones and improves circulation.

A poster on PN found this new lotion, and I have been using it every night for my magnesium instead of oral and it works nicely.

http://www.cvs.com/CVSApp/catalog/sh...new_crumb=true

That would be the first thing and easiest to try.

Staying away from sugar and MSG also helps. Sugar raises triglyerides and they also clog up the vessels, because they are viscous.
mrs.D, thank you so much.
I woke up to the worst 'Charley Horse' cramp in my calf muscle. After I finally go it to calm down, it had the ache and pain in it all day. We went out to stores today and I got that CVS Epsom Lotion. It's new so paid $10.50. A large 8 oz. bottle goes a long way I think. By the time I got home my calf was still so very sore.

I put on the lotion and rubbed it in. I used a thin rubber glove because I wasn't sure if my hand would have a bad effect. The leg I would wash right off. But no problems. It goes right in to the skin. Great stuff. I love it!

It took the pain and soreness away almost instantly. It is incredible lotion. I plan on trying it on my burning feet and legs tonight after my shower. I hope it keeps the muscle cramps and/or spasms away, and if it helps with bad burning, I'll kiss your feet.

PS: I take a lot of Potassium and Magnesium. I think my HCTZ for BP, is making me lose all the good stuff.
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Old 06-03-2011, 04:44 AM #10
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Lightbulb

The ingredients for the lotion are on the link I gave:

http://www.cvs.com/CVSApp/catalog/sh...#Prodtabdetail

I just noticed, capsicum! I get absolutely NO burning from this so I wonder how much is really in there? I wish they would give a concentration for the magnesium, too.

I am glad that it is working for you, Lady. I find it very relaxing when I go to bed...seems I have tense muscles alot of the time for some reason.
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