advertisement
Reply
 
Thread Tools Display Modes
Old 06-02-2011, 11:40 PM #1
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Changing to Copaxone

Been on Beta since 2006. Dr feels it is no longer working, so I am in the process of changing over to Copaxone. Any advice? Thanks.
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (06-03-2011), DizzyLizzy (06-03-2011), dmplaura (06-03-2011), SallyC (06-03-2011)

advertisement
Old 06-03-2011, 12:44 AM #2
DizzyLizzy's Avatar
DizzyLizzy DizzyLizzy is offline
Member
 
Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
DizzyLizzy DizzyLizzy is offline
Member
DizzyLizzy's Avatar
 
Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
Default

One piece of advice I have if you use the autoject, is to hold the red tip 'up' so the air bubble rises towards the red cap, then pull the cap straight upwards when pulling it off and that will pull the bubble out at the same time. This way you will eliminate the little 'air bubble', which can be a cause of irritation.

I also found that my stomach was the best place for the shots and that is because I am 'padded' pretty good there, along with the bum.

Good luck to you! I hope 'C' works well for you!
__________________


Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
DizzyLizzy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (06-03-2011), Friend2U (06-04-2011)
Old 06-03-2011, 08:37 AM #3
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

in the early days it has a bit of a bite to it. please know that this WILL get better and better. it will not always be that way. I was upset that no one warned me it was a stinger in the early days.

ROTATE! make sure you pick an area, lets say your thigh, make six spots on that thigh or even 4. that way you only hit that one area once a month, not once a week. Have a rotation schedule. Wednesday was tummy day for me, because it was the middle of the week, and the middle of my body. Saturday and Sunday I sat on my bum, so it was bum shots. Monday I strong armed my way back into the week so Monday was an arm. and so forth. just make sure to use a WIDE area of the body part you choose.

Use the SIDE wall of your thigh and you will find much more fat there. The picture shows the top side of the thigh, but its so close to the muscle that I kept doing muscle pops and those hurt! so, I switched to the side wall and was extremely happy.

drink loads of water each day. keep yourself flushed out.

Copaxone can take six months to a year to start being very effective. it took the full year for me.

DONT SKIP shots. either do it or dont do it. dont be a middle of the road girl. Pick a lane.

Learn to manually inject. even if you never intend to do it. If you know how and your auto injector is broken there is no panic or wait. Shared solutions is awesome at overnighting things to you, but you will have to skip a day if you dont know how.

Call Shared Solutions AFTER your first shot and ask for all the goodies! they have yoga CDs, shot boxes that you can keep the shots in your fridge, or travel boxes to carry them in your suitcase, and magnets, and cool wraps, and ice packs, and tons of fun stuff. make sure to ask for a goodie basket. They wont send any stuff till the nurse who teaches you registers that you did the first shot.

Breathe, relax! dont stress. Make shot time ME time. A time to sit for 15 mins and do nothing else. rest, stare off into space.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (06-04-2011)
Old 06-03-2011, 10:12 AM #4
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Default

Sometimes it stings and sometimes it doesn't. Haven't been able to figure out why but in any event I have gotten used to the sensation. I also shoot in the more padded areas as well as my butt. I've been very happy on Copaxone for 6 years.

Good luck!
__________________
He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
Jules A is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (06-04-2011)
Old 06-03-2011, 12:00 PM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Hi Friend, nice to see you again. Wacha been up to?

Good luck with the Copaxone. I hope it works well for you.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (06-04-2011)
Old 06-03-2011, 02:41 PM #6
TXBatman's Avatar
TXBatman TXBatman is offline
Member
 
Join Date: May 2008
Location: Houston, TX
Posts: 702
15 yr Member
TXBatman TXBatman is offline
Member
TXBatman's Avatar
 
Join Date: May 2008
Location: Houston, TX
Posts: 702
15 yr Member
Default

Benadryl Gel is your friend. Gently smear it on the area after you do your shot and it greatly reduces the itchy burning feeling. Don't rub, that will make it worse...just gently coat the area with it. Also, not sure if it is true, but I was told not to release the bubble when removing the cap as the bubble helps make sure all the medicine is pushed out of the needle and helps "seal" the injection site so the med doesn't leak back out. As was said above, it hurts like the dickens early on, but after a few weeks or a month it starts getting better. I actually liked Copaxone better than the Rebif I am on now because other than the skin irritation I had no side effects. Rebif makes me feel like crap.
TXBatman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (06-03-2011), ewizabeth (06-03-2011), Friend2U (06-04-2011)
Old 06-03-2011, 04:39 PM #7
carebear01 carebear01 is offline
Junior Member
 
Join Date: Nov 2010
Location: North of Detroit
Posts: 80
10 yr Member
carebear01 carebear01 is offline
Junior Member
 
Join Date: Nov 2010
Location: North of Detroit
Posts: 80
10 yr Member
Default

I have been on C for three years with no significant problems. I started out following their rotation guide then gradually started my own. I do not do my arms. There just isn't' much area to rotate there...I do have small indentations on my arms so I quit that area...I like to go sleeveless when it is hot. My stomach gets the inj's the most...lots of fat there and also my inner thighs. Make sure it is at room temperature. It takes a while to learn the needle setting for your different spots. If the needle is too short and doesn't go in to the fat...it can really sting. Yeah, I still get some red bumps or itchy spots but I just have to deal with that. Good luck to you!
carebear01 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (06-03-2011), Friend2U (06-04-2011)
Old 06-03-2011, 10:28 PM #8
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

Quote:
Originally Posted by carebear01 View Post
I have been on C for three years with no significant problems. I started out following their rotation guide then gradually started my own. I do not do my arms. There just isn't' much area to rotate there...I do have small indentations on my arms so I quit that area...I like to go sleeveless when it is hot. My stomach gets the inj's the most...lots of fat there and also my inner thighs. Make sure it is at room temperature. It takes a while to learn the needle setting for your different spots. If the needle is too short and doesn't go in to the fat...it can really sting. Yeah, I still get some red bumps or itchy spots but I just have to deal with that. Good luck to you!
Almost identical to my experience. I no longer use my arms. They are not so skinny anymore but it was a painful area to shoot and I don't want indentations there. I use my heinie and tummy the most. I use the autoinjector for the heinie. I keep a calendar showing the following to keep track. For example:

Right butt high = RBH

or, RBHO = Right butt high outer

Left stomach high inner = LSHI

and so on....

I try not to repeat any one spot more than once in two weeks. This really works! Good luck!
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DizzyLizzy (06-06-2011), Friend2U (06-04-2011)
Old 06-04-2011, 04:23 AM #9
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default

Thanks all for the good advice...I'm waiting to hear from the nurse and for the paperwork to go through. Glad for a little break from shots while I wait.
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DizzyLizzy (06-06-2011), ewizabeth (06-04-2011), SallyC (06-04-2011)
Old 06-04-2011, 04:25 AM #10
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default

Quote:
Originally Posted by SallyC View Post
Hi Friend, nice to see you again. Wacha been up to?

Good luck with the Copaxone. I hope it works well for you.
Hi Sally! Seems like my energy level has been so low that I haven't been on here much. But I've missed everyone. Hope I get to feeling more like it soon.
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (06-04-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
changing meds nbkg1 New Member Introductions 3 08-10-2007 12:06 AM
changing meds theoneRogue420 Epilepsy 7 07-25-2007 01:42 PM
Changing mood DaleD Parkinson's Disease 19 07-19-2007 10:26 PM
Changing Doctors optimumeg Community & Forum Feedback 6 04-20-2007 03:01 PM


All times are GMT -5. The time now is 08:27 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.