advertisement
Reply
 
Thread Tools Display Modes
Old 07-01-2011, 07:52 AM #1
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default Prayers for ViSeeU

She has been struggling to quit smoking, and went on Chantix, and she didnt quit, but came close. She also gained a bit of weight which upset her greatly. Then she went to the neuro and found out that her liver enzymes are elevated and climbing. She has been on Betaseron for 10 years! 10! and not one single large relapse. She has been a poster child for the drug, and very happy with the results.

Now after taking Chantix they are thinking it bumped her liver into being unhappy, and we are both thinking that the Beta is keeping it unhappy. Now when she takes a shot she gets deep chills, and deep body aches, along with a large dose of not feeling good.

She is going this morning for a liver scan, and a scan to check for a family condition at the same time, but its scary, frustrating, and irritating. Will she have to give up the meds that took her EDS from 3.5 to 0? Will she relapse if she stops it? Will she be able to continue to live the unencumbered life she leads now? So many questions.

So, up at the crack of insanity with NO coffee! she went to her scan. Can you say a little prayer for her as you pass thru your day?
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (07-15-2011), dmplaura (07-01-2011), ewizabeth (07-01-2011), hollym (07-02-2011), Jappy (07-02-2011), Kitty (07-01-2011), Lady (07-05-2011), NurseNancy (07-15-2011), SallyC (07-01-2011), TwoKidsTwoCats (07-01-2011), viseeu (07-01-2011)

advertisement
Old 07-01-2011, 08:10 AM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Prayers going up right now.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (07-05-2011), viseeu (07-01-2011)
Old 07-01-2011, 12:04 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Prayers for V are on their way..and hugs

Has she tried the e-cig? I sure love mine, still after almost 3 yrs on it!!! I don't miss the tobacco smoke one bit and I can still have a bit of nicotine..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
viseeu (07-01-2011)
Old 07-01-2011, 12:05 PM #4
TwoKidsTwoCats TwoKidsTwoCats is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,284
15 yr Member
TwoKidsTwoCats TwoKidsTwoCats is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,284
15 yr Member
Default

Quote:
Originally Posted by Dejibo View Post
Now when she takes a shot she gets deep chills, and deep body aches, along with a large dose of not feeling good.
Prayers for Viseeu... I pray the scans show a good outcome and no liver damage.

I get those deep chills and body aches about 2 hours after injection of Betaseron. If I premedicate with ibuprofen, I just experience some fatigue. I really worry about developing liver issues while on it.
__________________
Worrying is like a rocking chair it gives you something to do, but it doesn't get you anywhere ~Van Wilder
TwoKidsTwoCats is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (07-05-2011), viseeu (07-01-2011)
Old 07-01-2011, 12:59 PM #5
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

She had the scan, and they let her go afterwards, so it must not have been horrific or they would have kept her, no? She said they pushed pretty hard with that thing, and made her squeel a time or two. (big ol baby) So, she should be home soon, but her message sounded shakey and like she really didnt feel good.

She has tried and continues to use the E cig as well as a puff here and there of the normal cig which makes her extremely dizzy. She is frustrated with herself for that.

She feels that she has gained too much weight, sat back and done nuttin for too long, and needs to remotivate herself back to where she was.

Keep the prayers coming we still aint got answers.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (07-02-2011), Kitty (07-01-2011), Lady (07-05-2011), NurseNancy (07-15-2011), SallyC (07-01-2011), TwoKidsTwoCats (07-01-2011), viseeu (07-01-2011)
Old 07-01-2011, 02:52 PM #6
viseeu's Avatar
viseeu viseeu is offline
Member
 
Join Date: May 2008
Location: Notasulga, Alabama
Posts: 171
15 yr Member
viseeu viseeu is offline
Member
viseeu's Avatar
 
Join Date: May 2008
Location: Notasulga, Alabama
Posts: 171
15 yr Member
Default

Awww, Dej! appreciate the post for prayers and appreciate your support more than you know. Thanks Kitty, Sally, Twotwo

Scan done, results in... Fatty liver disease, which was my first guess since I gained nearly 25 pounds from November to March and it aint gone nowhere *sigh* so, now it is "official" that I need to do what I've been attempting to do--motivate myself to eat better, walk more, stretch more, exercise more.

I'm always amazed at how we can know in our head what needs doing but the body goes inert... I weighed 220 back in Nov. 2006, made a decision to change that, started exercising, yoga, walking, eating better--no fast food for over a year and by fall of 2007 when I met Dejibo I was around 180, limber (could stand flat footed with feet together and put my palms on the floor), and still maintaining a healthy lifestyle (besides the smoking)

2009...doing less and less, watching the weight creep on me...185, 190, 195... then last October decided to try the Chantix = less smoking, skin problems, depression, weight gain... elevated liver enzymes...225 and fatigued, unmotivated, angry with myself, etc. So that's how I arrive at my current dx of fatty liver disease.

something funny to relieve the serious: they had 4 different people pushing the ultrasound thingie on my abdomen, side, back.. said pictures were hard to get because I had gas bubbles they couldn't see thru... so, after an hour they are finally done, 2 ladies left in the room, I roll side ways to get off the table and you guessed it!!! just had to fart crop dusted the room big time and boy did they hurry me along to the hallway; boy did it stink too! but honestly I couldn't help it!

so, thanks for the positive thoughts and prayers. I know what I need to do, just need to do eet!!

oh! they found 4 stones in my gall bladder too :S asymptomatic so they can just live there
__________________

.

.


.
first flare 7/22/2000
Dx 8/3/2000 RRMS-- no relapses since
Betaseron 11/15/2000
Didn't miss a single injection the first 8 years. Now take about 6 shots off a year
.

Great minds discuss ideas, average minds discuss events, small minds discuss people.
Hyman Rickover, "The World of the Uneducated", "The Saturday Evening Post", November 28, 1959
viseeu is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (07-15-2011), Dejibo (07-01-2011), dmplaura (07-01-2011), ewizabeth (07-01-2011), hollym (07-02-2011), Kitty (07-01-2011), Lady (07-05-2011), NurseNancy (07-15-2011), SallyC (07-01-2011), TwoKidsTwoCats (07-01-2011)
Old 07-01-2011, 03:18 PM #7
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

AWw Vik! I love you more than my luggage! I am sorry you tootled on the poor hospital folks.

I promise when you come up in November, we will get you headed in the right direction. Good food here, good motivation here, and a non smoking house outta whip you right into shape. I know you have the courage, the strength and the drive that you need, but you need to dust it off and use it. I need you to be healthy enough for our annual girl-a-thon. We need to go to Maine this year and cause trouble in Bar Harbor.

Glad you are home safe, with easy answers. Fatty liver is certainly easier to take care of than many other dx I can think of.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (07-01-2011), hollym (07-02-2011), Lady (07-05-2011), TwoKidsTwoCats (07-01-2011), viseeu (07-01-2011)
Old 07-01-2011, 03:22 PM #8
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Well I prayed for your pressure to be released and if farting in their faces did it, then I say good going!!!
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (07-01-2011), hollym (07-02-2011), TwoKidsTwoCats (07-01-2011), viseeu (07-01-2011)
Old 07-15-2011, 06:31 AM #9
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

I suggested she try something and of course she did it. I could get her in trouble if she keeps that up.

She decided to take a Betaseron vacation. After 14 days of not being on the meds, she had her LFTs redrawn. They dropped by at least HALF! Thats awesome!

We are thinking that maybe the chantix or the weight gain, or something must have pushed the Betaseron into reacting badly on her. She has written an email to her MD who didnt know she took the break. Like most MDs he said "keep shooting!" and if we cant find any other reason for it, we will try a vacation with you. Well, we didnt wait for him or her liver to get past the 200 mark.

Since being off the Beta, she reports less bloating, less fatigue, less pain in her ribs. She has increased her fruits, and veggies and has done some exercise, so its not simply a Beta break, she is being pro active in other ways, but the LFTs were rising with each draw.

Will keep you tuned on the results from her MS MD about how long SHE not HE wants a break from this to allow her liver to heal. Please dont stop the prayers. its working!
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (07-16-2011), Kitty (07-15-2011), NurseNancy (07-15-2011), SallyC (07-15-2011), viseeu (07-15-2011)
Old 07-15-2011, 04:11 PM #10
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

i didn't know all this was going on V. glad you're doing better tho and enjoyed reading dej's briefs on the situation.

seems like you were not feeling well due to the B. i hope that improves.
meds are a dilemma indeed.

i know you can do all these things to improves your situation. because you've done them all before.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (07-15-2011), viseeu (07-16-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Happy Birthday Viseeu Dejibo The Stumble Inn 5 04-13-2011 03:14 PM
Need some prayers watsonsh Sanctuary for Spiritual Support 21 03-04-2009 10:31 AM
May I ask for Prayers DianaA Reflex Sympathetic Dystrophy (RSD and CRPS) 16 02-07-2009 04:05 PM
Need prayers for my MIL Bannet Sanctuary for Spiritual Support 23 06-26-2008 07:00 AM
Prayers please for our BJ Alffe Sanctuary for Spiritual Support 14 10-14-2007 08:20 PM


All times are GMT -5. The time now is 07:25 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.